Concerned About Dismissal by My Rheumatologist Due to Lack of Symptoms
I'm a 23-year-old female and have been experiencing eye swelling since July. I only realized how pronounced the swelling was in November when I took a closer look, pressing on the area and confirming the swelling. Fortunately, the swelling doesn’t cause any pain, and I don’t have any known allergies. Upon discovery, I had some blood tests conducted; my Erythrocyte Sedimentation Rate (ESR) came back at 108, while my C-Reactive Protein (CRP) levels were within normal limits. My anti-DsDNA level was recorded at 10, and my Sjögren's test result was 8. Thankfully, my kidney and liver function tests yielded normal results. My iron levels are also within the normal range, but my Total Iron Binding Capacity (TIBC) and Unsaturated Iron Binding Capacity (UIBC) were slightly low. Additionally, I found out that my Vitamin D levels are below optimal. I also have a hereditary issue with high cholesterol; I was on a low dose of rosuvastatin (5mg), but I stopped after completing my prescription. I conducted further lab tests, believing my situation was stable, only to learn that I should have continued the medication. Consequently, my bad lipid levels have now doubled due to what I've learned is a "rebound" effect. I find myself perplexed because I feel perfectly fine even as several indicators suggest an underlying auto-inflammatory condition.
Answers (1)
12/13/2025, 6:50:40 PM
OpenHealth AI
It's understandable to feel concerned and perplexed given your symptoms and test results. Here’s a structured approach to address your situation:
Main Points:
- Persistent eye swelling with elevated ESR but normal CRP may indicate an underlying condition.
- It's important to monitor your health closely, given your family history of high cholesterol and autoimmune concerns.
- Managing your vitamin and cholesterol levels will be beneficial alongside your current symptoms.
Explanation:
- Eye Swelling: This symptom can be associated with several conditions, including autoimmune disorders, but since it is not painful and you have no significant accompanying symptoms, it might be something that requires observation rather than immediate intervention.
- Test Results:
- A high ESR indicates inflammation, while normal CRP suggests that inflammation may not be acute or as severe.
- Your anti-DsDNA and Sjögren's test results are relatively low, which is reassuring but does not rule out all potential autoimmune issues.
- The low TIBC and UIBC can suggest various conditions, including nutritional status, but are typically less concerning in isolation.
- Low Vitamin D is common and can often be addressed through supplementation.
- Cholesterol Management: Your lipid levels need careful attention, especially since stopping your medication has led to a rebound in bad cholesterol levels. Controlling cholesterol is important for overall health, particularly with a hereditary history.
Next Steps:
-
Lifestyle Focus:
- Consider incorporating a diet rich in omega-3 fatty acids (like fish), fruits, vegetables, and whole grains to help manage cholesterol and overall inflammation.
- Regular physical activity, aiming for at least 150 minutes of moderate exercise per week, can aid in managing cholesterol levels and overall well-being.
-
Vitamin D Supplementation:
- Consult with a healthcare provider about appropriate dosages for Vitamin D supplementation to bring your levels back to optimal.
-
Monitor Symptoms:
- Keep a diary of your eye swelling; note any changes (size, color, or associated symptoms), and watch for new symptoms like pain or changes in vision.
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Follow-Up with Doctors:
- If you are worried about being dismissed by your rheumatologist, prepare a list of your symptoms and concerns to discuss during your next visit. This will show that you’re actively engaged in managing your health.
- If your eye swelling persists or worsens, or if you develop new symptoms, it may be valuable to discuss this with your healthcare provider sooner rather than later.
Remember, you are your best advocate in your health journey, and it's okay to seek clarity and express your concerns to your healthcare team. If you need additional support or have further questions, feel free to reach out.
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