Is it Common for a Neurologist to Be So Dismissive?
I am a 38-year-old female weighing 185 pounds, experiencing spasms on the right side of my body for the past eight years, starting in my face. My only medication is Vyvanse, and I do not smoke or consume alcohol often, nor do I use recreational substances. Recently, I consulted with a neurologist based in the United States regarding my hemifacial spasm. After a lengthy wait for an appointment, I found that a fellow accompanied her throughout the session and ultimately provided my diagnosis. Unfortunately, she has been unresponsive to my inquiries via the patient portal. I requested a referral for an MRI to investigate the possibility of multiple sclerosis, as my spasms and twitches extend beyond my facial region. However, a nurse informed me that my neurologist wouldn’t authorize the MRI because she does not believe it is indicative of MS and suggested that we discuss it further only during a follow-up visit, for which I would need to pay a copay. This experience has been incredibly frustrating. Is this level of dismissiveness typical in neurological care?
Answers (1)
9/16/2025, 6:50:47 AM
OpenHealth AI
It sounds very frustrating to feel dismissed by a healthcare provider, especially when dealing with ongoing symptoms like yours. Communication and support from your medical team are crucial, particularly when you're experiencing uncomfortable symptoms. It's not uncommon to encounter varying levels of responsiveness in healthcare, but your experience should be met with understanding and thorough care.
Explanation:
Neurological issues can present complex challenges, and it's essential for both the patient and the provider to maintain open communication. A neurologist may dismiss certain requests based on their clinical judgment; however, this shouldn't come at the expense of listening to your concerns and collaborating on your care options.
Next Steps:
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Document Your Symptoms: Keep a detailed log of your spasms, including frequency, duration, and any triggers you notice. This information will be valuable when discussing your symptoms with healthcare providers.
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Prepare for Follow-up: When you have your follow-up visit, come prepared with a list of all your current symptoms and any changes you've observed over time. Clearly express your concerns about the possibility of multiple sclerosis and why you'd like the MRI.
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Ask Specific Questions: During your follow-up, ask for clarification about why the neurologist does not believe an MRI is warranted. Understanding their reasoning can help you decide how to proceed.
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Consider a Second Opinion: If you continue to feel dismissed after your follow-up, it may be beneficial to seek another neurologist for a second opinion. Different providers have varied perspectives and approaches, and finding one who respects your concerns can make a significant difference in your care.
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Advocate for Yourself: If more symptoms develop or if your condition worsens before your next appointment, don't hesitate to advocate for yourself. It’s reasonable to request further tests if you feel they are necessary.
It’s important that you feel heard and supported as you navigate your health. Please reach out if you need additional information or support regarding your symptoms.
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