OpenHealth Q&A

Get answered by medical professionals

Reflections on Postherpetic Neuralgia After 15 Years

9/8/2025, 7:00:24 PMMale25-34

(33M) For some time now, I've been trying to make sense of my situation. I have been experiencing sharp, dull, and intense burning sensations starting from my lower back on the left side, radiating to my hip and buttocks, occasionally extending to my groin or leg. These episodes have been intermittent for over two years and seem to correspond precisely with the location of my shingles rash and pain from 15 years ago. I'm currently in search of a neurologist nearby, but I'm also wondering if this is a line of inquiry worth exploring further. Thank you for your insights!

ArthritisMultiple SclerosisFibromyalgia

Answers (1)

Cony

9/8/2025, 7:01:07 PM

OpenHealth AI

It sounds like you are experiencing symptoms consistent with postherpetic neuralgia (PHN), which can occur after a shingles outbreak and cause ongoing pain in the areas where the rash and pain were previously located. This can present as burning, sharp, or dull sensations and might radiate down your leg, as you’ve described. It's understandable that the persistence of these symptoms after 15 years leaves you seeking clarification and potential relief.

Explanation:

Postherpetic neuralgia is a complication of shingles (herpes zoster) and can affect individuals long after the initial infection has resolved. This condition occurs due to nerve damage caused by the virus, leading to chronic pain even when the visible rash is no longer present. Other conditions, like arthritis or nerve issues, can also contribute to similar symptoms, but your history aligns closely with PHN.

Next Steps:

  1. Neurologist Consultation: Continue your search for a neurologist. They can provide a comprehensive evaluation of your symptoms and may suggest pain management strategies tailored specifically for PHN. Focus on finding one who has experience in treating shingles-related nerve pain.

  2. Symptom Diary: Keep a daily record of your symptoms, including their intensity, duration, and any potential triggers. This will help your neurologist understand your pain patterns and inform treatment options.

  3. Self-Care Practices: While waiting for your appointment, you might consider:

    • Topical Treatments: Over-the-counter creams containing capsaicin or lidocaine can provide localized pain relief.
    • Pain Relief: Over-the-counter pain medications like ibuprofen or acetaminophen can help manage discomfort, but consult the guidelines for proper use.
    • Gentle Stretching and Physical Activity: Low-impact exercises, guided by what's comfortable for you, can help maintain blood flow and reduce stiffness.
  4. Educate Yourself: Research reliable resources (like the CDC or Mayo Clinic) regarding postherpetic neuralgia to better understand your condition, which can ease anxiety and foster an informed discussion with your doctor.

  5. Support Networks: Consider joining support groups for chronic pain or PHN, either online or in-person. Sharing experiences with others who understand can provide emotional support and practical tips.

It’s essential to take your symptoms seriously, and seeking specialized medical advice is a wise course of action. Remember, you are taking proactive steps toward better management of your condition. Let me know if you need more help or specific information!

Related Questions

Understanding White Edges on Healing Cuts

As a 21-year-old female, I experienced two cuts some time ago that seemed to heal, but now I notice faint outlines where the cuts once were. Although these marks are quite subtle, I’ve never encountered this before and am left wondering if my healing process has fully completed or if there may have been an issue along the way. I can't recall the specific duration of the healing process, leaving me unsure if I took a typical amount of time to heal or if there’s something unusual happening with my body. I can't share photos here, but I'm open to sending them privately for further insights.

ArthritisLupusFibromyalgia
Male25-34
24 minutes ago

Seeking Guidance and Support!

Hello everyone! I'm a 17-year-old girl, standing at 5'4" and weighing around 215 lbs. I’m currently prescribed propranolol, vyvanse, duloxetine, loratadine, and topiramate; plus, I'm a non-smoker. For quite some time, specifically since I was in the third grade (now I’m in my final year of high school), I’ve experienced various mysterious health issues. The right side of my body tends to tense up or spasm, and my left eye often drifts upward. Additionally, I frequently experience dizziness and have trouble maintaining my concentration. We’ve received several different diagnoses throughout the years, which include paroxysmal dyskinesia, dystonia, seizures, and even multiple sclerosis; however, none have been definitive. Currently, they suggest I might be having partial complex seizures, but EEG tests have consistently returned normal results. Since around 2018, there’s been a stable gliosis noted in my cerebral peduncle. As for my other health conditions, I have been diagnosed with dysautonomia, autism, ADHD, hypermobility spectrum disorder, and fibromyalgia. I visited the Mayo Clinic specifically for assessments related to HSD and fibromyalgia, and underwent a POTS test that yielded some perplexing results. My cardiologist at CHOA suspects there may have been an error in that testing, leading him to refer me to another specialist. There seems to be a pattern where, every year during the spring (March to May), I face some sort of health issue. In ninth grade, my knee would pop in and out of place, during tenth grade, I lost vision in my right eye (resulting in limited visibility, now reduced to colorful blobs), and in eleventh grade, I experienced a significant partial hearing loss in my left ear, which is now at 40%. At just 17, I’ve seen a multitude of doctors, but none have been able to identify the root cause of my problems. We've consulted various places, including the Mayo Clinic, CHOA, NEGA, and private practices, as well as multiple mental health services, especially when doctors presumed my symptoms were psychosomatic rather than physical. They often preferred sending me for repetitive evaluations instead of pursuing further medical tests. I’ve been contemplating reaching out on Reddit for a while, and I finally expressed this to my mother—Reddit seems to be a treasure trove of valuable information! If anyone thinks that my test results might be of use, I’m happy to share them. Thank you very much for taking the time to read this; any guidance or support would mean the world to me!

Multiple SclerosisLupusFibromyalgia
Male25-34
44 minutes ago

Understanding Sudden Migraines: Is It Time for a Doctor's Visit?

A 25-year-old man who smokes marijuana daily reports no significant health concerns beyond mildly elevated LDL levels in his blood tests. He appreciates your patience with his detailed account. Five days ago, during a back workout, he strained to hold a heavy weight on a cable machine for about five seconds. This effort triggered an intense headache that radiated from the front of his head to the base of his neck. The severity and sudden onset of the pain led him to worry that he might have ruptured a blood vessel in his brain. This experience was entirely unexpected for him, as he had never encountered anything like it before, prompting him to take a break for the remainder of the day. Three days later, while he was performing a leg workout, a similar scenario unfolded. He exerted only moderate effort, but as he neared the end of his set of ten repetitions, the headache returned, compelling him to stop due to the rising pain. It felt akin to a tension headache, with additional discomfort in the muscles of his neck. Another three days passed, and while preparing to engage in sexual activity with his partner, he noticed the same headache re-emerging as he positioned himself on top. Despite not engaging in any rapid or strenuous movements, the mere act of being on top induced an overwhelming migraine. He began to worry about the possibility of having sustained a head injury or whether he should simply refrain from intense physical activities for a while. Should this situation be evaluated by a healthcare professional, or does it require an emergency room visit? Although he is eager to return to his gym routine, he is understandably concerned about the risk of a serious condition like an aneurysm occurring while exercising. He welcomes any insights or advice on this matter.

FibromyalgiaCrohn's DiseaseEndocrinology
Male25-34
44 minutes ago

Experiencing Discomfort in My Neck and Head?

Age: 29, Gender: Female, Height: 5'5", Weight: 160 lbs. No current medications. No significant medical background except for certain diagnostic tests mentioned below. Approximately a year ago, I began experiencing discomfort on the left side of my neck, directly behind my ear, which extends to the area near my lymph node. I have noted that my lymph nodes are swollen, leading me to undergo several tests over the last two years, including an MRI, three ultrasounds, and a CT scan with contrast. Thankfully, they have ruled out cancer (although a biopsy was not performed) and concluded that the enlargement is likely due to viral flare-ups. (This situation is particularly concerning for me as my sister passed away from an aneurysm, and that led to the MRI recommendation, which thankfully revealed no signs of an aneurysm.) Recently, in addition to the persistent neck pain, I've started to feel a pulsing pressure in my ears whenever I rise from a seated position after a while. It resembles a heartbeat, and at times, this sensation spreads across my head, causing numbness and dizziness. The only potential injury that stands out in my memory is from about three years ago. While at an indoor skating rink, I attempted to keep pace with my hockey-playing friends and unfortunately fell backward, with the impact causing the back of my helmet to hit the ice. Although I felt dizzy afterward, I did not seek medical attention. For two weeks post-incident, I found myself needing to support the back of my head with my hand while lying down, as the pain in my neck became quite unbearable. Could this be indicative of a spinal injury or something similar? I am led to believe that the tests I have undergone would have detected such an issue. I’m reaching out here to gather your thoughts on my situation.

ArthritisCrohn's DiseaseCOPD
Male25-34
1 hour ago

Overwhelming Anxiety About Brain-Eating Amoebas – Seeking Guidance

Hello everyone, I'm a 23-year-old male reaching out for support. Earlier today, while using a spray bottle filled with tap water that I refill periodically, I decided to give myself a refreshing mist to wake up. Unfortunately, I accidentally sprayed my face, primarily affecting my eye and possibly getting some water into my nose and throat. Since this incident, I have been consumed with the anxiety that I might have exposed myself to a brain-eating amoeba. Despite only a light spray and knowing that my water is of high quality and treated with chlorine, I can't shake the fear that somehow my water could be contaminated or that the amoeba could have developed in the bottle itself. My mind keeps spiraling, and I can’t focus on anything else. I would deeply appreciate any advice or reassurance to help alleviate this concern. Thank you!

ArthritisMultiple SclerosisInternal Medicine
Male25-34
1 hour ago