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SUPPORT FOR KIDNEY DISEASE

2/8/2026, 4:50:18 AMMale25-34

My father has been diagnosed with stage 5 chronic kidney disease and has also battled type 2 diabetes for the past two decades. Currently, he is experiencing alarming symptoms, including shortness of breath attributed to anemia—his hemoglobin level is at 8.1. Additionally, he faces difficulties lying flat, along with swelling in his feet and a slightly puffy face, indicating fluid accumulation in his lungs. The challenges my family is facing are largely centered around perspectives and beliefs. My mother has turned to homeopathic remedies in hopes of avoiding dialysis. Unfortunately, this approach has not yielded positive results; it has led to further deterioration, including muscle loss and increased fragility for my father. Despite needing adequate protein and potassium at this critical stage, she has restricted both. Now, my sister has sought advice from a different doctor in the United States. This doctor recommended that my father should not limit his protein intake. Instead, she suggested a balanced diet consisting of one serving of meat and three servings of vegetables daily, along with eggs. The recommended fluid intake is capped at 0.75 liters per day. Interestingly, the doctor mentioned that my father's liver is under stress, which could be impacting the kidneys. However, the liver function tests have come back normal. As someone who sees the potential pitfalls in the differing opinions within my family, I am reaching out for guidance. I hope to connect with a specialist who can offer a clear perspective and help provide my family with a necessary reality check. My father is 58 years old, stands 5'7" tall, and weighs approximately 60 kilograms.

Kidney StonesKidney PainNephrology

Answers (1)

Cony

2/8/2026, 4:50:32 AM

OpenHealth AI

It sounds like your father is facing significant challenges due to his stage 5 chronic kidney disease (CKD) and related symptoms. It’s understandable that differing opinions within your family can be overwhelming, especially when trying to find the best approach for his care. Let’s focus on immediate actions to address his health needs and provide some guidance moving forward.

Key Points:

  1. Immediate Health Concerns: Shortness of breath, edema (swelling), and low hemoglobin levels are serious symptoms, especially in advanced kidney disease.
  2. Diet and Nutrition: Proper protein intake is crucial, and balancing dietary needs amid kidney restrictions requires careful consideration.
  3. Fluid Management: Monitoring fluid intake is essential to prevent complications from fluid overload.

Explanation:

  • Anemia in kidney disease is common; a hemoglobin level of 8.1 is low and may indicate that your father needs interventions such as iron supplements or medications to stimulate red blood cell production.
  • Symptoms like shortness of breath and swelling can signify excess fluid in the body, which is a concern in advanced CKD. This calls for appropriate fluid management and possibly diuretics if prescribed by healthcare professionals.
  • Dietary adjustments often depend on kidney function and the overall health status of the liver and other organs. While limiting certain nutrients like potassium and phosphorus is typical, ensuring adequate protein is also vital for muscle mass and overall health, particularly at this stage.

Prioritized Next Steps:

  1. Seek Comprehensive Medical Evaluation: Engage a nephrologist (kidney specialist) who can provide a unified treatment plan based on the latest laboratory results and symptoms. A clear, consistent medical strategy can help mitigate the conflicting viewpoints.

  2. Focus on Nutrition:

    • Protein Intake: Since protein needs can vary based on individual contexts, the nephrologist can offer personalized dietary advice. It might be beneficial to have a registered dietitian specializing in kidney disease as part of the care team.
    • Balanced Diet: Maintaining an appropriate intake of both protein and vegetables, while monitoring potassium and phosphorus, may be necessary, depending on lab results and overall health.
  3. Monitor Fluid Intake: Keep track of fluid consumption strictly, adhering to recommendations (like the 0.75 liters/day cap) and potentially adjusting as advised by the healthcare provider.

  4. Address Anemia: Follow up on treatments specific to his low hemoglobin levels. Ensure that any anemia management options are discussed and initiated promptly.

  5. Educate the Family: Consider organizing a family meeting with the healthcare team to discuss your father’s condition, treatment options, and nutritional needs. Education can alleviate some anxiety and confusion among family members.

Closing Thoughts:

Your father is in a complex health situation, and it’s wise to prioritize clear communication and a collaborative approach. Supporting him through this process with professional guidance and evidence-based strategies can significantly impact his quality of life. Please let me know if you need help with further details or additional resources!

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