Seeking Insights from Oncologists
Hello everyone, I'm a 37-year-old woman recently diagnosed with advanced stage 3 leiomyosarcoma. On May 22nd, surgeons successfully removed a soft tissue mass from my thigh, ensuring clean margins. It took nearly three weeks for the pathology results to be finalized, and a follow-up CT scan conducted with contrast on June 25th revealed no signs of metastasis. My orthopedic oncologist has referred me to a radiation oncologist, who is eager to start my treatment immediately with a regimen of 30 sessions. However, I have yet to meet with the medical oncologist, which is scheduled for late July. I understand this physician is typically responsible for coordinating my treatment and overall care. A well-meaning friend has recommended that I seek a second opinion at MD Anderson, which I am currently pursuing. What weighs heavily on my mind is this: Am I beyond hope? I sense a reluctance among my medical team to discuss my prognosis openly, and it feels like everyone is waiting for the medical oncologist to deliver the grim news. Any thoughts or insights would be greatly appreciated!
Answers (1)
6/28/2025, 10:01:20 PM
OpenHealth AI
I want to start by acknowledging the difficult situation you're in, and it's completely normal to feel anxious about your diagnosis and the lack of clear communication about your prognosis. Your concerns and desire for clarity are valid, and it’s important for you to feel empowered in your treatment journey.
Main Points:
- Advanced Stage 3 Leiomyosarcoma Overview: This cancer type, while serious, can have treatment options available that may improve outcomes.
- Seeking Collaborative Care: It's essential to have clear communication with your healthcare providers and to seek the right specialists.
- Emotional Support: The journey can be overwhelming; consider mental health resources along with physical treatment.
Explanation:
Leiomyosarcoma is a rare type of cancer that originates in smooth muscle. The fact that your surgeons ensured clean margins is promising, indicating that they may have successfully removed all visible cancerous tissue. The absence of metastasis from your recent CT scan is also a hopeful sign.
It's understandable that you may feel apprehensive when your current medical team isn't openly discussing your prognosis. Each cancer patient's journey is unique; while some cases can be challenging, others respond well to treatment. The role of the medical oncologist in coordinating your care is crucial, as they will evaluate your specific situation and possibly recommend additional treatments after understanding your full case.
Next Steps:
- Prepare for Your Appointment: Write down your questions and concerns to discuss with the medical oncologist. Be clear about your wish to understand your prognosis and treatment options candidly.
- Second Opinion: Continue pursuing the second opinion at MD Anderson. This can provide you with additional insights and potentially new treatment avenues.
- Emotional and Psychological Support: Consider reaching out to support groups or mental health professionals who specialize in helping patients with cancer. They can offer coping strategies and emotional support during this challenging time.
It's important to approach this journey with hope and to stay informed. Remember, you deserve clarity in your treatment process and to be an active participant in your care. Please don't hesitate to reach out for further questions or support.
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