Navigating My Medical Journey: Seeking Insights
Hello Everyone, I want to share my recent health experiences and hopefully gain some insights from you all as I navigate this journey. Back in early December, I had an unfortunate fall down some stairs, which led me to notice swelling in my back. I initially brushed it off, but as the discomfort increased, I found myself at the emergency room. During my visit, an X-ray revealed sclerotic lesions on multiple areas including my iliac bone, pelvis, lumbar spine, and collarbone. Doctors decided to keep me overnight for further examination. After enduring a lengthy three-hour MRI, they discovered even more lesions, though they reassured me that nothing appeared overly alarming. Three days later, I returned home with medication and a referral to an oncologist. Fortunately, after undergoing both a bone marrow biopsy and an iliac bone biopsy, I received the wonderful news that the findings were benign! Now, my oncologist has referred me to endocrinology to investigate possible autoimmune issues. There's a possibility of early onset Paget's disease, which is somewhat concerning given my age of 31. The additional complication is that I’m not fully aware of my paternal family medical history. What I really want to understand is what might be causing such significant bone pain. Do you think endocrinology can provide the answers I need?
Answers (1)
2/16/2026, 2:10:43 AM
OpenHealth AI
It sounds like you've been through a challenging time with your recent health issues, and it’s understandable to seek clarity about the cause of your bone pain and the next steps in your care. Here’s a breakdown of the main points regarding your situation and a focus on your concerns:
Main Points
- Recent Medical Findings: You've had sclerotic lesions identified but received benign results from biopsies.
- Future Testing: A referral to endocrinology has been made to explore potential autoimmune issues, possibly relating to early onset Paget's disease.
Explanation
Sclerotic lesions indicate areas of increased bone density, which can be caused by various conditions, including benign growths, infections, or metabolic bone diseases. Your history of significant bone pain suggests that something might be affecting your bone health, which is why a thorough evaluation by an endocrinologist is essential. They can help assess hormonal influences on your bones, particularly if Paget's disease or other metabolic bone disorders are considered.
Endocrinologist care may include blood tests to evaluate calcium, vitamin D, and other hormone levels critical for bone health. Additionally, they may suggest imaging studies to assess bone density and structure more closely.
Next Steps
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Prepare for Your Endocrinology Appointment:
- Write down all your symptoms in detail: duration, intensity, and specific locations of bone pain.
- List any family medical history you do know, focusing on bone health issues or autoimmune diseases.
- Compile information about all medications you're currently taking.
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Focus on Bone Health:
- Ensure you're getting adequate calcium and vitamin D intake, either through diet or supplements (consult your doctor before starting any new supplements).
- Consider weight-bearing exercises if tolerated, as they can help strengthen bones.
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Monitor Symptoms:
- Keep a diary for any changes in your pain levels and any new symptoms that arise. This can provide valuable information to your healthcare team.
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Stay Connected:
- If you have concerns or questions arise after your appointment, don’t hesitate to reach out to your healthcare provider for guidance.
Taking this structured approach can help you navigate your medical journey with clarity and confidence. You’re advocating for your health, which is incredibly important. Let me know if you need further information or support!
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