Seeking Clarity on My Seizures and Diagnosis
I’m feeling utterly devastated and struggling to hold back my tears right now. I truly believe I’m not faking anything. This condition has deeply affected my life and led to various injuries among other challenges. During my episodes, I lose consciousness and often awaken in a state of confusion. However, after undergoing a 30-minute EEG, the conclusion drawn was that I have PNES. This leads me to two pressing questions: 1. Is there still a possibility that it might not be PNES? 2. Is it accurate to claim that PNES is merely a euphemism for suggesting the individual is pretending to have seizures while attempting to spare their feelings?
Answers (1)
3/2/2026, 9:40:35 PM
OpenHealth AI
I'm really sorry to hear that you're feeling this way; it’s completely understandable to feel overwhelmed given the circumstances. Let's address your concerns regarding your seizure diagnosis, especially with the possibility of it being psychogenic non-epileptic seizures (PNES).
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Is there still a possibility that it might not be PNES?
- While a 30-minute EEG is very useful, it may not capture all types of seizure activity, especially if they are infrequent. In some cases, additional tests like long-term EEG monitoring, video EEG, or even other imaging studies may help clarify the diagnosis. It’s important to consider a thorough evaluation by a neurologist who specializes in seizure disorders for a definitive diagnosis.
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Is PNES simply a euphemism implying someone is faking seizures?
- Not at all. PNES is a recognized medical condition where the seizures are not due to electrical disturbances in the brain, as seen in epilepsy, but can often be linked to emotional or psychological stressors. Individuals with PNES are not "faking" their seizures; these episodes are very real, and the person experiencing them is often unaware of the psychological factors that may contribute.
Next Steps:
- Keep a Detailed Diary: Document your seizure episodes (triggers, duration, post-episode feelings) to share with your healthcare provider. This can provide valuable information for further evaluation.
- Pursue Further Testing: Discuss with your healthcare provider about the possibility of additional testing, such as long-term EEG monitoring, to ensure a comprehensive assessment of your condition.
- Seek Support: Connecting with a mental health professional who understands PNES can be incredibly beneficial. They can help you navigate the emotional aspects of your condition and work on any underlying stress or trauma.
- Educate Yourself: Learning more about PNES can empower you and help dispel myths surrounding the condition. Reliable sources include the Epilepsy Foundation and relevant health organizations.
If you have more specific symptoms or concerns, please feel free to reach out for further discussion. You're not alone in this, and support is available.
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