Concerns About Possible MS Diagnosis
At seventeen and weighing 240 pounds, I’m dealing with pots and autism along with developmental delays. My daily challenges include significant memory lapses, frequently losing items (I’ve replaced my card six times this year), and a noticeable decline in my handwriting quality. I often confuse letters like 'b' and 'd', or fail to write down letters from words I can easily spell aloud. Typing has become increasingly difficult too. I also experience urinary issues, as well as numbness and tingling that extends from my groin to my feet. I often wake up with my legs feeling half-numb, while the areas I can feel tend to burn painfully with a pins-and-needles sensation. A medical assessment ruled out Cauda Equina Syndrome (CES), with the reasoning that "if it were that, hospitalization would have been necessary by now," given that this has been ongoing for a year. My general practitioner has referred me to both neurology and rheumatology but mentioned in the referral that he doubts anything significant will arise from the tests, asking for my psychiatrist to increase my sertraline dosage. However, my psychiatrist has declined to do so, affirming that it is not necessary. I have an appointment with neurology scheduled for November, but I only received the date in January. Last week, I also visited a urologist who conducted a flow test, which yielded positive results. He emphasized that I need to consult with neurology since he believes my urinary issues are connected to them. Physically, I feel unsteady. I've had a turned-in foot since birth, which appears to be deteriorating. I'm experiencing increased dizziness and muscle twitching, with rapid spasms occurring beneath my skin. Each day, these symptoms worsen, and I dread contemplating how I will feel by November. I constantly feel the urge to urinate and often have accidents without much warning; I frequently arrive home to find wet underwear. Additionally, they’ve suggested I see an educational psychologist because my ability to concentrate has declined significantly compared to two years ago. Mobility is a struggle as well; I rely on my wheelchair, crutches, or at times lean on someone next to me for support. Going down stairs has become a challenge, forcing me to drag along walls. A railing was supposed to be installed but was neglected. The fatigue I experience is overwhelming, leaving me persistently tired and achy, resembling the feeling of having the flu constantly. I feel anxious about my condition and wonder if I should reach out to my doctor to inquire about any possible cancellations for an earlier neurology appointment.
Answers (1)
8/2/2025, 11:40:47 PM
OpenHealth AI
It's understandable that you are feeling anxious given the range and severity of your symptoms. While unclear diagnosis can be extremely stressful, it’s important to remain proactive and focused on your health. Your symptoms, including memory issues, tingling, urinary problems, and fatigue, certainly warrant further investigation, particularly in the context of potential neurological conditions.
Key Points
- Variety of Symptoms: You’re experiencing many symptoms that could overlap with conditions like Multiple Sclerosis (MS) but also some that may relate to other issues, such as POTS (Postural Orthostatic Tachycardia Syndrome).
- Current Referrals: Neurology and urology referrals are the appropriate next steps, and their evaluations can lead to a better understanding of your condition.
- Awaiting Appointments: While you have an upcoming neurology appointment, exploring ways to expedite this could ease your worries.
Explanation
- Symptoms like memory loss, motor coordination issues, and numbness or tingling can indeed be linked to neurological problems, thus your referral to a neurologist is crucial.
- Urinary issues and fatigue can also factor into neurological assessments, especially in conditions affecting the nervous system.
- The increased anxiety you report is normal considering the uncertainty; seeking support, whether from friends, family, or mental health resources, could be beneficial.
Next Steps
- Contact Your Neurologist’s Office: Ask if there’s a waiting list for earlier appointments or if they can alert you to any cancellations. Explain your symptoms and fears succinctly, which may help prioritize your case.
- Document Your Symptoms: Keep a detailed symptom diary until your appointment. This should include when symptoms occur, their intensity, and how they affect your daily activities. This will help provide your doctor with a clearer picture.
- Communicate with Your General Practitioner: If possible, let your GP know about the worsening of symptoms. They may be able to assist in expediting your referrals or provide short-term strategies for managing symptoms until your appointments.
- Explore Support Resources: Connect with support groups or resources for individuals with similar conditions (like MS or POTS) that may give you ways to cope and manage daily challenges.
Remember to take care of yourself as you navigate these health challenges. Gathering information, seeking emotional support, and clarifying your health concerns with healthcare providers can empower you during this time.
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