Seeking Guidance on Chronic Joint Pain and Potential Tests
I’m a 19-year-old female from the UK and my situation is quite concerning. I use vapes occasionally and drink very rarely. I am currently taking vortioxetine along with a combined oral contraceptive. Alongside this, I have POTS and some mental health challenges, but I maintain a healthy weight and height. Since I was around 10 years old, I have experienced pain starting from my knees and neck, which has progressively worsened over time. Now, discomfort permeates all of my joints, and oftentimes, it intensifies even when I’m at rest. I do stay active and go to the gym regularly. In the past, I’ve had a brief appointment with a physiotherapist, but it didn’t yield any improvement. I was previously told I was hypermobile. Currently, the pain has escalated to a level that is making me feel extremely despondent. A physiotherapist at my GP’s office indicated that I am not hypermobile (I scored 1/2 on the Beighton score) and has referred me to a pain management clinic, suggesting they might provide more insight and assistance. However, after researching, it appears that the focus of this clinic is more on psychological methods to handle pain and possibly acupuncture, which I would definitely be open to exploring, but... WHAT COULD BE WRONG WITH ME? My medical evaluations thus far have mostly consisted of blood tests. I had hoped this clinic would facilitate further examinations like scans, but I understand that may not be the case. I feel the need to communicate to my GP that I am dissatisfied with this referral as I believe I require additional tests first. I want to explore possible medical explanations for my pain before being directed towards a clinic that predominantly addresses conditions such as fibromyalgia. Could anyone advise me on what specific tests I should request? I’m feeling increasingly hopeless. Additionally, other symptoms I experience include abdominal discomfort and bloating, migraines, fatigue, weakness, along with joint popping sounds and my ankles locking when climbing stairs.
Answers (1)
3/3/2026, 11:30:41 AM
OpenHealth AI
I'm sorry to hear about the ongoing pain and distress you're experiencing. It's understandable that you want to find clarity and solutions for your chronic joint pain. Here’s a structured response to address your needs:
Main Points
- Your pain may stem from various conditions, and further tests can help identify underlying causes.
- It’s crucial to communicate effectively with your GP to explore these medical possibilities.
- Request specific tests to rule out several potential conditions associated with chronic joint pain.
Explanation
Chronic joint pain can be complex and result from multiple factors, such as inflammation, autoimmune conditions (like rheumatoid arthritis or lupus), connective tissue disorders, or even side effects from medications. Given your history of hypermobility and other associated symptoms (fatigue, migraines, abdominal discomfort), it’s important to consider a broad range of possible causes.
The pain management clinic may focus on strategies to manage pain rather than diagnosing its source, which can be frustrating, especially if you feel your symptoms need further investigation.
Next Steps
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List Your Symptoms: Document all your symptoms meticulously, including the intensity, frequency, and what worsens or eases them. This will help your GP understand the full picture.
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Request Specific Tests: When you next see your GP, consider asking for the following tests:
- Inflammatory markers: Blood tests such as C-reactive protein (CRP) and erythrocyte sedimentation rate (ESR) to check for inflammation.
- Autoimmune screening: Anti-nuclear antibodies (ANA), rheumatoid factor (RF), and possibly specific tests for conditions like rheumatoid arthritis and lupus.
- Vitamin and mineral levels: Check for deficiencies (e.g., Vitamin D, B12) that might contribute to pain and fatigue.
- Imaging: Ask about X-rays or MRI scans of your joints to see if there's any structural damage or signs of arthritis.
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Communicate Your Concerns: Clearly express your dissatisfaction with the referral to the pain management clinic if you feel it won't address your needs. Be assertive about wanting a thorough investigation of your symptoms before exploring pain management techniques.
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Consider Holistic Approaches: While waiting for further assessments, it might be beneficial to explore physical therapy again or gentle exercises to maintain mobility and reduce discomfort, but only as tolerated.
Reassurance
Remember, you're seeking answers and support, and it's valid to advocate for your health. Keep pushing for the proper evaluations, as this persistence can lead to a clearer diagnosis and effective management strategies. If you ever feel overwhelmed, consider reaching out to trusted friends or family for support during this process. You're not alone in this, and taking steps forward is important for your well-being.
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