OpenHealth Q&A

26-Year-Old Man Seeking Urgent Help for Severe Neurological Issues

Hello, everyone, I am a 26-year-old male from the Netherlands, standing at 180 cm and weighing 70 kg. I enjoy drinking but do not smoke. I am reaching out in a state of desperation, looking for assistance as my health has sharply deteriorated. I struggle with maintaining control over my body; my right shoulder droops noticeably lower than my left, my right leg buckles under me unexpectedly, and I find myself unable to walk or sit up straight. Completing simple daily tasks such as laundry and cooking has become increasingly challenging. I feel as though I am nearing a point where I cannot care for myself at all. This situation has developed over eight years, filled with various medical and neurological problems. To provide some context, I feel it’s important to describe how significantly my life has changed. Until I turned 18, I enjoyed robust health. I played tennis at a high national level in the Netherlands and excelled academically, generally living a fulfilling life without any mental health concerns; I truly loved life. * **2017 (Initial Symptoms):** The gradual onset of symptoms began with a peculiar sense of detachment between my mind and the right side of my body. I experienced: * Episodes of incontinence and a decline in morning erections. * Diminished sensation on the right side of my body. * Cognitive challenges, including brain fog, difficulty in planning, and a distorted sense of time. * Respiratory complications, often feeling as though my breathing was obstructed and I couldn’t inhale deeply. * Discomfort in my pelvic region, particularly while sitting, alongside lower back pain. In pursuit of relief, I consulted several specialists such as a pelvic floor expert, a urologist, and a sexual health professional. However, I grew skeptical of these approaches because I sensed a deeper issue at play. My pelvic function appeared normal. The urologist's only inquiry was about my smoking habits, and upon learning I didn’t smoke, I was immediately directed to a sexual health specialist. This felt misplaced, as my challenges were not related to sexual function. Despite my frustrations, I decided to carry on, hoping my situation might improve. However, for several years, nothing changed. * **2019 (Temporary Improvement):** In December of that year, I experienced a sudden resurgence of energy while lying on my bed. It felt as though something in my body had reset; my leg trembled, warmth surged through my right side, and all cognitive and physical functions appeared to return to normal, albeit briefly. * **2020 (Worsening Condition):** Soon after my brief reprieve, while preparing for exams, I found myself seated for prolonged periods. Subsequently, my symptoms returned with greater intensity, including burning sensations, cold extremities, tinnitus, and impaired taste and smell. The situation prompted another visit to the doctor, leading to neurological evaluations, including MRIs which yielded no clear findings. * **2021 (Deterioration Triggered by Chiropractic Treatment):** Following a chiropractic session focused on my neck and pelvis, my condition escalated dramatically. I noticed an immediate decline in posture and a significant increase in muscle weakness radiating from my core to my neck on the right side. * **Current State (2026):** I am experiencing a severe and progressive decline, characterized by: * **Muscle Atrophy:** Noticeable thinning of muscle mass on the right side of my face, right arm, and tongue. * **Physical Deformation:** My right shoulder is much lower, and my right leg often gives way under weight. * **Functional Loss:** I struggle to maintain an upright position or walk, and my tongue strength has diminished, removing my ability to participate in sports and live a normal life. **Medical Background & Assessment:** * **Imaging:** Numerous MRIs (brain, full spine, neck, pelvis) have shown no significant results. * **Consultations:** I have seen urologists, undergone pelvic floor therapy, and met with neurologists and osteopaths. * **Current Diagnosis:** Functional Neurological Disorder (FND). * **Treatment History:** Pursued multiple treatment plans focusing on FND which yielded no improvements. I am increasingly doubtful about my FND diagnosis because of the progressive muscle atrophy and physical decline directly following a specific treatment that intensified my neurological symptoms. I feel trapped in a situation where medical professionals are categorizing my condition without a true understanding of the underlying problem. As my symptoms evolve from pain and numbness to pronounced weakness, I feel as though I am losing the ability to support myself. If anyone here can provide insight, guidance, or is aware of alternative diagnostic methods for my condition, I would be eternally grateful. I believe there is a misalignment in my overall physiology contributing to these issues. I am willing to offer financial compensation for anyone who can genuinely assist me in this matter—$10,000 for the person who provides a viable solution. Thank you for taking the time to read my story.

Answers (1)

2/14/2026, 9:40:46 PM

OpenHealth AI

I'm deeply sorry to hear about your challenging situation; it sounds incredibly frustrating and distressing. Your symptoms suggest a complex neurological issue, and while you've been diagnosed with Functional Neurological Disorder (FND), it's understandable to seek further clarity given your ongoing decline.

Key Points:

• Your symptoms, including muscle atrophy, functional loss, and the history of deterioration, indicate a need for a comprehensive re-evaluation by medical professionals who specialize in neurologic disorders.
• While you've seen several specialists, a multidisciplinary approach, potentially involving neurology, rehabilitation, and possibly even genetic specialists, may provide more insight into your condition.

Explanation:

Functional Neurological Disorder can manifest in varied ways and can sometimes overlap with other conditions, making accurate diagnosis challenging. Since you've experienced muscle atrophy and physical deterioration following chiropractic treatment, it suggests there may be more to your condition than the current diagnosis. Your health history and the absence of findings in imaging tests indicate that further exploration into potential other neurological conditions or rare diseases might be warranted.

Next Steps:

1. Seek a Comprehensive Neurological Assessment:

   • Look for a neurologist who specializes in rare neurological disorders or neuromuscular diseases. They can offer insights beyond the FND diagnosis.

2. Consider a Second Opinion:

   • Getting a second opinion from a different medical center or hospital, especially one with a research component, could provide access to new diagnostic tools (like genetic testing) or clinical trials related to your symptoms.

3. Physical Rehabilitation:

   • Engage in a physical rehabilitation program that can help with muscle strength and posture correction under the guidance of a physiotherapist who specializes in neurological conditions.

4. Keep a Symptom Journal:

   • Document your symptoms, triggers, and any changes over time. This will help you and your healthcare team better understand your condition and may be useful for specialists.

5. Mental Health Support:

   • As this condition is emotionally taxing, consider seeking mental health support. Therapists familiar with chronic illness and pain can help navigate the emotional challenges of your situation.

6. Support Groups:

   • Look for online or local support groups for individuals with similar neurological concerns. Connecting with others might offer insights or emotional support.

It's important to advocate for your health and pursue options that feel right for you. I'm wishing you strength and clarity on your journey to finding answers. Please reach out if you have more questions or need further guidance.