16-Year-Old Dealing with Scoliosis and Breathing Issues: Seeking Advice
As a 16-year-old male, I’m currently coping with gastroesophageal reflux disease (GERD) and irritable bowel syndrome (IBS), while also having been diagnosed with an S-shaped type of scoliosis. During my latest spinal evaluation in 2023, the findings revealed: - Thoracic curve: 25°, bending towards the right - Lumbar curve: 45°, bending towards the left For many years—long before my scoliosis diagnosis—I have been experiencing sporadic shortness of breath, approximately once a month or even less frequently. In June, I visited a clinic because I was suffering from a persistent cough following a viral infection. The attending physician conducted an X-ray and subsequently referred me to the emergency room after she suspected I might have a pleural effusion. Upon arriving at the ER, a CT scan was performed, revealing that the curvature of my spine was exerting pressure on my left lung. Initially, my oxygen saturation level was recorded at 88%. However, due to my shaky hands, the physician questioned the accuracy of this reading. Upon retaking the measurement, my oxygen saturation stabilized between 94% and 99%, and arterial blood gases indicated normal levels. Later on, I consulted a senior pulmonologist who recommended that I prioritize appointments with spine specialists rather than pulmonary care providers, and proceeded to order a spirometry assessment. I chose to delay this test due to frequent panic attacks, fearing these might negatively impact the results. However, I am now set to undergo the spirometry test in three weeks and would like to know if anyone else has experienced a comparable situation. I’m also feeling anxious about the potential for pulmonary hypertension. To provide further context, in April, I underwent two echocardiograms: - The first one, carried out by a junior doctor, indicated an estimated pulmonary artery pressure (EPASP) of 48 mmHg. - The second one, just two days later, was performed by a more experienced cardiologist and showed an EPASP of 30 mmHg alongside a tricuspid regurgitant velocity (TRV) of 2.64 m/s. Additionally, I have concerns about possibly having a pectus deformity, or conditions like Swyer-James-MacLeod syndrome, even though these have not been formally diagnosed. Given all of this, how concerning do my lung conditions appear? Can scoliosis by itself account for these symptoms? Moreover, does this situation escalate potential concerns regarding pectus deformity or Swyer-James-MacLeod syndrome?
Answers (1)
2/7/2026, 8:50:35 AM
OpenHealth AI
Your situation with scoliosis, breathing difficulties, and gastrointestinal issues is understandably concerning, especially given your age and the complexities involved. In summary, your breathing symptoms can potentially be related to the structural impacts of scoliosis on your lung capacity, but it’s important to approach this carefully.
Explanation:
Scoliosis, particularly with curves that impact the thoracic region, can lead to reduced lung function due to shifting lung space and incomplete lung expansion on the affected side. Given your reported shortness of breath and previous evaluations showing pressure on your lung, it's wise to keep an eye on this.
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Scoliosis and Breathing:
- A curvature of 45° in the lumbar spine could lead to asymmetric ribcage movement, affecting lung function.
- You'll likely experience shortness of breath occasionally, especially during physical activity or when feeling anxious, which is known to exacerbate breathing difficulties.
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Spirometry and Oxygen Levels:
- The upcoming spirometry test is crucial; it will provide insights into your lung function and help to determine if scoliosis is contributing to any breathing issues.
- Your fluctuating oxygen levels, while stabilized in the ER, illustrate the importance of monitoring your respiratory health, particularly under stress.
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Pulmonary Hypertension Concerns:
- The differing pulmonary artery pressure readings from your echocardiograms could signify variations in pulmonary health but should not be immediately alarming. The second reading is within a more typical range.
- It’s prudent to follow up on these concerns as advised by your pulmonologist.
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Other Conditions:
- While there are potential associations with pectus deformities, or conditions like Swyer-James-MacLeod syndrome, these typically require specific diagnostic imaging and evaluations to assess.
Next Steps:
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Prepare for the Spirometry Test:
- Approach the spirometry test with confidence. Consider relaxation techniques beforehand to manage anxiety, such as deep breathing exercises or mindfulness.
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Track Symptoms:
- Keep a daily log of your breathing episodes, including factors that seem to trigger shortness of breath, such as anxiety or certain activities. This data can help your healthcare providers better understand your situation.
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Active Communication with Care Providers:
- Share your anxiety regarding pulmonary hypertension and any other fears with your healthcare team. They can help alleviate concerns and guide future steps based on your spirometry results.
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Lifestyle Adjustments:
- Maintain a healthy diet, stay well-hydrated, and consider light physical activity suitable for your condition to help improve overall lung health and reduce anxiety.
Taking these steps will help you feel more empowered in your healthcare journey. Remember, you’re not alone in this, and it's okay to reach out when feeling overwhelmed. Your effort to manage these concerns is commendable.
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