Unusual Audible Sensation in the Cervical Area
I am a 20-year-old female diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) and dysautonomia. For several years, I have experienced a peculiar sensation and sound that seems to emanate from my upper spine whenever I walk. This morning, the sensation occurred again, and it was quite unsettling. With every step I take, as my foot makes contact with the ground, I perceive what can only be described as a hissing or static noise resonating from the back of my neck down through my spine—an experience that’s exclusively audible to me. It’s challenging to determine whether it’s purely a sound, a sensation, or perhaps a combination of both, but it feels localized around the base of my skull. After approximately five to ten minutes of walking, I noticed some tenderness in the same region, but it's possible that this discomfort is unrelated. As far as I've observed, there's no consistent trigger for this occurrence, except that it always manifests while I am walking, synchronized with each step I take. While I wouldn’t consider it alarming, the experience is bothersome enough for me to seek clarity on whether it warrants a consultation with my family physician or if it’s merely a quirky response from my body.
Answers (1)
9/6/2025, 12:02:43 AM
OpenHealth AI
It’s understandable to feel concerned about an unusual sensation and noise emanating from your neck while walking, especially considering your diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and dysautonomia. While this sensation may not seem alarming, it’s always wise to pay attention to new or persistent changes in your body.
Explanation
The combination of hEDS and dysautonomia can lead to various musculoskeletal and neuromuscular symptoms. The hissing or static-like noise you describe could stem from:
- Joint or Ligament Movement: The cervical spine has a lot of motion due to its structure. The sound might be related to the movement of joints or ligaments as you walk.
- Nerve Sensitivity: hEDS can make nerves more sensitive, which may cause unusual sounds or sensations.
- Postural Changes: If there are any changes in your posture or alignment while walking, it could contribute to sensations in the cervical region.
Next Steps
-
Monitor Symptoms:
- Keep a detailed log of when the sensations occur, how long they last, and any associated symptoms (like tenderness). Note any activities that worsen or improve the sensation.
-
Gentle Movement and Stretching:
- Incorporate gentle neck stretches and mobility exercises into your daily routine. This can help alleviate tension and improve mobility without overstressing your joints.
-
Evaluate Your Posture:
- Pay attention to your posture while walking and standing. Good posture can reduce strain and potentially lessen any unusual sensations.
-
Hydration and Nutrition:
- Ensure you’re adequately hydrated and consume a balanced diet rich in nutrients that support joint and nerve health, such as Omega-3 fatty acids.
-
Relaxation Techniques:
- Consider practices such as mindfulness or gentle yoga that may help you manage discomfort and reduce sensitivity.
While these steps may help manage symptoms, if the sensation persists, worsens, or if you begin to experience new symptoms, it would be prudent to follow up with your family physician or a specialist familiar with hEDS. This will allow for a thorough evaluation to rule out any serious issues and to adjust your management plan as needed.
Related Questions
Experiencing Occasional Hematuria: Seeking Guidance
Greetings, medical professionals. I appreciate your assistance with the following situation. **Patient Overview:** - **Age:** 47 - **Gender:** Male - **Height:** 6 feet - **Weight:** 202 pounds **Symptoms Overview:** Approximately three months ago, I began to observe small traces of blood in my urine. It's a minimal amount, usually just a couple of drops occurring at the end of urination. I do not suffer from any pain, fever, chills, or urinary difficulties. Initially, I suspected that this could be linked to kidney stones or exercise-induced hematuria, as I maintain a rigorous exercise routine spanning two hours daily, seven days a week. My workouts alternate between strength training 3-4 times a week and cardio exercises, including rowing, treadmill use, the elliptical, stair climbing, and jump rope. After several weeks, I also observed tiny tissue-like fragments in my urine, prompting me to consult a doctor, as I suspected a urinary tract infection. Although I have an enlarged prostate, my physician considered it a benign issue, attributing the swelling to the potential chain reaction of a UTI leading to bladder infection and subsequently causing prostate inflammation. **Diagnostic Tests and Outcomes:** I underwent a comprehensive metabolic panel, which included tests for glucose, BUN, creatinine, and various electrolytes. All results fell within normal ranges, with the exception of a low BUN/creatinine ratio (8). Additionally, I received a Creatine Kinase (CPK) test, which returned normal results. A complete blood count (CBC) with differential was conducted, showing all parameters, including WBC, RBC, and hemoglobin, to be normal. Urinalysis reflected negative findings for GLU, BLO, NIT, and LEU. However, it indicated a small amount of bilirubin, a ketone level of 15, a specific gravity of 1.025, a pH of 5.5, and a protein level at 30. Uric acid levels were 8.1, within normal limits, though an inflammatory marker was mildly elevated. A sedimentation rate (Westergren) displayed a slight elevation at 19 (normal range is up to 15). A CT scan of the abdomen and pelvis with contrast yielded several findings: - **Lung Bases:** A few small pulmonary micronodules were noted, but otherwise clear. - **Liver, Spleen, and Pancreas:** All appeared normal without lesions. - **Kidneys:** Normal with no stones or masses. - **GI Tract:** The stomach was mildly distended, but otherwise normal with stool presence noted in the colon. - **Pelvis and Vascular Structures:** Solid organs and vessels appeared normal. - **Other Findings:** Prominent inguinal lymph nodes were potentially reactive, alongside a small left inguinal hernia. **Follow-Up Treatment:** Following these evaluations, my physician prescribed sulfamethoxazole for a duration of 28 days. I adhered to the regimen fully, and while undergoing treatment, all symptoms subsided completely. However, this occurred about a month ago, concluding in late December. **Current Situation:** This evening, after my workout, I noticed the return of blood traces in my urine. While I do not experience pain, I have difficulty with bowel movements, feeling persistently constipated regardless of food intake. This change coincided with a mild tearing sensation during exercise on the adductor machine. Additionally, I have developed a reddish rash on both arms, which had resolved during the antibiotic treatment but has now reappeared. Previously, this rash was effectively treated with prednisone, leaving me unsure if this is connected to my earlier symptoms. **Concerns:** I worry that standard medical tests might overlook a significant issue affecting my prostate, colon, or urinary system. My insurance policy does not cover colonoscopy or prostate evaluation, and I have been advised to consider these procedures, though they would cost nearly $7,000 out of pocket. While I understand the necessity of these assessments if needed, I prefer to seek a second opinion before committing to such expenses. It's important to note that there is a family history of cancer, primarily lung cancer. I welcome any advice or insight into my case and will provide any additional details you may require.
Gene Testing Outcomes Suggest Elevated Risk for MPN
A 27-year-old male of Irish heritage recently conducted a commercial gene analysis, and here are the findings: - **Rs12340895 (C;G)** Result Interpretation: "Doubles the likelihood of developing V617F-positive MPN." - **Rs3780374 (A;G)** Result Interpretation: "Significantly raises the probability of V617F-positive MPN manifestation." Based on my research, it appears that having these two genetic markers indicates a strong predisposition to this particular form of cancer. What steps should I consider taking to either prepare for or potentially postpone the onset of this condition? Should I discuss these findings with my healthcare provider? My studies suggest there isn’t a definitive cure for this condition.
Understanding Preseptal Cellulitis in Children
Hello everyone. I'm reaching out for assistance. My 6-year-old son recently experienced a concerning issue. He woke up on Friday with significant swelling around his eye, nearly closing it entirely. We quickly took him to the emergency room, where doctors diagnosed him with preseptal cellulitis. They prescribed antibiotics, specifically cephalosporin, as part of his treatment. However, after approximately 30 hours on the medication, I’ve noticed that his condition seems to have deteriorated. We’ve been applying warm compresses, which help reduce some swelling temporarily, but he now has a noticeable bump right in the center of the affected area. This morning, he woke up again with his eye completely shut. I’m uncertain whether I should return to the ER for further evaluation. I appreciate any advice or insights you can provide. Thank you!
Unexpected Head Pain During Dance Moves
This may seem humorous, yet I'm genuinely interested in uncovering the cause of this peculiar experience. I’m a 34-year-old female. A few months back, hoping to elevate my mood and get my body moving away from the grip of depression, I decided to play some music and dance in my living room. In a moment of misguided enthusiasm, I attempted to twerk. It's worth noting that I have a long history of lower back discomfort, I've never attempted to twerk before, and I lack the rhythm, flexibility, or skills typical of proficient dancers. As I embarked on my very first serious twerk attempt, a sudden jolt of agony shot through my forehead, nearly causing me to lose consciousness. It felt like being struck with a hammer. I was momentarily blinded by the pain, convinced I might have suffered an aneurysm or something equally serious. This intense sensation only lasted for about a minute, during which I dramatically considered that I might be the first individual to perish from twerking. You might think it was just a case of me bumping my head while trying to dance away my sadness; however, I assure you that this wasn’t the case. Just as abruptly as the pain struck, it dissipated. In that moment, I promised myself to never attempt twerking again. Fast forward to today, and I experienced a similar incident again—not the twerking, but the sudden stabbing pain in my skull. I was engaged in some back stretches, particularly the cat-cow pose, and during the cow portion, I once more felt an intense sharp pain in the center of my forehead, just above my right eye. Stars filled my vision, and everything seemed slightly distorted. This sensation vanished within seconds, leaving me puzzled. What is causing this reaction? How do my forehead and lower back relate in this context? It's baffling! I genuinely seek any insights that might help explain this mysterious phenomenon.
Neurological Challenges Mimicking POTS Symptoms
A 36-year-old female, weighing 265 pounds, is dealing with a complex medical history that includes conditions like Complex Regional Pain Syndrome (CRPS), bipolar disorder, anxiety, PTSD, and a splenic artery aneurysm. There is a tentative diagnosis of hypertensive Postural Orthostatic Tachycardia Syndrome (POTS). The patient experiences significant symptoms when not on medication, including a rapid heartbeat (ranging from 117 to 150 beats per minute), dangerously high blood pressure, episodes of vision impairment, difficulty walking accompanied by stumbling and falls, tremors, memory issues, and brain fog. Currently, her medication regimen includes Pristiq, lithium, lorazepam, low-dose naltrexone for pain management, and propranolol to regulate heart rates. She takes ubrelvy when needed. In January, a recurrence of severe pain radiating from her right side led to a hospital admission where her gallbladder was surgically removed due to complications. Although the surgery was successful, she subsequently developed CRPS, further complicating her health. While working in the emergency department, she experienced a sharp tearing pain associated with her known aneurysm. Unable to manage the pain, she informed her manager of her need to leave. During her walk back to her workspace, approximately 1500 feet away, she began to stagger and lost her vision, while also experiencing heavy sweating and shortness of breath. Support from coworkers was crucial, as she lost her strength and collapsed, gasping for air and experiencing vertigo. Her heart rate was recorded at almost 150 bpm and her blood pressure at 152/120. Once lying down, her vitals stabilized but would escalate again with movement. The attending nurse suspected POTS based on her symptoms. Despite efforts to provide explanations, her overnight doctor attributed her condition to anxiety. However, subsequent doctors recognized her situation increasingly suggested POTS and put her on a heart monitor after she began falling to one side, which later confirmed episodes of tachycardia over a monitoring period of two to three days. Her first cardiology appointment revealed a drop in her blood pressure when she stood, further aligning with the POTS suspicion. An echocardiogram was scheduled for the following week, but complications arose the very next morning at work, where rising distress prompted coworkers to assist her following an apparent episode of tachycardia. Administered Ativan temporarily helped alleviate some symptoms, but as her condition worsened, she was transported to the emergency department once again. After several hours of treatment, she was discharged with little clarity regarding her condition. Currently, she takes an extended-release dose of propranolol (80 mg), but without it, her heart rate can exceed 130 bpm, accompanied by memory lapses. Episodes of sporadic vision loss persist, alongside difficulty walking that has progressed to staggering or being unable to move at all, leading to falls. These occurrences are thought to be related to syncope. Neurological evaluations are underway, with initial tests like ECG and EEG returning normal results, but an MRI suggested increased intracranial pressure, though some specialists doubt its relevance. A pain specialist indicated that her pain conditions may not directly correlate but suggested central nervous system dysfunction related to stress could be a factor, as her symptoms often intensify during anxious moments. An Ear, Nose, and Throat specialist found no abnormalities causing her symptoms, and her cardiologist is pursuing further investigation at a specialized clinic, expressing concern about her ongoing employment due to the physical and financial strain it entails. The patient’s aneurysm was treated with an embolism in September, adding another layer to her intricate medical profile, and she is seeking additional perspectives on her challenging situation.