OpenHealth Q&A

It sounds like you're experiencing significant discomfort and anxiety due to intermittent foot numbness, especially given your diagnosis of hypermobile Ehlers-Danlos syndrome (hEDS). While this phenomenon can be concerning, it's important to understand some possible reasons and steps you can take to manage it.

Main Points:

1. Nerve Compression: Your symptoms may be related to nerve compression, which can occur from prolonged sitting or changes in position that affect your hips, knees, or spine.
2. Mobility Considerations: Due to instability commonly associated with hEDS, your joints may be contributing to the sensation of numbness in your foot.
3. Management Strategies: There are practical steps you can take to alleviate and manage these symptoms.

Explanation:

The "pins and needles" sensation occurs when nerves are compressed or irritated, affecting how signals are transmitted. In your case, this could be linked to your body’s tendency toward hypermobility, as this may lead to joint misalignment or nerve irritation. The fact that your foot goes numb after certain positions suggests that something about your posture or the pressure on nerves might be involved.

Next Steps:

1. Change Positions Frequently: To prevent nerve compression, try to avoid staying in one position for too long. For example, when sitting on the toilet or any other seated position, stand up and move around every few minutes.
2. Foot and Leg Exercises: Regularly engage in gentle stretching and strengthening exercises for your legs. This can improve circulation and reduce the likelihood of numbness.
3. Safe Sitting Techniques: When seated, ensure that your legs are well-supported. Avoid crossing your legs or sitting in a way that puts pressure on your feet or legs.
4. Symptom Diary: Keep a record of your symptoms, including when they occur and any accompanying activities or positions. This can help identify any patterns or triggers, which is useful for future management.
5. Reassess Activity Levels: Be mindful of how much activity you engage in and allow adequate rest, especially if you've been active, as fatigue can exacerbate hEDS symptoms.

If symptoms persist or worsen, particularly with increasing severity or frequency, it would be wise to discuss these concerns with a healthcare professional, as they may want to evaluate your condition in more detail.

Remember, you’re not alone in experiencing these sensations, and many with hEDS encounter similar challenges. You're taking good steps by seeking to understand and manage your symptoms!