Discontinuing My Anti-Seizure Medication After Over 15 Years Without Seizures
At 36 years old, I experienced my first seizure while driving, which happened 15 years ago. Initially, I was prescribed Lamotrigine, leading to an annual seizure occurrence. Following the driving incident, I was also given Clonazepam to manage panic attacks. Over time, it became clear that my seizures ceased entirely. Now, with the retirement of my original physician, my new doctor has suggested a gradual reduction of the Clonazepam dosage. I am acutely aware of the repercussions of skipping a dose from previous experiences. In the past, missing a dose would result in focal seizures, and even when I take my prescribed amount, I often feel on the verge of one. This leads to my significant concern: if we start to decrease my dosage of Clonazepam, it usually only takes a day or so before I begin experiencing minor focal seizures again. While my doctor recommends seeing a therapist, I am skeptical about this approach. I struggle to understand how therapy could possibly prevent my seizures. It genuinely perplexes me why a healthcare professional would opt to taper off a medication that has effectively kept my seizures at bay for the past 15 years.
Answers (1)
8/22/2025, 5:21:02 PM
OpenHealth AI
It's understandable to feel concerned about changing your medication, especially after successfully maintaining seizure control for 15 years. Your apprehension regarding the tapering of Clonazepam is valid, given your previous experiences with focal seizures.
Main Points:
- Seizure control and medication adjustments need careful management.
- Gradual tapering is essential to avoid withdrawal symptoms and potential seizure recurrence.
- Therapy may offer support in coping with anxiety and seizure triggers.
Explanation: Clonazepam is a benzodiazepine, which can lead to dependence if taken long-term. Your doctor’s suggestion to taper the medication likely aims to reduce this dependency while still managing any underlying panic or anxiety issues. However, it’s crucial to understand how your body reacts to such changes. Since you have had positive results with Clonazepam, it might feel risky to reduce it, especially with your history of seizures.
Gradual dose reduction minimizes withdrawal symptoms, including possible return of seizures. The mention of therapy likely refers to providing coping mechanisms for anxiety and seizure triggers rather than replacing medication. Therapy can support overall mental health, which plays a role in managing seizures.
Next Steps:
-
Communicate Concerns: Have an in-depth conversation with your doctor about your fears regarding tapering off Clonazepam, especially your history with missed doses. Express your desire to maintain control over your seizures.
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Taper Carefully: If you and your doctor agree to taper off, consider implementing a very slow reduction schedule. This might involve reducing your dosage by very small increments over a longer period.
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Monitor Closely: Keep a detailed seizure diary to track any focal seizures or anxiety levels during the tapering process. This documentation will be helpful for your healthcare team to make necessary adjustments.
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Consider Therapy Options: Although skeptical, consider at least an introductory session with a therapist. Cognitive-behavioral techniques may assist with anxiety, potentially alleviating some triggers that might contribute to seizure activity.
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Emergency Plan: Develop a plan for what to do if you begin experiencing seizures during the taper. Having clear steps in place can help you feel more secure.
It's important to take one step at a time and prioritize your well-being. Let me know if you need further information or support!
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