[23M] I Fear I Might Have Lymphoma But Doctors Disagree
My experience with swollen lymph nodes began over two years ago. Initially, I noticed some in my neck and groin, but there were infections present which could account for their appearance. To be cautious, I underwent numerous tests, including various ultrasounds and an extensive array of blood work, such as: * Complete blood count * Beta-2 microglobulin * ESR * LDH * CRP * Urea * Protein electrophoresis …and much more (truly). Fortunately, the results indicated nothing alarming; all readings were within normal ranges. However, as time went on, additional lymph nodes appeared in distinct groups - infraclavicular, supraclavicular, axillary, and more in both the neck and groin. Some of these had explanations related to other conditions, but others seem inexplicable, particularly those in the infraclavicular and axillary regions. Over this period, I underwent all those tests again, alongside multiple chest CT scans (four within approximately a year and a half) and a head CT scan for a separate concern. All results came back clear again. Yet, I remain puzzled. The occurrence of new lymph nodes continues; just last week, I discovered one in the epitrochlear area (above the elbow). It feels somewhat firm and tender, with no discernible reason for its presence. The other lymph nodes appear stable, and I can't ascertain if they've enlarged—if they have, any growth hasn't been significant enough for me to notice. There is one node in my groin that I believe has increased in width, although not in length (initially measuring about 2.3 cm x 0.3 cm, it now seems to be around 2.3 cm x 0.7 cm). I’m not sure if it’s worth mentioning, but I haven’t experienced symptoms like unexplained weight loss, night sweats, or fever. Overall, my health has been fairly stable. I've consulted with several hematologist-oncologists, yet none have deemed a biopsy necessary, which leaves me feeling quite frustrated. For at least the past year and a half, my thoughts fixate on the possibility of having a serious illness. The uncertainty weighs heavily on me, disrupting my life and eroding my peace of mind. I'd appreciate any guidance you can offer.
Answers (1)
2/4/2026, 6:00:56 PM
OpenHealth AI
It’s understandable to be concerned when you notice persistent changes in your body, such as the appearance of swollen lymph nodes. Given your extensive medical history and negative results from various tests, it sounds like you’ve taken proactive steps to address your health concerns.
Key Points:
- Swollen lymph nodes often indicate benign conditions, especially with normal blood tests and imaging results.
- The presence of new lymph nodes, particularly when they are stable and without significant additional symptoms, can sometimes be due to non-serious causes.
- If your current healthcare providers feel a biopsy is unnecessary, it's likely they believe the evidence doesn’t suggest an aggressive or treatable condition.
Explanation: Lymph nodes can swell for various reasons, including infections, inflammation, or even other benign conditions. Given that you’ve been evaluated multiple times and your tests have consistently shown no alarming results, the likelihood of lymphoma, while it can’t be completely ruled out without a biopsy, seems low at this point. The fact that you don’t have common symptoms associated with serious conditions—like unexplained weight loss, night sweats, or recurrent fevers—is an encouraging sign.
Next Steps:
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Monitor Symptoms: Keep a close eye on the lymph nodes and any changes in your health. Document their sizes and any new symptoms that arise, as this can help in future consultations.
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Consider a Second Opinion: If your anxiety continues regarding the possibility of lymphoma, seeking an additional opinion from a different hematologist-oncologist may provide reassurance or new insights into your concerns.
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Manage Anxiety: The prolonged uncertainty can be mentally and emotionally taxing. Consider speaking with a mental health professional or engaging in stress-reducing practices such as mindfulness, meditation, or regular physical activity, which can help ease your mind.
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Continue Regular Follow-ups: Stay proactive with your health by having routine follow-ups with your healthcare providers as recommended. Regular check-ins can help you feel more in control and reassured.
Your feelings of frustration and anxiety are valid, and it's commendable that you're seeking ways to address your concerns. If any new symptoms arise or if your situation changes, be sure to consult your healthcare team promptly.
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