Unexplained Menstrual-Related Bleeding
A 16-year-old female, measuring 160 cm and weighing 50 kg, of East Asian descent, is experiencing puzzling symptoms. I’m writing on behalf of my cousin and her daughter, who are not Reddit users. With some trepidation, I bring this matter to your attention, having encountered a related story, "The Girl Who Cries Blood." That case generated significant doubt within the medical sphere and eventually seemed to disappear, with many suggesting it was a fabrication, complicating matters for others facing genuine issues. My niece is currently afflicted by similar symptoms, and I fear that, like the previous case, her condition might not receive the seriousness it deserves. The medical professionals involved seem uncertain about how to proceed. Although I've not witnessed her symptoms firsthand, I have viewed two video clips that her mother provided. For the past two years, she has experienced intermittent bleeding from her nose, anus, navel, and even her eyes—though these instances do not all occur simultaneously. This bleeding aligns with her menstrual cycle, surfacing irregularly each month. Unfortunately, her parents did not prioritize documenting her symptoms thoroughly, aside from the two videos that showcase the eye bleeding. They have conducted an extensive range of diagnostic tests, including biochemical and hematological evaluations for clotting disorders, hormone levels, multiple ultrasounds, CT and MRI scans, Doppler assessments, and endoscopic examinations. So far, she has been diagnosed with endometriosis and polycystic ovarian disease (PCOD), along with nasal polyps, but no evidence of endometrial tissue was found. Additionally, a psychological assessment revealed that she suffers from panic attacks. None of the investigations have clarified the cause of her unusual bleeding episodes. We are seeking guidance on a couple of points: 1. Could her bleeding episodes be linked to endometriosis? 2. What additional tests do you recommend to further investigate this issue? I appreciate your time and any serious suggestions. I have advised her mother to start documenting all episodes of bleeding moving forward. The patient has been receiving monthly leuprolide acetate injections since December of last year, with her most recent episode occurring last month, which involved bleeding from the eyes.
Answers (1)
2/6/2026, 7:50:40 AM
OpenHealth AI
Thank you for sharing your cousin's daughter’s complex case. It’s understandable to feel anxious about her unusual bleeding symptoms, especially given the previous case you referenced. Addressing your questions straightaway:
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Link Between Bleeding Episodes and Endometriosis: While endometriosis can cause significant pelvic pain and menstrual irregularities, it is less common for it to directly cause bleeding from multiple sites like the eyes, nose, or navel. These unusual bleeding episodes may be separate issues rather than directly caused by her endometriosis.
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Additional Tests to Consider: Since a thorough range of tests has already been performed, it might be beneficial to explore the following:
- Hematological Assessment: Ensure a comprehensive review of bleeding diathesis. Get a specialist’s insight on whether a specific clotting disorder could still be undetected.
- Imaging Studies: Consider echocardiography to look for any vascular issues that might contribute to bleeding, especially from unusual sites.
- Connective Tissue Disorders Workup: A thorough examination for conditions like Ehlers-Danlos syndrome, which can cause fragile vessels leading to spontaneous bleeding episodes.
- Psychological Evaluation: Given her panic attacks, exploring a potential psychosomatic component or stress-induced bleeding may also be warranted.
Next Steps:
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Documentation: Continue to document each bleeding episode, noting details like onset timing, duration, amount, and any potential triggers. This can be extremely helpful for future visits to healthcare professionals.
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Blood Work Follow-Up: Consider specifically focused follow-up blood tests based on the previous findings, especially looking into any untested aspects of her coagulation profile.
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Consult with a Specialist: If she hasn’t already, it might be beneficial to seek an appointment with a hematologist or a specialist in pediatric gynecology who can more closely investigate her specific condition.
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Support for Mental Health: Encourage ongoing support for her emotional well-being, as managing anxiety is crucial, especially when dealing with complex medical conditions.
It’s important to keep an open line of communication with her healthcare team to ensure that all possible avenues are being explored. I wish your cousin's daughter all the best in her journey towards finding clarity and effective treatment. Please feel free to reach out with any more concerns or updates.
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