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Ten-Day Health Decline of My Daughter

9/11/2025, 3:20:40 AMMale25-34

I would like to share a recap of my daughter’s experiences over the last ten days. We are currently facing challenges, and any insights or recommendations would be greatly appreciated. **Overview of the Last 10 Days – 14-Year-Old** **Background Information** • She had been in good health previously and did not have any documented significant medical or psychological issues, was not involved with drugs, and had a clean family history regarding mental health. Academically and socially, she was performing well. **Emerging Symptoms (Days 1-3)** • She suddenly began waking up after just 2-3 hours of sleep and was unable to fall back asleep. • Experienced moments of anxiety and panic, during which she displayed early signs of catatonia, becoming unresponsive and immobile. • She started feeling detached from her surroundings, experiencing derealization. • Reported discomfort in her ears, which persisted throughout these episodes but was not accompanied by pain. **Evolution of Symptoms (Days 4-7)** • Symptoms intensified, leading to daily occurrences of episodes. • Typical characteristics of these episodes included: confusion, disorientation, emotional turmoil, panic, an unusual perception of time, repetitive sudden movements, and transient numbness or tingling on the left side of her body, along with the ear discomfort. • These episodes tended to be triggered by screens, loud sounds, and bright lights directed at her eyes. • She displayed a complete lack of appetite and thirst. **Crisis Phase (Days 8-9)** • Suffered from an overwhelming panic attack. • Shortly after, she experienced a psychotic break during which she did not recognize her parents and was under the impression they were trying to harm her, experiencing paranoid delusions that were confined to this particular instance. • There was a notable shift in her behavior, although she regressed back to her usual episode patterns afterwards. **Medical Evaluations** • CT scan: Results appeared normal. • MRI of the brain: Results were normal. • Lumbar puncture to assess spinal fluid: Results were normal. • EEG: Reported as abnormal, indicating a slowing in the right hemisphere, possibly suggesting localized brain dysfunction. **Reactions to Medications** • She had negative responses to: Ativan (lorazepam), Gravol (dimenhydrinate), Trazodone, and Lorazepam, with particularly severe reactions noted. **Current Condition (Day 10)** • She continues to display significant psychiatric and neurological symptoms. • Her catatonic episodes have increased: initially manifested as panic-induced freezing, but have escalated to a three-minute period of total catatonia today. • Persistent symptoms encompass confusion, panic, distorted time perception, and sudden movements during episodes. • The psychotic break was an isolated incident with temporary paranoid delusions. • Neurological concerns: abnormal EEG results, left-side numbness or tingling during episodes, and ongoing ear discomfort. • Environmental factors such as screens, loud sounds, and bright lights serve as triggers. • Her sensitivity to medication adds another layer of complexity to her treatment management. **Noteworthy Aspects** • Symptoms emerged suddenly over a few days. • Primarily marked by neurological and catatonic episodes intertwined with psychiatric components. • Experienced a singular psychotic break involving paranoid delusions (not ongoing). • EEG indicated abnormalities (slowing on the right) even though CT, MRI, and spinal tests were normal. • Increasing catatonia and a heightened intolerance to medication. • There is an immediate need for collaboration between neurology, psychiatry, and immunology specialists.

Multiple SclerosisLupusCrohn's Disease

Answers (1)

Cony

9/11/2025, 3:21:00 AM

OpenHealth AI

I'm truly sorry to hear about your daughter's health challenges over the past ten days. It's understandable to feel overwhelmed by such a sudden and intense series of symptoms. Based on the information you’ve shared, her situation seems complex, necessitating careful attention from multiple specialists. Let's unpack this together and outline some immediate considerations.

Main Points:

  • Your daughter's symptoms, including disturbances in sleep, anxiety, confusion, and episodes of catatonia, are concerning and require interdisciplinary evaluation.
  • The abnormal EEG results alongside normal imaging suggest additional neurological assessment may be necessary.
  • Sensitivity to medications poses a significant challenge and highlights the importance of close monitoring and collaboration with healthcare providers.

Explanation:

The symptoms you described can stem from a variety of causes, including stress, neurological issues, or psychological conditions. The EEG results hint at a potential localized dysfunction in her brain's right hemisphere, which might explain some of her symptoms. Given her severe response to medications, it’s crucial to think non-pharmacologically while a deeper understanding is sought.

Prioritized Next Steps:

  1. Seek Immediate Support: It may be essential to revisit her healthcare team urgently, particularly involving specialists in neurology and psychiatry. Given her current mental state and medical history, ensuring that she has regular support and monitoring is vital.

  2. Create a Safe Environment: Reduce exposure to known triggers like bright screens, loud noises, and intense lights, which appear to exacerbate her symptoms. A quiet, calming space can help manage anxiety and minimize episodes.

  3. Daily Monitoring: Implement a symptom diary, noting the duration and nature of each episode, potential triggers, and any dietary habits. This can help healthcare providers make more informed decisions about her diagnosis and treatment moving forward.

  4. Explore Non-Medication Approaches: Consider integrating relaxation techniques such as mindfulness, gentle yoga, or breathing exercises to help ground her during episodes. Cognitive Behavioral Therapy (CBT) could also be beneficial if initiated by a trained professional.

  5. Nutritional Support: Encourage small, frequent meals and hydration, even if her appetite is low. Simple, appealing foods can make a difference, particularly with her current lack of appetite.

  6. Follow-Up Evaluations: Since the EEG results indicate abnormalities, a follow-up EEG or additional neuropsychological tests may be warranted to provide more insights into her neurological health.

I empathize with how difficult this situation must be for your daughter and for you as her parent. Ensuring she has a strong support system and access to specialists can make a significant positive impact on her recovery. Please feel free to share further updates or ask additional questions as you navigate this challenging time.

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