Seeking Guidance for Persistent Health Issues
Hello everyone! I'm reaching a breaking point and felt compelled to share my concerns here. To start off, I have been diagnosed with Autism and ADHD. I also deal with anxiety and have suspicions of Endometriosis. For quite a while now, I have been enduring autistic burnout. I take medication for my ADHD twice daily. I'm 29 years old, female, and generally maintain a good level of fitness. Standing at 5'6", I weigh around 70 kg, which is slightly above my preferred weight but still manageable. In the last four years, I have experienced a range of escalating symptoms, including: - Severe fatigue: My sleep has become unrefreshing; I often feel dazed and utterly depleted to the point where my limbs feel heavy and unmanageable. - Ongoing issues with low iron and folate levels: Despite multiple prescriptions for iron supplements, no one has taken the initiative to investigate the underlying reasons for these deficiencies! The fatigue I experience is profound and impacts every aspect of my body. Sometimes, I find myself unable to open a jar, which was something I never struggled with before. Although my menstrual cycle remains regular, I have noticed some changes over the past four years, such as variations in cycle length and the occurrence of brown discharge post-period. The cramps can be quite severe, and the drop in mood during the luteal phase is overwhelming; it drains my energy and makes life feel insufferable. Additionally, my libido has completely diminished, driving me to frustration; intimacy has become increasingly painful compared to the past. It's incredibly disheartening to repeatedly feel brushed aside by medical professionals. I cannot endure this situation indefinitely, and I would greatly appreciate any advice or strategies for tackling my upcoming doctor’s appointment!
Answers (1)
2/3/2026, 10:30:50 PM
OpenHealth AI
I'm truly sorry to hear about the challenges you've been facing. It sounds overwhelming, and your feelings of frustration are completely valid. Let’s break down your concerns and focus on some strategies to prepare for your doctor's appointment, which is crucial in addressing your health issues.
Main Points:
- Severe Fatigue and Unrefreshing Sleep: This could be due to multiple factors, including anxiety, nutritional deficiencies, or potential hormonal issues related to your menstrual cycle.
- Low Iron and Folate Levels: It’s crucial to investigate the underlying causes of these deficiencies to effectively address them.
- Endometriosis Symptoms: Your menstrual changes and pelvic pain may suggest this condition, which should be thoroughly evaluated.
Explanation:
- Fatigue and Sleep Issues: Both can be caused by your ADHD medications, anxiety, stress, or even nutritional deficiencies, especially since you have low iron and folate levels. Fatigue that affects daily activities, as you described, warrants further investigation.
- Nutritional Deficiencies: Consistent low iron and folate could be due to dietary factors, absorption issues, or chronic blood loss, potentially linked to menstruation or gastrointestinal health.
- Menstrual Cycle Changes: The described symptoms may indicate endometriosis, which is characterized by painful periods and other issues. Changes in your cycle and mood variations could also be hormone-related.
Next Steps:
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Document Symptoms:
- Keep a detailed diary of symptoms over the next few weeks, including fatigue levels, menstrual cycle details, dietary intake, and how you feel each day. This can help your doctor better understand your condition.
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Prepare for Your Appointment:
- Make a list of all your symptoms, how they affect your daily life, and any questions you have regarding their possible connections to your existing conditions (like ADHD and anxiety) as well as endometriosis.
- Inform your doctor about your low iron and folate levels and request a comprehensive evaluation to pinpoint the cause. Suggest tests that assess absorption, possible gastrointestinal issues, or hormonal levels.
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Discuss Management Options:
- Ask about whether your current medication could be contributing to fatigue and discuss alternative treatment options if necessary.
- Explore non-pharmacological strategies for managing anxiety and stress, such as cognitive-behavioral techniques, mindfulness, or support groups.
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Consider a Specialist:
- If you feel comfortable, request a referral to a gynecologist or a specialist in women's health who is knowledgeable about endometriosis to address your menstrual health more comprehensively.
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Lifestyle Considerations:
- Focus on a balanced diet rich in iron and folate (leafy greens, beans, nuts, whole grains, and lean meats) while also ensuring you're adequately hydrating and managing stress levels through relaxation techniques or light exercise.
Remember, it’s essential to advocate for yourself during appointments. You deserve thorough care and to have your concerns taken seriously. You’re not alone in this, and there is support available to help improve your health and well-being. If you have further questions or need more assistance, feel free to reach out.
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