OpenHealth Q&A

Emerging and Intensifying Neuropathic Symptoms

At 22 years old, standing 5'6" and weighing 140 lbs, I've been dealing with various forms of neuropathic discomfort. This pain primarily affects my left leg, stretching from the big toe all the way to the knee and also manifests in the thumbs, radiating up through my arms, shoulders, and chest. Additionally, I experience sensations in my jaws, sinuses, eyes, ears, and the back of my head. The onset of these symptoms traces back to late last year. I vividly recall the first time it occurred. After taking a Claritin to manage my allergies, I went to help out at my dad’s farm. While walking there, an unusual feeling struck my left leg, moving from my big toe up to the middle of my knee. It bore a resemblance to mild restless leg syndrome—a sudden urge to move it. Initially, I dismissed it as possibly related to RLS since I’ve dealt with it on and off for years, particularly as a child. I speculated it could also be a minor strain. However, the peculiar sensation did not dissipate over the following days. As time progressed, I began to notice strange feelings in additional areas. One day at work, I felt an odd sensation on the left side of my jaw, close to my lips, that seemed as though my skin was being pulled taut. It was disconcerting, yet again, I didn’t think much of it. Unfortunately, the situation escalated. While at work, I experienced a stabbing pain in the center of my left thumb, as if it was pricked by a needle. Gradually, I started to endure the following: - A persistent aching and stabbing discomfort in both thumbs, extending into my palms and further up my arms into my chest. My thumbs throb painfully when pressure is applied. I'm also plagued by numbness, tingling, and a burning sensation. - A sense of weakness in my hands and left leg, with walking feeling unsteady, resembling drop foot on the left side. Tasks like typing on a computer or phone, grasping items, and moving my fingers have become challenging. - Sensations of pulling and numbness on both sides of my jaw that radiate into my mouth and sinuses, leading to sinus pressure. This also extends into my eyes, where it feels like something is poking me or lodged within. Burning feelings traverse my head periodically. The pain is inconsistent, sometimes offering relief for a week, only to return with intensified severity. My primary worry is the abrupt emergence and widespread development of these symptoms, affecting my legs, hands, arms, face, and even my head and genitals at times. Before these neurological disturbances began, I struggled immensely with gastrointestinal issues, which still persist albeit to a lesser extent. I faced alarming symptoms like blood in my stool and an inflamed, bleeding polyp in my transverse colon, which was non-cancerous. I underwent a balloon dilation procedure in my esophagus due to severe swallowing difficulties and experienced acute esophageal spasms along with acid reflux. These issues resulted in a diagnosis of Grade A esophagitis and signs of gastritis. I also contracted COVID in December 2021. I suspect these symptoms may be linked to an autoimmune condition, but clarity will come only after what feels like an eternity of waiting to consult with a neurologist. It’s incredibly frustrating to manage debilitating gastrointestinal issues, only to have nerve-related problems emerge. This is my current situation, and while I am uncertain about the root cause, I hope to find answers soon. I'm reaching out to see if anyone else has experienced something similar or has any thoughts on what might be happening. Thank you for your insights.

Answers (1)

7/8/2025, 3:31:09 AM

OpenHealth AI

I understand that you're experiencing a troubling range of neuropathic symptoms affecting multiple parts of your body, including your legs, arms, and face, and that this is compounded by a history of significant gastrointestinal issues. It’s completely natural to be concerned about these symptoms, especially given their sudden onset and widespread nature.

Summary of Key Points

• Your symptoms, including pain, numbness, and weakness, have persisted and developed over time.
• You have a complex medical history, including gastrointestinal issues and potential autoimmune concerns.
• You're waiting for a neurology consultation to seek clarity on these symptoms.

Explanation

Neuropathic symptoms like those you described can arise from various underlying issues, including autoimmune disorders, nerve compression, infections, or even residual effects from previous conditions. The fact that you've had significant gastrointestinal problems, as well as your history with COVID-19, further complicates your situation, as some post-infectious neurological syndromes can also emerge. Common conditions that can lead to neuropathy include Multiple Sclerosis, Lupus, and Fibromyalgia, which you’ve mentioned considering. Symptoms may also be exacerbated during stress or if there's poor management of underlying conditions.

Actionable Next Steps

1. Symptom Diary: Begin keeping a detailed diary of your symptoms, noting the following:

   • Onset, duration, and intensity of each symptom.
   • Activities or triggers that worsen or relieve symptoms.
   • Any changes in your gastrointestinal health. This can help build a clearer picture for your neurologist.

2. Self-Care Techniques:

   • Gentle Exercise: Engage in light physical activities, like walking or stretching, which can help maintain mobility and may alleviate some symptoms.
   • Stress Management: Techniques such as mindfulness, yoga, or deep breathing can help deal with frustration and anxiety caused by these symptoms.

3. Nutritional Support: Consider maintaining a balanced diet rich in vitamins (especially B vitamins) and antioxidants, which can support nerve health. Speak to a nutritionist if possible.

4. Avoiding Irritants: Stay away from potential irritants or triggers, including certain foods, medications, or activities that could worsen your symptoms.

5. Be Prepared for the Neurologist: When you finally see a neurologist, bring your symptom diary and any relevant medical records (like those from your gastroenterology visits). This can help expedite your evaluation and potential treatment.

While it's frustrating to wait for a specialist, remaining proactive about your symptoms can help you feel more in control during this time. Should your symptoms worsen significantly or new severe symptoms arise (like loss of bladder control or extreme weakness), consider seeking immediate medical attention.

Please remember that your experience is valid, and finding answers is an important step. Stay hopeful, and take care of yourself while you wait for further guidance.