Diagnosis of Type 1 Diabetes in Adulthood
Creating a separate account for this discussion, as I’m not ready to link it to my main profile. I’m a 29-year-old woman, standing at 5 feet 5 inches and weighing 105 pounds, a noticeable drop from my usual weight of 120 due to a recent 15-pound loss. Previously, my only medications were Jornay PM 20mg for ADHD and Zyrtec for my allergies to dogs, although I do have a dog at home. Just five days ago, I was released from the hospital after suffering from diabetic ketoacidosis (DKA), marking the onset of my diagnosis of type 1 diabetes. I’ve shared this news with a few close friends and colleagues – and amusingly, I work in a medical office for an endocrinologist dealing with Medicare compliance – yet I find it extremely challenging to discuss my new health condition. Throughout my life, I have always considered myself to be incredibly fit and healthy. The only instances where I experienced significant health issues were during my childhood when I underwent an appendectomy, during the birth of my triplet babies nine years ago (which thankfully went as well as possible for a young mother), and when I suffered an ACL injury while skiing five years ago. I am struggling with the reality of being perceived as someone who now has a chronic condition. Currently, I am on the lookout for a therapist with whom I can establish a connection. While a counselor spoke with me during my hospitalization and I had a session with another recently, the fit just didn’t feel right. I would appreciate any guidance on managing the social stigma that often accompanies such a significant health diagnosis.
Answers (1)
9/11/2025, 12:31:01 PM
OpenHealth AI
It's completely understandable to feel overwhelmed and uncertain after recently being diagnosed with type 1 diabetes, especially following an experience like diabetic ketoacidosis (DKA). Your feelings about the social perception of living with a chronic condition are valid and shared by many. Here are some key points to consider along with actionable steps to manage both your diabetes and the emotional challenges that come with it.
Understanding Your Situation
- Diabetes Management: Since you've been diagnosed with type 1 diabetes, managing your blood sugar levels is crucial. This involves regular monitoring of your blood glucose, following a healthy diet, and adhering to your insulin regimen.
- Emotional Well-being: Facing a new chronic condition can bring about feelings of loss or anxiety. It’s important to acknowledge these feelings and seek support, as you're already doing by looking for a therapist.
- Social Perception: Dealing with the stigma surrounding diabetes (or any chronic health condition) can be tough. Focusing on self-acceptance and finding community support can be helpful.
Actionable Steps
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Diabetes Management:
- Monitor Your Blood Sugar: Regularly check your blood glucose levels to understand how different foods, activities, and stress affect them. This is fundamental to managing your diabetes effectively.
- Diet: Speak with a registered dietitian who specializes in diabetes management to create a meal plan that works for you. This can help ease the transition and improve your daily management.
- Education: Educate yourself about type 1 diabetes. Knowledge can empower you, making the condition feel more manageable and reducing anxiety.
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Emotional Support:
- Therapist Search: Continue your search for a therapist who specializes in chronic illness or diabetes management. Consider platforms that provide specialized directories, or reach out to diabetes support groups for recommendations.
- Support Groups: Join diabetes support networks, either in-person or online (like Diabetes Online Community). Sharing experiences with others who understand can reduce feelings of isolation.
- Mindfulness and Self-Care: Engage in mindfulness practices such as meditation, yoga, or journaling to help manage stress and accept your new situation.
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Addressing Social Concerns:
- Communicate: When you're ready, consider opening up to your friends and family about your diagnosis. Sharing your journey can foster understanding and empathy.
- Set Boundaries: Don’t feel pressured to discuss your health if you’re not comfortable. It's okay to share only what you want.
Summary
Take things one day at a time as you navigate this new chapter. Prioritize your diabetes management, find the right emotional support, and focus on building a supportive network. Remember that having type 1 diabetes is just one aspect of who you are and doesn't define your overall identity. If you need more specific resources or further information, feel free to ask.
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7 Months Old) - **Weight:** 9 kg (good growth rate in spite of condition) - **Jaundice:** Continues to be present (yellow skin) - **Stools:** Remain pale/clay-colored - **Development:** Achieving appropriate milestones - **Energy:** Appears to have a good energy level - **Feeding:** Normal appetite --- ## QUESTIONS FOR r/AskDocs We have been informed this is **Type 2 Abernethy malformation** (portal vein present). **Three treatment avenues have been proposed:** ### Option 1: **Endovascular Coil Embolization** (minimally invasive approach) - A catheter is inserted via the leg vein to access the shunt and deploy coils/plugs to close the abnormal vessels - Pros: No surgical incision, minimal discomfort, short hospital stay (2-4 days), no scars, enhanced safety - Duration: 1-2 hours - Recovery: 2-4 weeks for jaundice to show improvement ### Option 2: **Open Surgical Intervention** - An incision in the abdomen to ligate abnormal vessels and redirect blood to the liver - Pros: Direct visualization, effective results - Cons: Surgical scar, longer recovery time (7-14 days in hospital) - Duration: 2-4 hours ### Option 3: **Liver Transplantation** - We have been advised this is not necessary as the portal vein is functional and liver health is improving. --- ## SPECIFIC QUESTIONS TO CONSIDER: 1. **With a functional portal vein (6.1 mm) and improving liver function (ALT normalized), is it advisable to pursue endovascular closure as the preferred treatment?** 2. **Despite ALT levels improving, the bilirubin remains consistently high (242). Should this be a cause for concern? Is there a prospect for it to normalize post shunt closure?** 3. **Are the hemangiomas/nodules (11.6×20.7 mm) linked to the shunt? Will they likely resolve following shunt repair?** 4. **How urgent is the proposed intervention? Is immediate action required, or is there flexibility to wait a few months?** 5. **What complications should we be vigilant for during the waiting period?** 6. **Regarding endovascular closure - what is the average success rate for infants aged 7 months? Are there concerns regarding the shunt size (9.9 mm)?** 7. **The measurement of the portal vein has shown improvement from 6.1 mm to 3.9 mm; should this be perceived as a positive sign or a reason for concern?** 8. **Are there special directives (diet modifications, medications) we should consider while awaiting the procedure?** 9. **Post-procedure, how long should we expect it might take for:** - Normalization of bilirubin levels? - Return of stool color to normal? - Resolution of jaundice? - Regression of hemangiomas? 10. **Can you recommend any specialized centers for pediatric Abernethy malformation treatments? We are located in Uzbekistan but are prepared to travel (to Turkey, Russia, South Korea, etc.)** --- ## ADDITIONAL INFORMATION - No family history of hepatic diseases - Pregnancy and delivery were normal - No additional congenital defects identified - Immunizations up to date - No history of bleeding disorders - No signs indicative of encephalopathy - Child is alert and engaged --- **I can supply actual MSCT images and comprehensive lab reports if they would be of assistance.** We sincerely appreciate any insights you can provide. We are striving to make the most informed decision regarding our daughter’s care and highly value expert medical opinions. **TL;DR:** 7-month-old diagnosed with Abernethy Type 2 malformation (9.9 mm portocaval shunt, patent portal vein). Liver functionality is improving (normalized ALT) while bilirubin remains elevated (242). Evaluating options between endovascular coil embolization and open surgery. Seeking expert advice on optimal treatment strategy and timing.