OpenHealth Q&A

Get answered by medical professionals

Exploring the Possibility of Multiple Sclerosis

9/15/2025, 1:01:05 PMMale25-34

Profile: 37 years old, female, standing at 5’8”, weighing 168 lbs, with no usage of alcohol, cigarettes, or illicit drugs. Medical Overview: Since childhood, specifically from the age of eight, I have suffered from episodes of fainting, which were generally manageable and triggered by specific circumstances. However, everything shifted in 2016 when I contracted mononucleosis, leading to an escalation in these fainting spells. As a result, I was diagnosed with autonomic dysfunction and neurocardiogenic syncope. In 2018, I began to experience persistent headaches localized on the right side of my head, an issue that has fluctuated in severity over time. Additionally, since that same year, I have dealt with intermittent right-sided vertigo. Notably, an MRI conducted on my brain in 2018 came back clear. My health took another turn when I contracted Covid-19 three times, with the latest infection occurring in 2022, after which my symptoms worsened dramatically. By 2024, I received a diagnosis of POTS at the Vanderbilt Autonomic Dysfunction Clinic in Nashville, TN, yet my persistent right-sided headache, vertigo, and nearly constant tinnitus have lingered since 2022. Beginning in November 2024, I started experiencing visual disturbances, difficulty with balance, along with numbness and tingling on the left side of my face. An MRI taken in April 2025 revealed a solitary lesion in the frontal region of my brain. Since August 2025, I have noted a variation in pupil size and intermittent numbness and tingling in my left foot. My overall health seems to be in decline, which causes me a great deal of anxiety, and I find myself uncertain about the next steps to take. My neurologist has suggested that these issues are linked to my ongoing right-sided headache.

AsthmaMultiple SclerosisLupus

Answers (1)

Cony

9/15/2025, 1:01:38 PM

OpenHealth AI

You have raised important concerns regarding your health, particularly with the symptoms you've experienced and the recent MRI findings. The combination of your history with autonomic dysfunction, persistent headaches, vertigo, and new neurological symptoms warrants careful consideration. It's understandable that you feel anxious about these changes.

Summary of Your Situation:

  1. Prior Medical History: Episodes of fainting, autonomic dysfunction (POTS), and persistent symptoms like headaches, vertigo, and tinnitus.
  2. Recent Developments: New visual disturbances, numbness, and tingling, along with the discovery of a solitary brain lesion.
  3. Neurological Concerns: Symptoms raise alarms for potential conditions, including Multiple Sclerosis (MS).

Explanation:

Multiple Sclerosis is a chronic illness that affects the central nervous system and can cause various neurological symptoms, including those you mentioned. The solitary brain lesion and your range of symptoms, particularly the recent visual changes and numbness, could indeed be indicative of MS; however, other conditions can also produce similar presentations. The increasing severity of your symptoms after multiple infections, including Covid-19, warrants comprehensive evaluation.

Next Steps:

  1. Document Your Symptoms: Keep a detailed diary of your symptoms, including their onset, duration, and any triggering factors. This can help communicate your experience to your healthcare team more clearly.

  2. Follow-Up with Neurologist: Schedule a follow-up appointment to discuss the progress of your symptoms, the new MRI findings, and potential tests for MS, such as lumbar puncture (spinal tap) or blood tests to rule out other conditions.

  3. Consider a Second Opinion: If you're feeling uncertain about your current diagnosis and treatment plan, seeking a second opinion from another neurologist, preferably one specializing in demyelinating diseases, may provide additional insights.

  4. Support and Resources: Look for local or online support groups for people with POTS or MS, as connecting with others can help you feel less isolated and provide practical coping strategies.

  5. Manage Anxiety: Engage in relaxation techniques or mindfulness practices to help manage your anxiety regarding your health. A mental health professional could also support you during this time.

Take care to prioritize your health and well-being, and do not hesitate to seek further clarification or check in on your symptoms. You are taking constructive steps by seeking advice, which is commendable. Please remember that your healthcare team is there to help guide you through this challenging time.

Related Questions

Battling Chronic Nausea and Vomiting for Over Two Years

For the past two years, I (age 26, female) have been enduring an incredibly challenging health situation. I experience intense nausea daily and find myself vomiting numerous times, with almost nothing providing relief. To provide some background, I’m from West Texas and I currently weigh around 190 pounds, standing at 5’7”. Initially, my weight was about 211 pounds when these symptoms began, and it fluctuates frequently between 190 and 225 pounds. I engage in vaping and consume THC. Previously diagnosed with hypothyroidism, my condition seemingly resolved, according to my healthcare providers. Additionally, I have polycystic ovarian syndrome (PCOS). I have consistently faced irregular bowel movements, with stools that are loose and sometimes appear to have mucus. Compounding my struggles, I've also suffered from migraines. I have had an IUD for over five years, experiencing two insertions of the Kyleena device. In December 2022, my battle with health took a severe turn when I was diagnosed with stage 4 Hodgkin’s Lymphoma, requiring chemotherapy treatment, specifically AVBD (Apologies for not recalling the exact medication names). By July 2023, I had fortunately achieved remission. However, after reaching remission, my vomiting worsened, transforming from primarily white foam to a mixture of 80% bile, any food I attempt to consume, and still white foam. This intense vomiting, accompanied by significant pain in my upper back, escalated to more than eight episodes daily by November 2023. At that time, THC seemed to be the only avenue for me to retain any food. During this tumultuous period, I consulted various doctors who, after confirming I wasn’t pregnant, attributed my symptoms to Cannabinoid Hyperemesis Syndrome (CHS). Immediately, I ceased THC consumption for over six months, yet the vomiting continued unabated. Each time, doctors would prescribe ondansetron, regardless of my claims that it provided no relief. I experimented with various diets recommended by medical professionals, but there were no improvements in my condition. Eventually, I obtained a referral to a gastroenterologist who intended to perform an endoscopy. However, the procedure was prohibitively expensive even with insurance, and thus was never conducted. This doctor also ordered blood tests to rule out several gastrointestinal disorders, such as Crohn's disease, Irritable Bowel Syndrome (IBS), and gluten sensitivity, but all results came back normal. Afterward, I had another appointment with a different gastroenterologist, but the doctor failed to meet with me. Instead, a nurse informed me that the doctor had merely recommended promethazine without conducting any tests or scheduling further visits. When I mentioned the possibility of gallbladder issues, the doctor laughed dismissively at my suggestion. Discussing my situation with my oncologist, he suggested that my heightened sensitivity to food odors stemmed from my chemotherapy experiences while I was working in fast food. While food smells indeed affect me, I'm primarily triggered by medical scents such as rubbing alcohol and cleaning agents. This ongoing ordeal has been overwhelmingly distressing. I now experience episodes of vomiting accompanied by bright red blood, presumably due to a throat tear. When I first encountered this troubling symptom, I consulted a doctor who appeared unfazed and prescribed a promethazine suppository, which does help but makes me extremely drowsy. My nausea persists nearly around the clock, often feeling as if there’s a heaviness in the upper part of my abdomen. I frequent urgent care facilities when my symptoms intensify, only to be met with minimal assistance since this is a chronic issue. Currently, I lack a primary care physician. Whenever I sought one, I encountered skepticism regarding my condition, with some healthcare professionals implying that I was exaggerating my symptoms. Though many physicians who do take my situation seriously seem baffled, I've lost count of the diverse medical experts I've consulted about these ongoing issues. If anyone has insight or suggestions, I would genuinely appreciate it. I can share my latest bloodwork results if that would be helpful—just let me know!

LupusCrohn's DiseaseThyroid Disorders
Male25-34
1 hour ago

Strange Stomach Sensation Leading to Waking Up

Greetings. I'm a 36-year-old male, standing at 172 centimeters and weighing 90 kilograms. I don't take any medications, nor do I smoke. I've been living with diastasis recti for several years now, and I may also have irritable bowel syndrome (IBS). Additionally, I deal with fatty liver and kidney stones, though I assume these last two conditions are not related to my current concern. Occasionally, I experience a peculiar sensation that jolts me awake; it feels like a quick pulsing in my stomach. I’ve noticed it tends to affect the left side when I’m lying on my left side and the right side when on my right. Remarkably, it can occur even when I’m on my back. This strange feeling often escalates into a surge that fully rouses me. Alongside this, I sometimes feel prickling sensations throughout my body and fleeting lightheadedness. When this sensation disturbs my sleep while I’m turned to my side, shifting onto my back or the opposite side might alleviate it, but not always. In instances where I awaken while lying on my back, I discovered that gently pressing my hands on either side of my stomach can help, as can rising to a sitting or standing position. However, during my last two episodes—one a couple of weeks ago and another tonight—those techniques weren’t effective right away, which made me feel a bit anxious, prompting me to seek advice. Does anyone have insight into what might be going on? By the way, I’ve undergone routine ultrasound examinations of my abdomen by two different physicians during check-ups, both of whom assured me that everything appears normal, including my abdominal aorta and internal organs. They didn’t identify any issues at that time.

LupusCrohn's DiseaseRheumatology
Male25-34
2 hours ago

Swelling Beneath My Chin Near the Jawline

18-Year-Old Male: I'm reaching out to any medical professionals who might provide insights into my situation. I've been using marijuana since I was 14, but now, at 17, I'm making an effort to stop and have been clean for 18 days. Recently, I've discovered an unusual swelling located just beneath my chin, behind my jaw. It causes some discomfort when I move, yet it doesn’t feel painful continuously. I'm somewhat anxious that this could be indicative of a more serious issue, especially considering it's positioned near my chin's lymph nodes. Any advice or information would be greatly appreciated as it might help alleviate my worry.

ArthritisLupusInternal Medicine
Male25-34
3 hours ago

Seeking Insights: My Journey with Undiagnosed Neurological Symptoms

Hello everyone, I'm a 34-year-old female grappling with neurological symptoms that first appeared in October, and I’m eager to hear from anyone who might have faced similar challenges. My journey began with unexpected migraines, blurred vision, and an ongoing sensation of being off-balance or intoxicated. Gradually, I began experiencing mainly sensory-related symptoms, such as tingling and burning sensations, feelings of extreme heat and cold, sharp pains radiating in my arms and back, as well as discomfort in my hands and toes, alongside intermittent numbness. I also endure varying degrees of weakness and heaviness in my right side, specifically my arm and leg, although I haven’t suffered complete functional loss. The nature of my symptoms is erratic; they fluctuate rather than consistently deteriorate. An MRI revealed mild, scattered lesions in the white matter, which were deemed nonspecific. Further tests from a lumbar puncture returned normal results, showing no markers of inflammation, and the oligoclonal bands were not present. A thorough range of lab tests yielded no significant findings. After evaluating my case, the neurology team suggested a possible diagnosis of MS and administered a three-day course of intravenous steroids. While I noticed a slight improvement in some sensory pain, my symptoms persist and continue to vary day by day. I still experience headaches and pressure in my head along with episodes of blurred vision, but there have been no new deficits since treatment. I am reaching out to connect with others who have had similar experiences. I would like to learn about the insights or diagnoses you encountered and what treatments proved beneficial (such as those related to migraine disorders, dysautonomia, or sensory neuropathy, for example). If you have navigated a similar path, I would greatly appreciate your sharing your story. Thank you!

Multiple SclerosisLupusEndocrinology
Male25-34
4 hours ago

Should I Seek Medical Attention for Left Ear Pulsatile Tinnitus?

A 31-year-old woman reports an ongoing issue with pulsatile tinnitus, which she is currently experiencing solely in her left ear. Although she's noticed this condition intermittently before, she hadn’t paid it much mind due to the absence of pain. Recently, however, her curiosity piqued her interest in researching the condition, where she stumbled upon information suggesting it could be serious. Usually, she avoids searching online for health worries, but now she is contemplating whether a visit to the doctor might be warranted. Can anyone advise on the need for a medical evaluation in this case?

LupusThyroid DisordersInternal Medicine
Male25-34
4 hours ago