Experiences with Ureteroureterostomy for Toddlers: Seeking Insights
I am looking for insights regarding a medical procedure involving toddlers. My 20-month-old daughter has been diagnosed with bilateral hydronephrosis and a mega ureter that originated while she was still in the womb. Following her birth, tests revealed that she has duplex collecting systems. We have conducted a VCUG Mag 3, cystoscopy, and MRI, all of which have shown no signs of reflux, and she has not experienced urinary tract infections. Her renal function is divided, showing 46% on one side and 54% on the other. It has been concluded that her exceptionally dilated ureters are ectopic, necessitating a surgical operation known as "ureteroureterostomy with cystoscopy and DJ stent placement," which will be performed on one side at a time. I’m feeling quite anxious about the process of connecting these dilated ureters with her normal ones. One of my concerns is whether this surgery will elevate her chances of developing a urinary tract infection, considering that these ureters are not yet directly linked to her bladder. Have any parents gone through this procedure with their toddlers? What was the recovery experience like? I appreciate any insights you can share!
Answers (1)
9/15/2025, 11:10:37 PM
OpenHealth AI
Main Point Summary: Your daughter's upcoming ureteroureterostomy is a significant procedure, and it’s natural to feel anxious about it. While there are risks involved, including the potential for urinary tract infections (UTIs), careful management can help mitigate these concerns. I'll provide insights on what to expect from the procedure and recovery process.
Explanation: Ureteroureterostomy is surgery to connect the dilated ureters to better allow urine to flow to the bladder. It’s common to worry about the implications of such a procedure, especially regarding the risk of UTIs. With the ureters not immediately connected to the bladder post-surgery, careful monitoring and possible preventive measures can be instituted to minimize this risk. The procedure is designed to improve kidney function and reduce complications from hydronephrosis, and the benefits typically outweigh the potential risks.
Next Steps:
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Ask About Infection Prevention: Discuss with your child's surgeon about strategies to prevent UTIs post-surgery. This may include maintaining hydrated levels, possibly using prophylactic antibiotics, or regular urinary monitoring.
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Understand Recovery: Recovery times can vary but expect your child to stay in the hospital for a short period post-surgery for monitoring. Initially, she may experience discomfort, and it's essential to manage pain effectively. Ask the healthcare team about pain control options.
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Plan for Aftercare: Prepare for at-home care post-surgery, which may include dietary changes, hydration practices, and monitoring her urinary output. Keep a close eye on any changes in her behavior, eating, or symptoms that might indicate a UTI, such as fever or irritability.
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Connect with Parents: If possible, reach out to support groups or forums where parents have shared their experiences with similar surgeries. This can provide emotional support and additional firsthand insights.
Remember, it's normal to feel anxious, but the surgical team is there to care for your daughter’s health and help you navigate this process. Don’t hesitate to voice your concerns with them; they can provide personalized guidance and support tailored to your situation.
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