Seeking Help for Severe Duodenal Reflux Gastritis
Hello, f30. I'm reaching out for guidance on how to effectively communicate my condition to a gastroenterologist.
I’m experiencing significant duodenal reflux, resulting in bile and fluid accumulating in my stomach. After only a few bites of food, my stomach fills with liquid rather than emptying properly, leading to prolonged retention that causes irritation. Over time, my digestive function has steadily declined. I’ve lost 13 kilograms and now find it challenging to consume even a single glass of water or two meals a day. While I don't experience nausea, I'm plagued by continuous liquid retention and a persistent dull burning sensation that is worsening, accompanied by a swallowing reflex that feels like water pooling in my throat.
Previous symptoms, such as sporadic but intense feelings of hunger that were alleviated by eating, as well as brief periods of gnawing discomfort, were ignored during earlier consultations. I later realized these could indicate a mild form of erosive gastritis.
Regrettably, the delay in proper diagnosis and the misleading advice from alternative healthcare providers have exacerbated my situation, something that is quite difficult to accept given that I may have been treatable at that time. In contrast, I’ve observed online communities where people suffering from gastritis report more severe experiences than I initially had, leading me to unknowingly consume foods that exacerbated my condition.
Many healthcare professionals attribute my issues to anxiety or stress. Although I acknowledge that worrying about my health has not contributed positively to my situation, I have not seen a direct correlation between stress and physical symptoms. Moreover, I have no history of mental health disorders.
I would have been open to a diagnosis of gastritis along with a stress-related component, but the biological factors have never been thoroughly explored. I felt as though I was on a path to recovery but, lacking essential knowledge, I inadvertently consumed inappropriate foods and drinks.
My primary challenge lies in articulating the severity and progressive nature of my condition without coming off as self-diagnosing or exaggerating my symptoms. I wish to convey the abnormal and uncontrollable accumulation of liquid and its damaging effects, yet I am continually dismissed because I still consume food and my digestion appears normal.
I seek an assessment of whether the fluids I'm retaining are from my stomach or the pancreas. A year ago, an endoscopy indicated a healthy stomach (only a month following an injury), yet my health has deteriorated since, a point that was previously dismissed. I now recognize this decline to be linked to more severe bile reflux, triggered by my injury, which has led to a gradual loss of stomach function.
I am exploring the possibility of the DeMeester duodenal switch surgery, but it’s not feasible in my country. I hope to attain the necessary diagnosis to discuss this possibility.
How can I express to a doctor that my issues are no longer merely psychological? I am unable to eat or drink the necessary amount for survival, and relying solely on a once-daily meal is not sustainable. How should I approach asking for further investigation or an open dialogue regarding future treatments, including the potential for surgery, when prior referrals have been declined without a full understanding of my situation?
I appreciate any advice you might have regarding my language or strategy when addressing this. A candid discussion concerning the risks and benefits of surgery in my circumstance is crucial. Additionally, has my stomach lost neural function? Are the fluids I’m experiencing pancreatic, or are they unusual protective secretions from the stomach?
It is vital for me to gain a realistic perspective on my future. I realize that whenever I suspect bile, the subsequent day becomes noticeably more challenging. Can surgery potentially reverse this damage, or is that a futile hope? Those are the types of questions I want to explore with a medical professional.
Sinus CongestionENTAllergy & Immunology