Seeking Answers for Unexplained Medical Symptoms in My Husband
My husband, who is 52 years old, maintains a healthy lifestyle—he neither smokes nor consumes alcohol, and prior to a recent health crisis, he had always been in excellent health. Approximately nine months ago, he experienced a severe nosebleed that required hospitalization. During this visit, doctors discovered both his liver and spleen were enlarged, which led us on a challenging journey. Since that incident, we have consulted numerous healthcare professionals, yet none have provided clarity on the cause of his organ enlargement. Here are the symptoms he is currently facing: - Enlarged liver - Enlarged spleen - Unintentional weight loss of 25 pounds over the past nine months - Presence of protein in his urine - Elevated levels of C-reactive protein - Persistent fatigue - No tumors detected via CAT scan or MRI - Blood tests returning normal results, ruling out lymphoma and leukemia - Lymph nodes appearing normal - A healthy heart with no indications of heart disease, as confirmed by normal EKG and stress tests - No abnormalities found in the structure of his liver, aside from it being enlarged - Occasional swelling in one foot that fluctuates in severity His physician has excluded lupus, as well as any bacterial or viral infections as potential causes. Recently, he underwent a PET scan, and we are currently awaiting the results, which we hope will illuminate the issue. However, the prolonged wait is causing me significant anxiety, especially since his condition seems to be deteriorating. I am reaching out to see if anyone has insights or suggestions. Upon researching his symptoms online, the term 'Amyloidosis' surfaced, but I lack any knowledge about this condition. Thank you for your help.
Answers (1)
9/5/2025, 3:20:44 AM
OpenHealth AI
I'm sorry to hear about your husband's health challenges. Your concerns are completely understandable, given the complexity and seriousness of his symptoms. Here’s a structured response to address your inquiry about his condition and to provide some actionable next steps:
Key Points
- Your husband's symptoms, especially the enlarged liver and spleen, unintentional weight loss, and fatigue, are significant and warrant careful investigation.
- While the term "Amyloidosis" has come up in your research, it’s crucial to understand this condition in context and ensure all options are explored with his healthcare team.
- Awaiting results from the recent PET scan can be anxiety-inducing, but staying informed and prepared to discuss next steps is important.
Explanation
Amyloidosis is a condition where abnormal protein deposits build up in organs and tissues, affecting their function. It can impact various organs, including the liver and spleen, potentially leading to enlargement and symptoms like fatigue and weight loss. However, a thorough diagnosis usually requires specific tests, often including biopsies, to confirm amyloid deposits.
Given that his medical team has ruled out several potential causes, it's good to continue pursuing clarity. The PET scan results will be crucial in helping to narrow down the cause of his symptoms.
Next Steps
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Prepare for PET Scan Results:
- Make a list of all symptoms and questions to discuss with the healthcare provider during the follow-up appointment. Include concerns about Amyloidosis and other possible conditions that may fit his symptoms.
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Monitor Symptoms:
- Keep a daily log of any new or changing symptoms, including fatigue levels, weight fluctuations, and any discomfort (like foot swelling). This information can be valuable for healthcare discussions.
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Consider a Specialist Consultation:
- If there is still no clarity after the PET scan results, consider seeking a referral to a hematologist or a specialist in rare diseases, as they may provide further insights or testing options.
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Lifestyle Adjustments:
- Ensure he is eating nutrient-dense foods to support his overall health and combat weight loss. Focus on high-protein options, whole grains, fruits, and vegetables.
- Encourage him to stay hydrated and manage any stress through relaxation techniques you can practice together.
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Emotional Support:
- Acknowledge your own feelings and seek support from friends, family, or professional counselors to help you cope with the anxiety of this situation.
Please remember to keep communication open with your husband's healthcare team and express your concerns. Their awareness of your husband's situation will help them provide the best care moving forward. Don’t hesitate to reach out if you have more questions or need support during this process.
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