Understanding My Mysterious Episodes: Are They Migraines?
Is it Hemiplegic or Complicated Migraines, or perhaps something entirely different? I am a 52-year-old woman weighing 163 pounds, and I am not currently taking any medication. Since December 7th, 2023, I've been experiencing episodes that occur 2 to 3 times weekly, sometimes with more intensity than others, and they can last anywhere from an hour to several days. These episodes often make me feel as though I'm having a stroke, accompanied by various sensory anomalies. I experience dizziness, light-headedness, tingling sensations in my head, face, hands, and feet, weakness, and at times, paralysis. This profound weakness affects my ability to walk and stand; I often feel like I might topple over. My coordination is severely impacted, and I perceive my movements as being delayed, as if I am operating in slow motion. Nausea is frequent but varies in intensity, and I have faced episodes of aphasia on a few occasions. Medical professionals have ruled out a stroke due to the absence of visible damage, and while they hesitate to label my condition as a Transient Ischemic Attack (TIA), they continue prescribing migraine medications without confirming the diagnosis when I inquire. Interestingly, I do not experience headache pain, nor do I have visual disturbances or heightened sensitivity to light and sound during these incidents. I have consulted numerous neurologists and visited multiple hospitals, undergoing several tests that have returned negative results. The medications tested so far have either been ineffective or led to adverse reactions. I've maintained a detailed journal documenting my symptoms and food intake, and I’ve also met with a nutritionist. However, I have yet to identify any specific triggers for my symptoms. I would greatly appreciate any insights or theories regarding my situation.
Answers (1)
9/9/2025, 10:30:55 PM
OpenHealth AI
It's understandable that you're feeling frustrated and concerned about your episodes, especially given their complex nature and the lack of clarity from medical professionals. While your symptoms share some features with migraines, particularly complicated or hemiplegic migraines, it's crucial to consider other potential causes due to your diverse symptoms and healthcare history.
Understanding Your Symptoms:
The episodes you're experiencing, including dizziness, tingling, weakness, coordination issues, and nausea, can indeed resemble symptoms of migraine without headache or could suggest other underlying neurological conditions. Since your symptoms have led to significant functional impact, it's commendable that you’ve kept a detailed symptom and food diary, as this can be a vital tool in identifying patterns or triggers.
Prioritized Next Steps:
-
Continue Symptom Journaling: Maintain your current practice of documenting your episodes, noting the duration, intensity, associated sensations, and any potential triggers, including food, stress, or activities prior to the onset.
-
Explore Non-Migraine Neurological Conditions: Given the variety of symptoms and the absence of headache, consider discussing with your neurologist the possibility of ruling out conditions like multiple sclerosis or other neurological disorders. Tests like MRI scans or cerebrospinal fluid analysis may provide further insights.
-
Consult a Headache Specialist: If not done already, seek a consultation with a specialist who focuses specifically on headaches and migraines. They may offer a different perspective or advanced diagnostic options.
-
Assess and Monitor Other Factors: While dietary factors may not yet have surfaced as triggers, consider evaluating stress levels, sleep quality, hormonal fluctuations (especially related to menopause), and hydration, as these can significantly impact neurological symptoms.
-
Cognitive Behavioral Therapy (CBT): Investigate the potential benefits of CBT or other therapeutic approaches that can help you manage the anxiety and stress that may accompany these episodes.
-
Follow-up on Medication Side Effects: If past medications have resulted in adverse effects, continue to communicate this with your healthcare team. They might be able to adjust dosages or explore alternative treatment paths to strike a balance between relieving symptoms and minimizing side effects.
Conclusion:
While your journey has been challenging, continuing to seek clarity through detailed self-monitoring, engaging with specialists, and exploring holistic approaches can help lead you toward a better understanding of your condition. Keep advocating for your health, and don't hesitate to seek further opinions if you feel it's necessary. If there's anything else you'd like to discuss or clarify, I'm here to help.
Related Questions
Prolonged Miscarriage: Over Four Weeks In
A 35-year-old woman managing Type 1 diabetes with an insulin pump has been experiencing a challenging period marked by a recent miscarriage. This occurred just shy of ten weeks into the pregnancy, following an extremely positive pregnancy test, although medical confirmation had not yet been obtained. The physical symptoms were quite severe, with substantial bleeding that included large tissue clumps and blood clots observed during a shower. The size of these clots was rather alarming, comparable to a fist, causing blockage in the drain. Initially, for the first three to four days, there was heavy bleeding, requiring three pads daily. After that, the situation gradually improved, and around a week ago, she reached a point where only a pantyliner might suffice. Despite the reduction, bleeding persisted intermittently, mainly noticeable upon wiping, with instances of no blood at all, leading to inconsistencies in her experience. Recently, she has been feeling bloated and has noticed a resurgence in bleeding, necessitating the use of pads twice daily. Additionally, she has been experiencing light cramps and has developed acne. A subsequent pregnancy test revealed continued positive results. Now, with over four weeks of bleeding, she reached out to her physician’s office. However, the response was not one of concern, suggesting that she could schedule a visit at her convenience if she felt the need. The cost of visiting a doctor or urgent care deters her from seeking immediate professional help unless absolutely warranted. Overall, she reports feeling generally well, but is seeking advice from others. Is there cause for alarm, or is it feasible to let things unfold naturally? Could this miscarriage have evolved into her menstrual cycle instead? Additionally, it's worth noting that she occasionally finds small blood clots on the toilet paper after wiping. Since the onset of this situation, she has abstained from sexual intercourse.
Concerns After Gallbladder Surgery (Three Weeks Post-Op) - Is It an Infection?
Profile: - Age: 35 - Gender: Female - Height: 5 feet 4 inches - Weight: 160 pounds - Ethnicity: Asian Duration of Symptoms: Last Three Weeks Location: United States Recent Medical History: Nearly three weeks have passed since my gallbladder removal surgery. Over the last few days, I've noticed a small amount of unclear fluid coming from the incision. I just observed what seems to be pus oozing from the surgical site. Although there is slight tenderness when I move or touch the area, it isn't painful. Thankfully, I haven’t experienced any fever or chills, and there’s no unpleasant odor emanating from the wound. Should I continue to clean it with soap and water, or is it necessary for me to visit the emergency room for further evaluation?
Seeking Clarity on My Spinal Tap Results: A Bit Anxious
I am a 31-year-old woman experiencing a continuous headache for the past four months, accompanied by feelings of nausea and exhaustion. I take Lexapro each day to manage my mental health. I have a history of migraines and headaches, but this recent episode doesn't align with my previous experiences. Here are the findings from my spinal tap: - **Opening Pressure of Cerebrospinal Fluid (CSF)**: 9 cm H₂O - **Presence of Red Blood Cells (RBCs) in CSF**: 2,570 - **Total Protein Level in CSF**: 107 mg/dL - **ACE Level in CSF**: 4.4 - **Other Tests on CSF**: Results were normal. - **Brain MRI and MR Venography**: Both tests yielded normal results. - **Blood Test Results**: Normal results were obtained. Given these results, I'm feeling a bit uneasy and I’m hoping to better understand what they might indicate about my health.
Navigating Ear Infections While Traveling in Thailand
**Age:** 23 **Height:** 6'3" **Weight:** 88 kg **Medication Taken:** 1000mg Bactoclav - Amoxicillin with Potassium Clavulanate, along with pain relief and antihistamines. **Summary:** I’m hesitant to consult a doctor overseas only to receive a prescription for the same antibiotics available at a local pharmacy for a fraction of the price. What strategies can I employ to effectively manage this persistent ear infection? Am I being too hasty in my expectations? I have a long history of ear infections, often triggered by exposure to water or any activity impacting my ears. I regularly use a specialized oil before showering to prevent water from entering my ears. While backpacking in Thailand, I've developed a particularly severe ear infection over the last several days. Initially, a course of 500mg amoxicillin seemed effective, but significantly, just yesterday my condition took a downturn, shifting from nearly healed to painfully inflamed. Now, my ear is not only swollen but also incredibly sore. In an attempt to combat this, I’ve been taking 1000mg Bactoclav - Amoxicillin and Potassium Clavulanate, having consumed seven tablets in the last two days; unfortunately, there's been no noticeable improvement. I’m reluctant to seek medical attention, fearing I would be prescribed the same medication I could acquire from a pharmacy, albeit at a much higher cost. Yet, I’m also starting to question the efficacy of the pharmacy’s medication. I’ve only recently begun the stronger treatment since my symptoms returned. Any advice would be greatly valued! In addition, I’d like to share that just a week into my four-month journey, I feel as though my ongoing ear issues are gradually dominating my life. I am incredibly grateful for this travel opportunity, and while my health isn’t at risk in a serious way, these ear complications are becoming quite overwhelming. Could there be surgical options available? Might there be an underlying health concern that I’m unaware of? It doesn’t seem normal to be plagued by constant ringing, popping sounds, and wax buildup in my ears. Moreover, it feels excessive to have to apply products in my ears every time I shower.
Navigating Health Concerns: A Young Woman's Plight with Chronic Migraines and Stress
To summarize a very complex situation, last spring in 2025 was exceptionally challenging for me. I faced overwhelming stressors, including family deaths, eviction, and my parents splitting up. This turmoil led to chest pains so severe that I had to visit the emergency room because I couldn’t breathe deeply without experiencing intense pain. The doctors attributed the issue to psychological causes, but I continued to suffer from pain and instances of fainting due to the stress, which worsened as yet another family member was diagnosed with cancer. My psychiatrist suggested medication, and I started on Lexapro and Concerta, which improved my condition somewhat, even though I remained fatigued and felt like I was merely surviving. By the end of August, I contracted a severe case of bronchitis that caused me to experience fevers even while doing laundry. It seemed I was verging on pneumonia, prompting the prescription of prednisone and other steroid medications. Thankfully, I began to recover quickly, but soon after, I was plagued by persistent headaches and an overwhelming sense of paranoia that someone was out to get me. After another emergency room visit, the physicians informed me that, although my symptoms—such as fever, intense pain, night sweats, sensitivity to light, ear pressure, and a stiff neck—were alarming, they were likely just severe migraines that should eventually fade. Unfortunately, they didn’t. I returned to urgent care for further treatment, received antibiotics, and was advised to consult a neurologist. While the antibiotics provided some relief, my symptoms intensified. My primary care physician eventually prescribed sumatriptan, a medication intended to alleviate migraine pain, but instead, it exacerbated the headache. For the next two to four weeks, I endured an exceptionally difficult time, facing numerous strange symptoms that felt worthy of immediate attention, yet each visit concluded with a migraine diagnosis and a waiting period for my neurology appointment. My frustrations pushed me to contemplate risky alternatives for relief, but I resisted, feeling utterly hopeless and unable to cope. I sought an ear, nose, and throat specialist to rule out sinus issues, which turned out to be fine. A painful spot under my jaw led me to suspect nerve involvement, and I visited the emergency room again due to experiencing stroke-like symptoms (including mild left arm weakness, extreme headache, and minor speech issues). Sadly, I was again told it was merely a headache, and the IV medications were ineffective. During my annual check-up, my primary care provider was unfamiliar with my ongoing issues but discovered an enlarged lymph node in the lower left side of my neck and a cyst on my thymus after conducting a soft tissue scan. She reassured me that there was no need for concern and suggested waiting for my neurology visit or getting my eyesight checked. Despite my yellower complexion, increasing stiffness, and joint pain, I accepted her recommendation. While I mentally adapted to the chronic pain, which was always present, it affected my ability to concentrate and engage in daily life. I tried consuming plenty of lemon juice and engaging in lymphatic drainage massages, which provided transient relief and halted my yellowing skin. Now, in the present, I've noticed a peculiar, raised red bump on the side of my foot. It’s hard, tender, and smaller than a dime, without any accompanying rash. It has persisted for a couple of weeks without causing pain while walking. Additionally, more lymph nodes in my neck have become swollen, I have experienced difficulty swallowing, and I occasionally choke on air. My lungs feel heavier with a diminished sense of smell, though I don't have the thick mucus typical of a cold. The headaches, however, are reemerging, sharper than before, which is a concerning development. Throughout all of this, my blood pressure has remained within a low yet stable range, and my blood tests and CT scans have shown no significant issues. I haven’t consumed anything excessively that might raise concern, including food or drugs. Am I truly facing a serious health crisis? Should I prioritize getting another appointment, or do I need to rush to urgent care? I'm scheduled to see the neurologist in about a month, and I'm wondering if I should ask my primary care provider for some preliminary tests like blood work or an MRI beforehand. If so, what specific questions should I prepare for my neurology visit? I believe the pain has a genuine physical basis, although my anxiety definitely amplifies the experience.