OpenHealth Q&A

Seeking Guidance on My Pain Journey

A bit of context: I am a 22-year-old man who has been grappling with health issues since I was 17. Generally, I maintain an upbeat demeanor and have strived not to let discomfort overshadow my life. However, after enduring a multitude of ailments for several years, the toll on my well-being is becoming increasingly untenable. It seems that just as I start to find ways to cope with one set of symptoms, another issue unexpectedly emerges. I’m reaching out in hopes that someone might read my experiences and offer insights into potential next steps, as juggling these various symptoms has become both daunting and bewildering. My aspiration is to experience a life devoid of constant discomfort for the first time in six years, or, at the very least, to discover effective management strategies. Presently, it seems my nerve-related issues are escalating rather than improving. To clarify my situation, I have compiled a chronological account of my experiences, complete with dates. I encourage anyone to share their thoughts or feel free to message me directly. I remain optimistic about finding resolution. **Timeline of Symptoms** **2020** **September:** I contracted COVID-19. Shortly thereafter, I began experiencing a burning sensation on my abdomen and back, akin to sunburn, though no visible redness was present. This discomfort is provoked by clothing, heat, or emotional stress, such as anxiety. This symptom appeared sporadically and persists to this day. A skin biopsy was conducted and returned normal; however, skin therapy provided little relief. **2022** **January:** I encountered burning sensations in my armpits regardless of deodorant used, including those labeled as low-sensitivity. This burning continues to date. Additionally, I noticed that wearing pants, socks, or even using blankets induced pain and tightness in my legs, creating a feeling similar to wearing excessively tight garments. **July:** I had another bout of COVID-19. While lying down, I experienced a sensation of nasal congestion, which is an issue that has persisted. An ENT specialist indicated that I have swollen turbinates and a deviated septum. **2023** I began to notice random bouts of soreness and fatigue in my skin. I also experienced tightness and pain in my neck whenever I laughed. Additionally, after taking showers, I often encounter an itchy sensation that continues to occur. **2024** **August:** I experienced intense itching all over my body when exposed to high temperatures, whether indoors or outdoors. This reaction remains ongoing. **November:** Using headphones or being around loud noises causes a plugged or painful feeling in my ears, potentially linked to long-term nasal congestion. **December:** My throat became tight and painful, with difficulty swallowing—a symptom that has persisted. An ENT determined that this was related to acid reflux. **2025** **April:** I started having severe, random burning sensations in my hands that feel akin to being on fire. This burning is distinct and much more intense compared to prior skin issues, not resembling sunburn at all. Occasionally, my feet experience a similar, albeit less frequent, burning. These sensations commenced after prolonged use of the computer and have increased in frequency over the past month. Additionally, I began to notice a rise in neck pain. **July:** After undergoing an EMG test, which yielded normal results, a neurologist diagnosed me with unknown small fiber neuropathy. This was the first of five neurologists who have seen me over the years and provided a diagnosis. The neurologist recommended duloxetine and suggested an MRI for further assessment. **February 2026:** I began to notice tingling sensations at the tips of my fingers, which initially presented in one hand while I was lying on my side. Now, both hands tingle when I type or move my hands, elbows, or wrists.

Answers (1)

2/18/2026, 12:01:04 AM

OpenHealth AI

It sounds like you’re facing a complex array of symptoms that have taken a significant toll on your well-being over the years. It’s commendable that you maintain an optimistic outlook despite these challenges, and your determination to find effective management strategies is essential in your journey towards relief.

Key Points

1. Multiple Symptoms: You have experienced various symptoms over several years that suggest a potential chronic pain condition, possibly linked to nerve involvement.
2. Seeking Effective Management: Your main goal is to find solutions for managing your discomfort and improving your quality of life.
3. Current Concerns: The escalation of nerve-related symptoms needs attention, especially since they interfere with your daily life.

Explanation

The symptoms you’ve described, including burning sensations, tightness, and neuropathic pain, could indicate a range of underlying issues related to nerves or chronic pain syndromes. Conditions like small fiber neuropathy, fibromyalgia, and even post-viral syndromes post-COVID-19 might play a role in your experiences. The reactions you've had, especially to temperature and touch, align with neuropathic pain, where nerves misfire and cause abnormal sensations.

Next Steps

1. Symptom Tracking: Start a detailed diary to track your symptoms, potential triggers, and relief methods. Note any changes in intensity, duration, and location of your symptoms. This can help identify patterns and triggers that may be manageable.

2. Appointment with Specialists: Consider making appointments with specialists who can further investigate your symptoms:

   • Pain Management Specialist: They can help create a tailored pain management plan.
   • Neurologist: Since small fiber neuropathy has been noted, a neurologist can assess other nerve-related concerns and treatment options.
   • Physical Therapist: They can assist with strategies to help improve nerve function and manage pain through exercise and physical therapy tailored to your specific symptoms.

3. Lifestyle Modifications:

   • Stress Management: Practice relaxation techniques such as mindfulness, deep breathing, or yoga to help manage stress, which seems to exacerbate your symptoms.
   • Dietary Considerations: Staying hydrated and consuming anti-inflammatory foods may also help. Foods rich in omega-3 fatty acids, vegetables, and fruits can be beneficial.

4. Medication Review: Talk with your healthcare providers about the current medications you are taking. Duloxetine is often prescribed for neuropathic pain, but it’s essential to discuss its effectiveness and any side effects you may be experiencing. Be open to exploring additional medications or treatments if necessary.

5. Support Groups: Joining a chronic pain support group—either online or in-person—can provide you with a network of individuals who understand your experiences, which can be comforting and informative.

Stay Hopeful

Please remember that it’s okay to seek help and ask for more comprehensive management of your symptoms. Finding the right combination of therapies and support can take time, so try to be patient with yourself during this process. Your inherent strength and optimism will be vital as you navigate through these challenges. Let me now if you need clarification on any specific area or further guidance!