OpenHealth Q&A

Navigating Unexplained Symptoms: My Ongoing Health Mystery

I apologize in advance for this lengthy message, but I feel the need to share my ongoing health situation that has recently intensified. For quite some time now, I have been grappling with a peculiar issue that progressively worsens day by day. Every medical professional I’ve consulted has never encountered my specific symptoms and is unable to identify any underlying problems. I often experience sharp pressure and pain in various regions of my body, which feels as though it's originating from my veins and seemingly shifts throughout my circulatory system. For instance, I might initially feel discomfort in my upper arm, only for it to fade and re-emerge lower down in my hand. Shortly after, the sensation could migrate to my leg, and soon thereafter, it manifests in my chest or head. This unsettling condition brings about episodes of numbness in several areas, lasting anywhere from approximately 20 minutes to several hours (referred to as hypoesthesia). Following these episodes, I typically regain around 85% of my usual sensation. The last significant episode occurred in early December 2024, when I felt this pain traversing my body, eventually settling in my right arm, which caused my right hand to go numb. Concerned about the possibility of a blood clot, given my family history, I visited the emergency room. However, after thorough examinations, the doctors concluded I did not have a blood clot and discharged me without a diagnosis. After discussing this incident with my primary care physician, I noted that since that episode, consuming sugar or carbohydrates seemed to trigger a return of numbness, accompanied by slight swelling in my hand. I was advised to adopt a low-carb diet and continue my daily routine. Fast forward to July 2025, I have adhered closely to a sugar-free and low-carb lifestyle since December. However, I've experienced persistent pain and numbness in my limbs daily over the past five days, with the most alarming episode occurring last night when the right side of my face felt numb. Fortunately, I had no other stroke-like symptoms, suggesting it wasn’t a stroke. I consulted a cardiologist who performed an EKG and ruled out cardiac issues, although my sedimentation rate was notably elevated at 63. I then visited a clinic where they reviewed my medical history, conducted blood tests, and indicated that only further tests, like an ANA test or screening for Lyme disease, could provide additional insight. I have not yet received those results but was advised to get a referral for a neurologist, which I have arranged, though my appointment is still months away. I am increasingly worried that if this issue remains unaddressed, it could escalate into something more serious. During episodes of numbness, I perceive a feeling of frailty in the veins surrounding the affected area, as if they are struggling to effectively circulate blood. Is the pain I'm experiencing linked to nerve issues or veins? Does the aggravation of my symptoms in response to sugar and carbohydrates imply sensitivity or something more significant? Moreover, I have experienced random episodes of numbness throughout my life without accompanying pain or identifiable causes. Is there a possible connection? I sincerely welcome any insights as every individual I’ve confided in, including medical personnel, has simply never encountered anything like this. Your assistance would be greatly valued as I seek to understand my health situation better. As a 25-year-old assigned female at birth, I currently take testosterone and estradiol for atrophy. Additionally, I've recently started vitamin B supplements. (For reference, please use he/him pronouns as I identify as a trans man)

Answers (1)

7/11/2025, 1:01:52 AM

OpenHealth AI

I understand that navigating unexplained symptoms can be incredibly frustrating and concerning. Your experience of sharp pressure, pain, and numbness that changes locations within your body warrants careful attention, especially given the nuances you've described, along with the impact of dietary changes.

Key Points:

1. Your symptoms, including shifting pain and periods of numbness, could be related to neurological issues or other underlying conditions.
2. The response of your symptoms to carbohydrates and sugar may suggest a sensitivity that could be linked to metabolic or inflammatory processes.
3. Elevated sedimentation rates and the upcoming tests (like ANA for autoimmune conditions and Lyme disease screening) are important steps in this investigative journey.
4. It’s crucial to monitor your symptoms while you wait for specialist consultations.

Explanation:

Your symptoms could potentially be multifactorial, including the possibility of nerve involvement, metabolic sensitivities, or even autoimmune components given the elevated sedimentation rate. The interaction between your diet and symptom flare-ups you've noted might suggest that certain foods are exacerbating inflammation or sensitivity in your body.

The conditions you mentioned (like fibromyalgia or multiple sclerosis) can sometimes present with similar symptoms, and being diagnosed requires a comprehensive understanding of your symptoms over time. Your upcoming neurologist appointment will be critical in exploring any potential nerve issues or central nervous system concerns.

Next Steps:

1. Keep a Symptom Diary: Document your symptoms, including when they occur, their intensity, duration, and any potential triggers (like dietary intake). This information will be valuable for your neurologist.

2. Monitor Dietary Reactions: Continue with your low-carb diet, but also note any other foods or activities that seem to correlate with symptom flare-ups. Consider reducing sugar intake further if you find it problematic.

3. Stay Hydrated and Active: Adequate hydration can be beneficial for overall health and circulation. Gentle exercises like stretching or walking may help maintain mobility without exacerbating symptoms.

4. Manage Stress Levels: Stress can often exacerbate pain and sensitivity. Techniques like mindfulness, meditation, or deep breathing exercises may help mitigate stress effects on your symptoms.

5. Follow up on Pending Tests: Ensure you stay connected with your healthcare providers about the status of pending tests. Understanding these results will be crucial to building a comprehensive treatment and management plan.

6. Emergency Measures: If you experience any severe or sudden symptoms (like difficulty breathing, severe headache, or loss of consciousness), seek immediate medical attention.

Your situation is indeed complex, and it’s understandable to feel anxious about the unknown. Pursuing answers and managing your symptoms through practical steps can empower you in the process. Please know you are not alone in this journey, and many individuals face similar health mysteries. Your wellbeing is essential, and continuing to seek understanding and support is vital.