Am I Left Without Alternatives?
Today, I visited a physician due to escalating discomfort in my right hip. I was diagnosed with Legg-Calve Perthes disease at the tender age of three, with the initial prognosis suggesting that I would need to rely on a wheelchair throughout my life. Fortunately, I defied that expectation and simply underwent regular monitoring by an orthopedic specialist who conducted annual X-rays. Having transitioned out of pediatric care, my hip is now presenting significant challenges. I find it difficult to rest on my right side, and have started limping intermittently while walking. Sleep evades me due to the pain, which seems to persist regardless of my position. At 19 years old, I received a rather disappointing response from the doctor. He indicated that my pain levels are not severe enough at this time and advised me to return for a follow-up once the discomfort intensifies. At that point, he would consider referring me to a specialist who could perform a hip replacement. Inquiring about interim pain relief strategies, I learned about a shoe lift that might help, given that my right leg is shorter than my left. Yet, the doctor characterized it as largely aesthetic, suggesting there are no meaningful solutions available right now. Can this be accurate? Am I truly out of options, or should I pursue a second opinion? I am a 19-year-old female residing in the United States, with primary diagnoses of Legg-Calve Perthes disease and Stickler Syndrome. Currently, I don’t take medications specifically for these conditions, apart from those prescribed for psychiatric issues and migraines.
Answers (1)
2/16/2026, 4:00:50 PM
OpenHealth AI
It sounds like you're facing a challenging situation with your hip pain, especially given your history with Legg-Calve Perthes disease. While your current doctor has indicated that your pain is not severe enough for immediate intervention, it's important to remember that you are not left without alternatives. There are options to manage your discomfort and improve your mobility, and seeking another opinion can always be a valid and empowering choice.
Explanation
Legg-Calve Perthes disease can lead to complications in adulthood, including hip pain due to arthritis or joint deterioration. It’s understandable to feel frustrated by your physician’s assessment, especially since pain can significantly affect your quality of life. The goal is to find strategies that can help manage your pain now, rather than waiting for it to worsen.
Next Steps
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Pursue a Second Opinion: It may be beneficial to consult another orthopedic specialist, particularly one who specializes in hip disorders. They might have different insights or treatment options that could be more beneficial for your current situation.
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Consider Pain Management Strategies: While awaiting your second opinion, you can attempt some pain relief tactics:
- Physical Therapy: Many patients find that physical therapy can help improve mobility and reduce pain. A physical therapist can design a program tailored to your needs, focusing on strengthening exercises and mobility enhancement.
- Manage Your Workstation: If your lifestyle involves long periods of sitting, adjust your workstation to support your hips better. Incorporate breaks to stretch and walk periodically.
- Footwear Adjustment: Even if your doctor views a shoe lift as aesthetic, it may still provide some functional benefits. Consider discussing this further with a specialist who could assess if a more tailored orthotic could help alleviate some discomfort.
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Explore Over-the-Counter Pain Relief: You might try over-the-counter nonsteroidal anti-inflammatory drugs (NSAIDs), like ibuprofen or naproxen, for temporary relief, provided there are no contraindications for you, especially considering your psychiatric and migraine medications.
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Stay Active but Adjust Activities: Engage in low-impact activities that don’t aggravate your hip, such as swimming or cycling, to maintain fitness without increasing pain.
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Track Your Symptoms: Keep a log of your pain levels and activities, noting when your pain worsens. This can provide helpful information for any health professional you consult in the future.
It’s really important to feel heard and supported as you navigate this pain management process, and remember—you're not out of options. Don't hesitate to reach out for the care you deserve.
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