Questioning My RA Diagnosis and Treatment Concerns
Age 37, weighing 122 pounds, height 5’6" I received a diagnosis of rheumatoid arthritis from my rheumatologist in June, and I am currently taking Humira. However, I can’t shake the concern about whether I actually have RA and if this medication might be excessive given my diagnosis might not be accurate. Here’s a rundown of the situation: - During my visit, my rheumatologist conducted a thorough examination of my hands and fingers and expressed her suspicion of RA based on her observations. - My ANA test came back positive with two different patterns, but all other tests for autoimmune diseases yielded negative results. - She mentioned that it is possible to have seronegative RA, highlighting that lab results don’t always align with clinical presentations. - The next step was to perform imaging tests; she indicated that if the ultrasound results were inconclusive, we would then proceed with an MRI. - The ultrasound report reflected certain findings, which I cannot recall precisely but included indications of thickening that “may indicate RA in the appropriate clinical context.” - Taking into consideration my symptoms, physical exam, and ultrasound results, she arrived at the RA diagnosis. I have been undergoing treatment and have experienced an overall improvement in my condition. Still, I continually find myself questioning the validity of my RA diagnosis, especially since my blood tests did not show significant positivity. While my joint stiffness has diminished, it hasn’t completely gone away. Additionally, I experience symptoms of Raynaud’s phenomenon. My primary worry is: Is there sufficient evidence to support a sound diagnosis of RA? Or should I consider obtaining a second opinion prior to committing to long-term biologic therapy? I also recall that my great aunt might have suffered from rheumatoid arthritis as well; her fingers showed significant deformation. However, there are no living relatives to confirm this information, and I understand this is rather far removed from a medical family history perspective. I appreciate any insights you might have. Thank you!
Answers (1)
2/8/2026, 1:40:31 AM
OpenHealth AI
It's understandable to have concerns about your rheumatoid arthritis (RA) diagnosis, especially when navigating treatment and experiencing mixed symptoms. It's helpful that you've noticed improvements with Humira, but questioning the underlying diagnosis is a common and rational consideration. Here’s a structured response to your concerns.
Main Points
- Diagnosis Validity: Your diagnosis of RA seems to be supported by clinical findings and imaging results, despite some inconclusive blood tests.
- Treatment Consideration: Since you've had positive results from treatment, this can indicate that RA is indeed affecting you.
- Second Opinion: Seeking a second opinion is completely valid and can provide reassurance about your diagnosis and treatment plan.
Explanation
Rheumatoid arthritis is a complex autoimmune condition, and diagnosis can often include a combination of symptoms, physical exams, lab tests, and imaging studies. Even with negative blood tests, it’s essential to consider the clinical context, which your rheumatologist has done. The ultrasound findings you mentioned, along with your symptoms and family history, suggest RA could be a possibility.
Your experience of symptoms like Raynaud’s phenomenon is also relevant, as autoimmune conditions can overlap. The improvement you're seeing with treatment is a positive indication that the medication might be effectively managing RA or its symptoms.
Next Steps
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Monitor Your Symptoms: Continue to keep a record of your symptoms, including joint stiffness, Raynaud’s episodes, and overall well-being. This information can be valuable for future discussions with healthcare providers.
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Consider a Second Opinion: If you continue to feel uncertain, reaching out to another rheumatologist for a second opinion can help clarify your diagnosis and treatment options. Bring your medical records, test results, and notes on your symptoms to the appointment.
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Discuss Your Concerns with Your Rheumatologist: Before pursuing a second opinion, consider discussing your doubts openly with your current rheumatologist. Ask about the basis for your RA diagnosis and discuss any possible alternative diagnoses.
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Lifestyle Adjustments: While you navigate your treatment, focus on maintaining a healthy lifestyle, including balanced nutrition, gentle exercise, and stress management techniques, which can help manage RA symptoms.
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Educate Yourself: Learning more about RA, its symptoms, and treatments can empower you in your healthcare journey. Support groups can also be helpful for connecting with others facing similar challenges.
Your health decisions are important, and seeking clarity on your medical condition is entirely justified. Feel free to follow up with any more questions or updates regarding your situation.
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