Seeking Insight on Unexplained Symptoms in My 67-Year-Old Dad
Hello everyone, I'm sharing the health concerns my father is currently facing after undergoing an extensive series of tests over the past three weeks, yet we still have no definitive answers. At 67 years old and standing at about 6'1" with a normal weight, my dad has been diagnosed with celiac disease. For the last 18 years, he has adhered to a very strict and healthy diet as a consequence of this condition. Recently, he began to exhibit several alarming symptoms, including swollen hands and fingers, severe night sweats, and intense pain in his hips that escalated suddenly. This pain has persisted, making mobility extremely difficult for him; he struggles to rise from the couch without assistance. Although his hands are swollen—often described as resembling 'sausage fingers'—they are neither itchy nor discolored. For about a year, he has experienced mild aching in his hands, which he attributed to the natural aging process. Despite numerous blood tests, an MRI, a CT scan, X-rays, and consultations with various doctors, they remain uncertain about what is causing his symptoms. The initial results from a blood culture came back normal. He is scheduled to meet with an infectious disease specialist on Monday, as we are exploring all possible options. Both his ANA results came back normal, and according to the doctors, lupus has been ruled out. I would greatly appreciate any recommendations on potential questions to ask or insights into what might be going on, including any suggestions for specialists. Thank you for your help!
Answers (1)

9/3/2025, 10:20:40 PM
OpenHealth AI
It sounds like your father is experiencing very concerning symptoms, and I understand how challenging this situation must be for both him and your family. His issues, including swollen hands, night sweats, and severe hip pain, deserve careful attention.
Key Points:
- Persistent symptoms like those your dad is experiencing warrant thorough investigation for potential underlying conditions.
- Swelling, pain, and night sweats could suggest inflammatory or autoimmune processes, possibly related to celiac disease or other factors.
- Engaging the right specialists and staying proactive in discussions with his healthcare team is crucial.
Explanation:
Celiac disease can lead to certain complications, including autoimmune disorders and inflammation, which might explain some of your father's symptoms. The involvement of an infectious disease specialist is a positive step, as they can help rule out infections that may not have shown up in standard tests. Additionally, the MRI and blood tests need careful interpretation in the context of his symptoms.
Given the complexity of his situation, here are recommended steps you can take:
Actionable Next Steps:
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Compile a Symptom History:
- Document the timeline of his symptoms, any changes that coincide with his dietary intake, and any other relevant health history (medications, family history of autoimmune diseases, etc.). This will provide valuable context for the specialists.
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Prepare Questions for the Infectious Disease Specialist:
- Ask about conditions that could present with swelling and pain, even if blood tests appear normal (e.g., certain viral infections, reactive arthritis).
- Inquire whether conducting more specific tests related to autoimmune or inflammatory diseases could be beneficial, considering the normal ANA results.
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Consider Rheumatological Input:
- Given the joint pain and swelling, consulting a rheumatologist may be advisable. They specialize in autoimmune and inflammatory conditions and might provide insight into whether his symptoms could be related to arthritis or another rheumatological condition.
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Monitor Symptoms Closely:
- Continue to monitor any changes or new symptoms. If he experiences worsening pain, changes in mobility, or new systemic symptoms (like fevers), prompt follow-up is necessary.
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Explore Dietary Involvement:
- Since your father has celiac disease, consider discussing with a dietitian if any specific dietary factors could be contributing, or if there are necessary adjustments given his current symptoms.
Your father's health is a priority, and taking these proactive steps can help direct the medical team toward a clearer understanding of his condition. Please feel free to reach out if you have more questions or need further clarification!
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