Considering Abdominal Repair During C-Section with EDS Type III: An Inquiry
Greetings! I am a woman in my late 30s, currently 36.5 weeks pregnant and diagnosed with Ehlers-Danlos Syndrome (EDS) Type III. I am expecting a baby who is already measuring above the 97th percentile in size (no gestational diabetes diagnosed). This is my second pregnancy, and I am 5 feet 11 inches tall, weighing 199 pounds at this point. My abdominal size is significantly larger compared to my first pregnancy, raising concerns about the possibility of needing a cesarean delivery due to the baby's size or unforeseen complications. If a c-section becomes necessary, I am interested in having my abdominal muscles repaired during the procedure. I have come across various studies that present a mixed bag of findings regarding the repair of diastasis recti, highlighting both potential risks and positive outcomes, especially when considering methods beyond merely suturing the fascia and fat layer. After relocating, I had to change my healthcare provider. In my previous system, it was routine to address these concerns during surgery; however, the current facility has expressed that they do not routinely perform repairs and have cited associated risks, which I believe to be somewhat exaggerated in my case. Given my recent diagnosis of EDS, I am worried about my heightened susceptibility to complications such as diastasis recti not resolving on its own. I have a history of pelvic floor issues, and the thought of my condition worsening is quite concerning; therefore, I have requested a repair if a c-section is needed. Are the risks really as substantial as they suggest? Do individuals with EDS Type III experience greater benefits from such repairs? Is this procedure a standard practice at your facility, or do you feel there is excessive resistance to it? I wonder if there are additional factors I might be overlooking. Furthermore, I'm apprehensive about facing financial burdens for any related medical procedures that may not be covered by insurance. The recovery of my pelvic floor is already a daunting task, especially with the realization that I may encounter complications, including the risk of prolapses established during my first pregnancy. I genuinely want to optimize my recovery chances. Additionally, I have been informed that nearing full term, particularly since I've begun to dilate and my cervix is predominantly effaced, the likelihood of complications such as shoulder dystocia increases significantly. Any insights, perspectives, or personal experiences shared on this matter would be greatly appreciated!
Alice Lee
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