OpenHealth Q&A

Understanding Generalized Ligament Laxity

For quite some time, I've been contemplating whether I might be dealing with generalized ligament laxity. I have an upcoming appointment with my primary care physician and I'm hopeful they can assist me in deciding if this is a relevant issue to discuss. My priority is to prevent any future complications rather than to treat present discomforts, as my symptoms are relatively mild at this point. The most notable issue is a diagnosis of hypermobile joint syndrome in both feet, which a podiatrist attributed to my early onset of bunions. Additionally, I've experienced locking of the proximal interphalangeal (PIP) joints in my fingers, which has hindered my ability to play musical instruments since my junior high years. I estimate that I can hyperextend my PIP joints by about 25 degrees or more in each finger. When I extend these joints fully and they lock, I can still bend them, but this action causes an uncomfortable snapping sound. The tendons over my knuckles tend to slide off during fist clenching, and the same is true for the toe joints in my feet, which also emit a loud snap as I move my toes. When I rotate my wrists, they produce numerous popping and cracking noises. My jaw also exhibits similar sounds, suggesting possible temporomandibular joint (TMJ) issues. I've observed what I believe to be subluxations in various parts of my body. For instance, my shoulder feels like it might dislocate under certain pressures, such as when I'm turning the steering wheel of a car. My knees pop out of alignment with a shift in weight, giving a slightly bow-legged appearance. Additionally, my hand can shift abnormally at the wrist joint, and my thumb's carpometacarpal (CMC) joint can pop inwards towards my palm repeatedly. Regarding conditions like hypermobile Ehlers-Danlos syndrome (hEDS) and Marfan syndrome, I can easily demonstrate the thumb sign and wrist sign associated with Marfan syndrome, even though I don't possess a tall or elongated physique. While my PIP and distal interphalangeal (DIP) joints have notable hyperextension, the metacarpophalangeal (MCP) joints exhibit hyperextension just below 90 degrees—approximately around 80—but I could potentially push them to 90 degrees with extra effort. The same applies to the thumb test, which I can pass under pressure, but I can't do so comfortably. I can reach the floor with my palms while standing upright, and both my knees and elbows may hyperextend, though I'm uncertain if they exceed 10 degrees. If I had to estimate, my left elbow probably does exceed that mark, but I’m less certain about my other joints. If there are any specific tests or assessments you think I should undergo, please advise me. I am eager to thoroughly investigate this matter! Thank you for your assistance.

Answers (1)

12/17/2025, 10:20:44 PM

OpenHealth AI

It sounds like you are experiencing several joint-related issues that may be linked to generalized ligament laxity or potentially a more specific condition like hypermobile Ehlers-Danlos syndrome (hEDS). Given your main concern about preventing future complications, it's important to approach this comprehensively and use your upcoming appointment to address these issues thoroughly.

Summary of Key Points:

• You have a history of joint hypermobility, symptoms affecting your fingers and toes, popping joints, and potential stability issues.
• Your goal is to prevent future complications linked to your symptoms.

Explanation:

Generalized ligament laxity allows your joints to move more than usual, which can lead to instability and other complications over time. Conditions like hEDS and other connective tissue disorders can present similarly, and it's good that you're being proactive about discussing this with your primary care physician.

Next Steps:

1. Prepare for Your Appointment:

   • Make a list of your symptoms, including any instances of pain, instability, or dislocations. Include when these occur and how they affect your daily life, especially your ability to play musical instruments.
   • Note any family history of similar joint issues or connective tissue disorders as this can help in diagnosis.

2. Discuss Diagnostic Testing:

   • Ask your doctor about specific assessments such as the Beighton score for hypermobility and whether a joint hypermobility questionnaire or genetic testing may be appropriate if hEDS or a related condition is suspected.

3. Consider Referral Options:

   • Inquire about a referral to a rheumatologist or a geneticist who specializes in connective tissue disorders for a more in-depth evaluation.

4. Start Self-Care Practices:

   • Engage in low-impact strengthening exercises that focus on stabilizing muscles around your hypermobile joints, under the guidance of a physical therapist if possible.
   • Practice gentle stretching to maintain your range of motion without overextending your joints.

5. Monitor Symptoms:

   • Keep a symptom diary to record your experiences with locking joints, popping noises, and any functional limitations. This will provide valuable insight for your healthcare provider.

Taking these steps can help you gain a clearer understanding of your condition and provide a foundation for preventing future issues. Remember, you're not alone in this, and taking these proactive measures is an important step toward managing your health. If you have any additional questions or need clarification on any aspect, feel free to ask!