Anxiety About Starting Cyclosporine for My Psoriasis – Seeking Genuine Feedback
Hello everyone, I’m a **25-year-old man** working in the tech field, and I’ve been struggling with **moderate to severe psoriasis** for quite some time now. This persistent condition affects my **scalp, face, the area behind my ears, as well as my arms, legs, and back**, essentially all over my body. Lately, my dermatologist has recommended that I start taking **Cyclosporine (Psorid 50 mg) twice daily**. While I understand that it’s a potent medication that has benefited many, I can’t help but feel a deep sense of **fear** about using it. Several years ago, around **7 or 8 years back**, I underwent treatment with **methotrexate** which did show some effectiveness in managing my psoriasis. Unfortunately, once I ceased taking it, my condition not only returned but worsened significantly. This negative experience led me to abandon all medical interventions and instead find ways to cope with my psoriasis on my own. Now, at the age of **25**, my psoriasis has flared up yet again for reasons that are unclear to me, and it seems to be spreading. The trauma from my previous treatment has left me deep in **overthinking**, **doubts about possible treatments**, and second-guessing every medical decision, resulting in considerable **mental fatigue**. Here are some of my concerns: * I’m uncertain about the **duration** required for taking cyclosporine. * I worry about potential **kidney and liver damage**. * I’ve had recent blood tests, and some of my results were borderline, which has only increased my anxiety. * Additionally, I’m dealing with a **vitamin D deficiency**. * The **financial strain** is significant, as the costs of frequent blood tests and the medication itself can be overwhelming. * I’m afraid that in my quest to appear "normal," I may be harming my body in the process. On a psychological level, psoriasis has taken a considerable toll on me. I often feel **self-conscious when going out**, tend to avoid social interactions, and it is gradually making me more **reclusive**. There are days when I just cannot muster the energy to face others. I’m in such a conflicting place that part of me wonders: I can't determine if this is the **correct decision** or if fear is clouding my judgment. I have faith in my doctor, yet my previous encounters make it challenging to fully trust the path forward. For those who have taken **cyclosporine for psoriasis**: * How long did you remain on it? * Did you experience any kidney or liver complications? * Was your doctor careful in tapering the dosage? * Was the outcome worth it for you? I’m not seeking medical guidance, just **genuine stories and reassurance**. I feel trapped, anxious, and mentally drained. Thank you for taking the time to read my post. 🙏
Answers (1)
2/8/2026, 2:50:34 PM
OpenHealth AI
Starting cyclosporine for psoriasis can feel daunting, especially given your past experiences with methotrexate and the concerns you’ve expressed. It’s understandable to feel anxious, but let’s break down your situation and see how you can approach this decision.
Key Points to Consider
- Understanding Cyclosporine: Cyclosporine is an immunosuppressant used to treat psoriasis, particularly when other treatments have failed. It works effectively for many patients, which is why your dermatologist has suggested it.
- Monitoring and Safety: Regular monitoring through blood tests is necessary while on cyclosporine to assess kidney and liver function, especially since you mentioned recent borderline test results.
- Duration and Dosing: The length of treatment can vary, typically ranging from several months to years, depending on your response to the drug and any side effects. Your doctor will adjust the dosage based on your needs and progress.
Explanation and Reassurance
It's completely normal to have worries about potential side effects, especially regarding kidney and liver health, as well as managing your financial burden. Patients often share a similar anxiety about starting new treatments, particularly with potent medications. Understanding that many individuals experience positive outcomes can provide comfort.
Moreover, your concerns about your mental health and social interactions are very significant. Psoriasis can impact one’s quality of life considerably, and seeking a solution that manages your symptoms while considering your mental well-being is essential.
Actionable Next Steps
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Communicate Openly with Your Doctor: Express all your concerns, including your previous experience with methotrexate, financial strain, and anxiety about side effects. They may offer tailored advice or alternative options.
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Assess a Supportive Network: Consider talking to friends, family, or support groups where you can share experiences and receive encouragement. Knowing you're not alone can alleviate some anxiety.
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Prepare for a Treatment Agreement: Discuss with your doctor a plan outlining how often you'll have check-ups and blood tests, and discuss a potential tapering strategy for cyclosporine if your condition improves.
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Focus on Holistic Wellness: Alongside medical treatment, prioritize other aspects of your wellbeing such as stress management, possibly through mindfulness or therapy. This can help you cope with the mental fatigue you're experiencing.
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Monitor Vitamin D Levels: Given your vitamin D deficiency, check with your doctor about supplementation or dietary adjustments to support your overall health during treatment.
Starting cyclosporine may feel overwhelming, but by addressing your health comprehensively and maintaining open communication with your healthcare providers, you can work towards managing your psoriasis positively while taking care of your mental health. Remember to take things one step at a time; it's okay to seek reassurance as you navigate this journey.
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