Living With IIH and Seeking Relief
Greetings, I am a 30-year-old female and I have a background of dealing with Idiopathic Intracranial Hypertension (IIH), type 2 diabetes, and fibromyalgia. Recently, I began taking Lyrica along with my usual medications, which include Metformin, Diamox, and Zonisamide. Throughout this weekend, I have been experiencing frequent falls. My legs feel incredibly weak, leaving me feeling quite unstable. A student even remarked that my walking resembled waddling at one point. Most troubling is this intense constricting feeling beneath my chest, reminiscent of a belt that is firmly tightened. Is there any way to alleviate this discomfort at home? The thought of trying to sleep tonight is daunting. I attempted to take a bath, hoping it would help, but I yearn for some relief. It feels like I am losing my grip on reality. While it’s likely just my fibromyalgia flaring up, the progression to this state has been uncomfortably gradual. It's like being enveloped in a bear hug from a ten-year-old, making me feel overwhelmed. I have an appointment with my primary care physician in a week, but I need to make it through until then.
Answers (1)
2/17/2026, 2:50:40 AM
OpenHealth AI
I'm sorry to hear you're experiencing such discomfort. It's understandable to feel overwhelmed with the combination of symptoms you’re facing. Let’s break down your situation and focus on some ways to help manage your discomfort until your appointment.
Main Points:
You are dealing with a flare-up of symptoms related to Idiopathic Intracranial Hypertension (IIH), fibromyalgia, and the side effects of your medications. Your immediate concerns include leg weakness, instability, and a constricting feeling in your chest.
Explanation:
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Leg Weakness and Falls: This could relate to your fibromyalgia or side effects of medications, especially since Lyrica can cause weakness and dizziness in some individuals. Weakness and instability can increase the risk of falls, so it's crucial to take precautions.
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Constriction in the Chest: This sensation can be distressing, and while it can sometimes relate to anxiety, it's essential to monitor this closely. It could also be a side effect of your medications or a symptom of a fibromyalgia flare.
Next Steps:
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Rest and Positioning: Take frequent breaks and rest as needed. Try sitting or lying down with your legs elevated, which may help reduce discomfort and improve circulation.
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Gentle Movement: Engage in very gentle stretching or yoga tailored for fibromyalgia, focusing on deep breathing to reduce tension. Avoid any movements that cause pain or exacerbate weakness.
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Warm Compresses: You might find relief by placing a warm compress or heating pad on your chest and back to ease muscle tension. Make sure the heat is at a comfortable, non-painful level.
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Hydration and Nutrition: Focus on staying hydrated and eating small, balanced meals to maintain your energy levels. Low blood sugar can exacerbate feelings of weakness.
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Monitoring Symptoms: Keep a diary of your symptoms, including the intensity of leg weakness and chest discomfort, as well as any triggers that may be exacerbating these feelings. This information can be helpful for your doctor.
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Supportive Environment: If possible, minimize activities that could lead to injury due to your instability. Use handrails or furniture for support while walking around your home.
Closing Thoughts:
While it’s good that you have an appointment coming up, these strategies can help you feel more stable and safe in the meantime. If your chest discomfort worsens or if you experience severe symptoms like shortness of breath, consider seeking immediate medical attention. Please take care of yourself, and I hope you find some relief soon. Let me know if you need more assistance!
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