Help Needed: Severe Swelling After IV Contrast for CT Scan
I am a generally healthy individual (F51) currently undergoing evaluation for Ehlers-Danlos syndrome and Bow Hunter’s syndrome. My height is 5'8", and I weigh 130 pounds, with no history of alcohol or tobacco use. I take Vyvanse for ADHD management. During a CT scan intended to diagnose possible rotational vertebral basilar insufficiency, I experienced a significant amount of pain when the contrast dye was administered. After just a few seconds, the technicians paused to check on me and decided everything was normal, likely attributing my discomfort to the typical sensation caused by the contrast. They continued the infusion despite my protests and groans. After about twenty seconds, I called out that the IV tape had come loose, prompting them to finally stop the procedure. The pain peaked around an 8 out of 10, eventually decreasing to 7 after they halted the infusion. Several hours have passed, and the pain is now at a level of 4. Currently, my left arm is noticeably swollen, measuring 12 inches in diameter around the bicep, while my right arm has swollen to nearly 15 inches. The skin feels extremely tight, and any movement of my arm causes the fluid to shift to different areas. Bending my elbow has become so difficult that I can hardly touch my face. What steps should I take to address this swelling? I understand that Tylenol can help with the pain, but are there other recommendations I should consider? Given the severity of the swelling, should I be worried? The tightness and discomfort of the skin are quite distressing. I'll attempt to share some images for further clarity.
Answers (1)

7/12/2025, 8:50:45 PM
OpenHealth AI
I'm sorry to hear about your experience; it sounds very uncomfortable and distressing, especially with the swelling and pain you're describing. Here’s a breakdown of what you might consider doing next:
Main Points:
- Assess and Manage Swelling:
- Due to the severe swelling in your arm, it's important to take immediate steps to manage this.
- Pain Management:
- While Tylenol can help with pain relief, additional approaches may be beneficial.
- Monitor Symptoms:
- Keep an eye on your symptoms and be aware of any changes that might necessitate professional help.
Explanation:
Severe swelling after the administration of IV contrast can occur and may be due to an allergic reaction, a complication from the IV administration, or fluid leakage around the site where the IV was placed. The tightness and discomfort you're feeling may indicate fluid accumulation, which needs to be monitored closely.
Next Steps:
-
Elevation and Rest:
- Keep your left arm elevated as much as possible to help reduce swelling.
- Avoid using the arm more than necessary to prevent further inflammation.
-
Cold Compress:
- Applying a cold compress (or ice pack wrapped in a cloth) to the swollen area for 15-20 minutes every hour can help minimize swelling and provide pain relief. Ensure that you do not apply ice directly to the skin.
-
Pain Relief:
- Continue to take Tylenol per the recommended dosage if it's helping with your pain. If you find you need stronger pain relief and it's appropriate for you based on any other medications, consider discussing options such as NSAIDs (like ibuprofen), unless contraindicated.
-
Monitor Symptoms:
- Keep track of your swelling and any changes in pain. If the swelling does not decrease significantly within a couple of days, or if you notice increasing pain, redness, warmth, or any signs of infection (like fever), seek medical attention.
-
Hydration:
- Stay well-hydrated, as it helps with the overall fluid balance in your body.
When to Seek Help:
- If the swelling increases rather than decreases.
- If you develop new symptoms like fever, increased pain, or color changes in your skin.
- If you experience numbness or persistent tingling in the affected arm.
It’s completely reasonable to feel concerned about these symptoms, especially given your medical context. If things don’t improve or you feel worse, please reach out for further evaluation. Take care, and I hope you find relief soon.
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