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Understanding My Symptoms: A Personal Account

2/7/2026, 1:30:44 AMMale25-34

I’m sharing my experiences here, as I haven’t received much feedback elsewhere. I am a 15-year-old female, measuring about 5 feet tall (152 cm) and weighing between 105 and 110 pounds (47-50 kg). I identify as Hispanic and Cuban, and legally fall under the white classification. I reside in Palm Beach County, Florida, and I am a U.S. citizen. I have a diagnosis of Autism and previously had ADD, although that diagnosis has been dropped, which leaves me unsure about my current condition—whether ADHD applies or not. Additionally, I have a past history of anemia, although it is currently not diagnosed. For the past year, I've experienced a range of symptoms that appear intermittently and are often present almost daily. While these symptoms vary, they haven’t subsided. I’ve noticed that both physical activity and caffeine can either trigger or exacerbate these issues. Now, I’d like to detail the symptoms I've been facing. One of my major concerns is my balance; when I stand, I often feel unsteady, and sometimes I even limp. This particular symptom is quite troubling as it occurs frequently. I also experience occasional dizziness and fatigue, which leaves me feeling too weak to move, causing me to remain still for prolonged periods. During episodes of significant fatigue or balance issues, I find myself starting to stutter and I suspect my speech may slur at times. Additionally, my hands sometimes shake, especially when I struggle to walk. There could be other symptoms I haven’t recalled yet, but this is what I remember for now. I will provide updates if I think of anything else, and I welcome any engagement. Furthermore, I’ve noticed irregularities with my heart rate. Initially, when these symptoms began, my resting heart rate dropped from the 80s and 90s to the 50s and 60s; this lower rate has persisted. Lately, however, even simple tasks such as standing, walking short distances, or rocking back and forth (which I do as a self-soothing mechanism) have caused my heart rate to spike to the 100s. These changes are new, while the other symptoms have been consistent for about a year. I genuinely seek guidance or support, as I feel uneasy relying on AI for self-assessment. Unfortunately, I can't afford doctor visits at this time, and my caretaker has shown little concern for my well-being. Therefore, please refrain from suggesting medical consultations. Thank you for taking the time to read my story. I’m open to any questions.

Multiple SclerosisLupusCrohn's Disease

Answers (1)

Cony

2/7/2026, 1:31:02 AM

OpenHealth AI

Thank you for sharing your experiences. It's clear that you're going through a challenging time with various symptoms, and I appreciate your openness about how they affect you. Based on what you've described, there are several important considerations related to balance, fatigue, heart rate, and possibly neurological symptoms.

Main Points:

  1. Symptom Patterns: Your symptoms, particularly balance issues, dizziness, fatigue, and heart rate changes, merit attention.
  2. Holistic Management: While it's challenging without medical consultations, there are some supportive strategies you can try.
  3. Monitoring: Keeping track of your symptoms can help you identify patterns and triggers.

Explanation:

Your symptoms, including unsteadiness, dizziness, and fatigue, could arise from various causes, including neurological conditions, changes in blood pressure or heart rate, or even issues related to past anemia or your neurodevelopmental status. It's concerning to experience a significant drop in your resting heart rate and subsequent spikes during activity. These fluctuations could indicate autonomic nervous system involvement, which is essential for various bodily functions, including heart rate control.

Actionable Steps:

  1. Symptom Diary: Start a daily diary noting when symptoms occur, their severity, and any potential triggers (like certain activities or foods). This will help identify patterns and could be valuable if you can consult a healthcare provider in the future.
  2. Hydration and Nutrition: Ensure you are well-hydrated and eating regular, balanced meals. Low blood sugar or dehydration can significantly impact your energy and balance.
  3. Gentle Movement: If your balance permits, consider gentle stretching or yoga to enhance stability and reduce tension. Start slowly, and only as your body allows, focusing on controlled movements.
  4. Caffeine Management: Since you've noted caffeine can trigger issues, it might be helpful to reduce intake and observe if that alleviates symptoms.
  5. Relaxation Techniques: Practice mindfulness or deep breathing exercises to help manage anxiety or stress, which can exacerbate physical symptoms.
  6. Seek Community Support: Engage with local or online support groups for individuals with autism or similar symptoms. Sharing experiences can provide emotional support and practical coping strategies.

While this advice is designed to be helpful, stay aware of any changes in your health or worsening symptoms, and consider reaching out to other supportive individuals in your life when possible. You're not alone in this, and taking these steps can empower you to manage your symptoms effectively. Please keep sharing your thoughts; it's important to express what you're going through.

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