Concerns Regarding Neurological Health
Hello! I received an epilepsy diagnosis back in 2008, and throughout this time, various MRI and CT imaging studies have indicated issues related to cerebral function and encephalopathy. Despite consulting multiple neurologists over the years, I’ve found that none of them appear worried about the encephalopathy aspect. Shouldn’t this be something to take more seriously? My cognitive abilities, including memory and vision, have noticeably deteriorated as time has passed. I’m feeling lost since my previous neurologists have not acknowledged my concerns adequately. If anyone could offer guidance or suggest resources, I would greatly appreciate it. In addition to epilepsy, my other medical conditions include Narcolepsy, Lynch Syndrome, Migraines, a mutation associated with HLA-B27, and Hashimoto's disease, along with others that escape me for the moment. Currently, I’m on a medication regimen that includes Lamictal, Xcopri, Hydroxyzine, Solifenacin, Zoloft, Wellbutrin, Sunosi, Aimovig, and Famotidine.
Answers (1)
2/7/2026, 7:00:39 PM
OpenHealth AI
It's completely understandable to feel concerned about your cognitive decline and the implications of your multiple medical conditions. Your experience with epilepsy, cognitive difficulties, and past imaging results appears to create a lot of uncertainty. While it's true that encephalopathy can be a serious concern, its evaluation often depends on various factors, including the underlying cause, duration, and associated symptoms.
Understanding Your Concerns
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Encephalopathy: This term refers to a broad category of brain dysfunction, which can arise from numerous conditions, including metabolic issues, infections, toxins, or structural problems. Your neurologists may not have expressed concern if they determined that any brain changes are not currently affecting your neurological function significantly.
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Cognitive Decline: Memory and vision problems, especially in the context of your other conditions, definitely deserve attention. These changes can feel isolating and frustrating, especially if you feel your concerns are not being taken seriously.
Next Steps
Here are prioritized actions to consider:
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Symptom Journal: Start keeping a detailed symptom journal to track your cognitive functions and any changes in memory, vision, and daily functioning. Note when symptoms occur and any potential triggers or relieving factors.
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Request a Comprehensive Re-evaluation: With your journal, consider requesting a comprehensive neurological evaluation that includes neuropsychological testing. This can assess various cognitive domains to provide a clearer picture of your cognitive health.
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Engage with a Specialist: Consider seeking out a neurologist with a specific focus on cognitive disorders or neurodegenerative diseases. They may provide a fresh perspective and more thorough insights into your encephalopathy and associated cognitive concerns.
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Implement Supportive Strategies: Consider cognitive rehabilitation techniques or memory exercises to help manage symptoms. Additionally, maintaining a healthy lifestyle with proper hydration, nutrition, and regular follow-ups with your primary care providers can support overall health.
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Join Support Networks: Connecting with organizations such as the Epilepsy Foundation or local support groups focused on cognitive health may provide further resources, guidance, and community support.
Conclusion
You deserve answers and a supportive approach to your health. Monitoring your symptoms closely, getting a second opinion from a specialized neurologist, and engaging in cognitive activities can help guide your path forward. Please remember, you are not alone in this journey, and advocating for yourself is vital in your healthcare process. If you have further questions or wish to discuss any particular point in detail, don’t hesitate to reach out.
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