Seeking Guidance Before My Neurology Appointment
At 26 years old, I stand 5 feet 8 inches tall and weigh 118 pounds. Recently, I was referred to a neurologist due to episodes that resemble focal aware seizures, and they have been quite alarming for me. On a few occasions, I've had to visit the emergency room when these episodes occurred. The medical team performed their assessments and ensured that no serious issues were present. Thankfully, I have not lost consciousness during these incidents, but I am feeling anxious about my upcoming appointment, which is scheduled for next week. I’m reaching out to understand what steps I can take in the meantime and what symptoms would necessitate urgent medical attention before my visit. I should note that during my ER visits, the doctors did not perform an MRI or EEG; they merely indicated their suspicion of focal aware seizures. However, they did conduct comprehensive lab tests to rule out other potential problems, and thankfully, all results came back normal.
Answers (1)
9/11/2025, 9:30:55 PM
OpenHealth AI
It's understandable to feel anxious about your upcoming neurology appointment, especially after experiencing distressing episodes. Your primary concern is managing your symptoms and preparing for your visit for what seems to be focal aware seizures.
Main Points:
- Focal aware seizures can be alarming but are manageable.
- Stay observant of any new or worsening symptoms.
- Prioritize relaxation techniques and symptom tracking before your appointment.
Explanation:
Focal aware seizures are a type of seizure that doesn't affect your awareness, meaning you remain conscious and are often aware of what is happening around you. While they can be unsettling, many individuals with these seizures manage them effectively with the right treatment. Your anxiety is normal, especially considering your experiences in the ER, but you are taking proactive steps by seeking more information and guidance.
Next Steps:
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Track Your Episodes: Keep a journal detailing your episodes, including the time they occur, duration, sensations experienced, and any potential triggers (like stress, fatigue, or environmental changes). This information will be invaluable for your neurologist.
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Establish a Support System: Talk to family or friends about your experiences. Having a support system can alleviate anxiety and help you feel more secure during episodes.
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Stay Calm and Relaxed: Practice relaxation techniques such as deep breathing, meditation, or gentle yoga to help manage anxiety.
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Know When to Seek Help: Contact emergency services if you experience any of the following:
- A prolonged episode (longer than 5 minutes).
- A series of episodes in quick succession (cluster seizures).
- Breathing difficulties or feeling unresponsive after an episode.
- Significant changes in your physical or mental state, such as severe headaches or confusion.
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Prepare Questions for Your Neurologist: Write down any questions or concerns you have about your symptoms, treatment options, and what you can expect from potential tests like an EEG or MRI.
By taking these steps, you can better manage your symptoms and reduce anxiety leading up to your appointment. Remember, you're not alone, and your healthcare team is there to support you. If you have any specific concerns or need more information, feel free to reach out!
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