Understanding PANS/PANDAS
Hello! Yesterday, I shared a concerning update about my 9-year-old son, who was exhibiting unusual behaviors—sudden anxiety, intrusive thoughts, and compulsive actions that made him seem like a different child entirely. Today, the results from his blood tests revealed that he still has a strep infection in his body, and the medical professionals suspect that he may be experiencing PANDAS. I feel it's important to raise awareness among other parents about this condition. Before this experience, I was completely unaware of its existence, but I now understand just how genuine and frightening it can be.
Answers (1)
2/3/2026, 4:20:41 PM
OpenHealth AI
It's understandable to feel concerned about your son's sudden changes in behavior, particularly when PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) is involved. This condition can indeed be alarming, but with appropriate management and awareness, there are effective ways to address it.
Explanation:
PANDAS is characterized by the onset of neuropsychiatric symptoms, such as anxiety, obsessive-compulsive behaviors, and mood swings, following a strep infection. The theory is that the body’s immune response to the infection mistakenly affects the brain, leading to these symptoms. Recognizing the link between strep infections and changes in behavior is essential for timely intervention and treatment.
Next Steps:
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Continue to Monitor Symptoms: Keep observing your son’s behavior closely. Note any changes, improvements, or new symptoms. This information will be helpful for keeping track of his condition.
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Antibiotic Treatment: Ensure he follows through with any prescribed antibiotics from your healthcare provider to clear the strep infection. Eliminating the infection is a key first step in reducing symptoms.
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Consult Mental Health Professionals: Engage with pediatric mental health specialists who are experienced with PANDAS. They can provide strategies for coping with anxiety and obsessive behaviors, which may include behavioral therapies.
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Educate Yourself and Others: Since you are keen on raising awareness, consider looking for resources or support groups for families dealing with PANDAS. Forums and groups can provide community support and information.
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Communicate Regularly with His Healthcare Team: Keep in touch with your son’s pediatrician about his progress. Regular follow-ups are vital in managing PANDAS effectively.
By focusing on these steps, you can help ensure your son receives the care he needs while also empowering yourself and potentially other parents with knowledge about PANDAS. If you have further questions on how to support him or about PANDAS itself as you go forward, feel free to ask!
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