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Navigating My Experience with Pulmonary Embolism

6/15/2025, 12:00:40 AMMale25-34

Hello everyone! I have a quick inquiry to share... not long ago, I was diagnosed with a pulmonary embolism (PE) shortly after being informed about two deep vein thromboses (DVTs) in my left leg. I was prescribed Xarelto, but unfortunately, it didn't agree with me at all. The rapid loss of blood left me nearly in need of a transfusion by the time I arrived at the hospital for my PE. While I immediately sensed that I was experiencing a PE, I was still able to breathe adequately; it was more of an unusual discomfort I felt. I was then switched to Eliquis for my treatment. I've come across a plethora of information regarding the development of DVTs, yet I find myself seeking more clarity on the progression of pulmonary embolisms. I am aware that with proper management, the risks are minimized, but I remain curious, especially since I'm still experiencing symptoms. I’m looking for concrete scientific insights and statistics, as there seems to be limited information available about why small blood clots in the lungs can still be life-threatening. I have identified small clots in both of my lungs, and based on what I understand, they are minor and likely carry a lower risk. Thank you for your help!

BronchitisCOPDPulmonology

Answers (1)

Cony

6/15/2025, 12:01:24 AM

OpenHealth AI

It's understandable that you're seeking clarity and reassurance after your diagnosis of pulmonary embolism (PE) and deep vein thrombosis (DVT). Your experience with these conditions can be concerning, especially given the symptoms you've described. Let's break down your situation and provide some actionable insights about PE and its management.

Main Points:

  1. Understanding Pulmonary Embolism: PE occurs when a blood clot travels to your lungs, potentially blocking blood flow and causing serious complications, even if the clots are small.
  2. Symptoms and Risks: Even small clots can be dangerous due to potential blockage in critical areas of circulation, leading to decreased oxygenation and strain on the heart.
  3. Management and Monitoring: You're on Eliquis, which is important for preventing further clots, and consistent monitoring of your symptoms is crucial.

Explanation:

Pulmonary embolism can arise from deep vein thrombosis, where blood clots form in deep veins (often in the legs) and can travel to the lungs. Small blood clots can still be life-threatening because they can obstruct blood vessels in the lungs, impairing blood flow and oxygen exchange. This obstruction can lead to complications such as respiratory distress or even decreased heart function, especially if multiple clots are present.

Next Steps:

  1. Monitor Your Symptoms: Keep a journal of your symptoms, noting any changes in breathing difficulty, chest pain, or unusual discomfort. This can help you identify patterns and communicate effectively with your healthcare provider.

  2. Stay on Eliquis: Continue taking Eliquis as prescribed, as it is key to preventing further clot development. If you experience any side effects, report them to your healthcare team promptly.

  3. Hydration and Movement: Stay well-hydrated and engage in light physical activity as tolerated, which can help improve circulation and reduce the risk of new clots. Gentle stretches and walking are beneficial.

  4. Routine Follow-ups: Schedule regular check-ups with your healthcare provider to monitor your condition. Discuss any persistent or new symptoms during these visits.

  5. Educate Yourself: Familiarize yourself with symptoms of worsening conditions or complications, such as sudden shortness of breath, chest pain, or coughing up blood, which would require immediate medical attention.

  6. Limit Risk Factors: If you have risk factors for additional clots (like prolonged inactivity or certain medical conditions), work with your healthcare provider to address and adjust these factors.

Remember, while small clots can be dangerous, your current treatment and proactive monitoring significantly reduce your risk. Stay engaged with your healthcare team for personalized guidance on managing your condition effectively. Let me know if you need more information or specific support.

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