Seeking Clarity: A Health Perspective
I am a 28-year-old woman struggling with my weight, having a BMI categorized as overweight, and dealing with Polycystic Ovary Syndrome (PCOS) without any medication. My medical history includes anxiety, for which I received treatment during my high school years. Recently, I have been plagued by persistent headaches, feelings of vertigo, dizziness, both pulsatile and regular tinnitus, heart palpitations, and an ongoing sensation of pressure in my head. Additionally, I've developed a rash on my face resembling a malar rash, and I've noticed unusual swelling without any changes in my skincare or diet. These symptoms have been consistent for several months. An MRI scan revealed 5.5mm of fluid behind my optic nerve, prompting the radiologist to suggest a lumbar puncture to investigate the possibility of idiopathic intracranial hypertension (IIH). While I do not exhibit papilledema, my intraocular pressure (IOP) is elevated. Throughout my life, I have maintained good health overall. My weight has fluctuated, but I have not surpassed my current level, which has increased since the birth of my daughter 15 months ago. The ophthalmologist noted that intracranial pressure (ICP) and IOP do not have a direct relationship, leading me to worry that there may be other underlying issues beyond IIH, potentially systemic in nature. I approached my general practitioner, expressing the desire for additional tests related to inflammation or autoimmune conditions before my neurology appointment. My intention was to gather as much information as possible to avoid prolonging the diagnostic process. However, I sensed skepticism, as my prior anxiety diagnosis seemed to overshadow my legitimate concerns. I received comments suggesting that I was being overly aware of my health since the MRI results, questioning whether my symptoms were a cause or simply a coincidence. I have always been attuned to my body’s signals and firmly believe these new developments coincided with the same timeframe. Am I unreasonable to think that conducting further tests before the neurology visit could provide clarity and potentially identify other causes for this increased pressure I’m experiencing?
Answers (1)
8/28/2025, 9:21:31 AM
OpenHealth AI
It's completely reasonable for you to seek clarity and further investigation regarding your symptoms, especially given your medical history with PCOS, anxiety, and recent MRI findings. Your symptoms of persistent headaches, vertigo, tinnitus, palpitations, and the rash you're experiencing can be distressing, and wanting to understand them better is a valid concern.
Explanation
Polycystic Ovary Syndrome (PCOS) can be associated with weight challenges, hormonal imbalances, and even some systemic issues, which might contribute to your overall health concerns. The presence of fluid behind the optic nerve and elevated intraocular pressure (IOP) raises questions about possible conditions like idiopathic intracranial hypertension (IIH). However, your wish to explore other avenues, such as autoimmune or inflammatory conditions, is a proactive approach and not unreasonable at all.
Next Steps
Here are prioritized actions you can take:
-
Documentation: Keep a detailed symptom diary that notes the frequency, duration, and intensity of your headaches, dizziness, and other symptoms. Also, document any changes in your daily activities, diet, and medication (if applicable).
-
Follow-Up Testing Requests: Consider revisiting your general practitioner (GP) and calmly reiterating your symptoms and concerns. Request specific tests for common autoimmune conditions (like lupus, rheumatoid arthritis, and thyroid function), as this may help in ruling out or identifying other causes for your symptoms. You have the right to express your need for thorough investigations.
-
Neurology Consultation Preparation: Prior to your neurology appointment, compile all relevant medical documents, including MRI results, any lab work, and your symptom diary. This will help the neurologist to better understand your situation and discuss any concerns you have about IIH or systemic issues.
-
Holistic Health Focus: Pay attention to overall wellness—consider gentle exercise, balanced nutrition, and stress management through techniques like mindfulness or yoga, which can also help with anxiety and might alleviate some physical symptoms.
-
Support System: Talk to a trusted friend or family member about your experiences—they can provide emotional support and help you advocate for your health needs with healthcare providers.
You’re doing the right thing by being aware of your body's signals, and pursuing further testing can be a key part of understanding your health better. It's important to stay proactive and engaged in your healthcare discussions. If you have ongoing concerns about how you're perceived by healthcare professionals, consider seeking a second opinion if necessary. You deserve to have your concerns taken seriously.
Related Questions
Understanding Tenderness Behind the Jaw
I’m a 39-year-old woman experiencing discomfort in a particular area located behind my earlobe, where my jawbone concludes. This zone, situated in the soft deep groove on both sides of my neck, has been sensitive for quite some time. When I exert pressure on either side, it elicits pain. Interestingly, I don't notice any swelling, redness, or lumps, and I also don't suffer from dry mouth, hearing problems, or discomfort while eating. However, I remain puzzled as to why this spot is so sensitive. I find myself wondering if this region pertains to lymph nodes or perhaps some glands. To best illustrate this area, I would refer to it as 'the vacant space between the jaw and the mastoid bone.' I've attempted to discuss this concern with my doctor, but my predicament seems to be brushed off, possibly due to my explanation not conveying the issue clearly. What terminology should I use to accurately describe this spot?
Experiencing Autonomic Dysfunction? Insights from a 34-Year-Old Male
Over a decade ago, I was diagnosed with esophageal dysmotility through the use of esophageal manometry, revealing weak and low peristalsis. My gastroenterologist at that time informed me that I was experiencing an ineffective motility disorder. Since then, I've often faced choking incidents or the sensation of choking while consuming food or even merely drinking water. More recently, I've been dealing with urinary issues characterized by a sense of urgency. However, the most distressing symptom I’ve encountered this year is urinary incontinence. Though it appears to be a minor amount occurring while I sleep, it is enough to create concern and discomfort. This situation is truly unsettling. For over ten years, I've also struggled with heat intolerance. I have noticed that my ability to sweat is minimal, resulting in an exacerbated discomfort during hot weather. Additionally, my sleep has become increasingly irregular. I often find myself waking in a state of confusion, with my mind racing chaotically, which makes me feel restless. While I've had bouts of insomnia in the past, this experience is distinctly different. Moreover, I find myself susceptible to flare-ups in which I endure nerve-related tingling and pain throughout my entire body for extended periods, sometimes lasting weeks or even months. I was adopted, and I learned from my biological aunt that our family has a history of fibromyalgia; however, my symptoms seem to suggest something more complex. I have an upcoming cystoscopy scheduled to investigate my bladder issues, but I wonder if there are any additional tests that could shed light on this broader array of symptoms I’m facing.
Understanding the Frequent Sense of Illness
At 18 years old, standing 5’6” and weighing 14 stone, my dietary habits lean towards healthier choices, largely avoiding processed foods. My current medications include fexofenadine and melatonin. Additionally, I am diagnosed with autism, ADHD, and a non-specific immune disorder. Over the past month, I have experienced illness on five separate occasions. To clarify, I am confident that pregnancy is not a possibility. When I refer to feeling unwell, I describe symptoms such as paleness, dizziness, nausea, low-grade fevers (often below 35°C), and episodes of high fever, along with swelling of the mouth's interior but not affecting my lips or tongue. I frequently have diminished appetite, particularly after meals. For instance, after enjoying pasta with red pesto a few nights ago, I felt unwell, while a recent pizza (even with my lactose intolerance) did not provoke the same response. Other meals such as pie and tomato soup with bread similarly caused feelings of sickness. There appears to be no clear trend in these episodes, nor do they seem to warrant immediate concern.
Lymph Node Biopsy via Ultrasound: Seeking Guidance
Hello, everyone! This is my inaugural post here on Reddit, and I'm venturing into this discussion thread for the first time. I’m a 22-year-old female experiencing notable swelling in my lymph nodes for several months now. After undergoing a CT scan, my oncologist assessed my chest results initially with a sense of relief. However, when examining the CT of my neck, he expressed a strong inclination towards performing a biopsy. The report indicated that the posterior triangle lymph nodes were particularly enlarged, with the largest measuring 1.7 cm. Yesterday, my oncologist informed me that he sought a second opinion from another radiologist, who similarly recommended a biopsy. While there was a preference to conduct a comprehensive lymph node biopsy, we’ve decided that starting with an ultrasound-guided biopsy might be the best initial step. As you can imagine, I am feeling quite anxious about this situation. I find myself pondering whether I should brace for potentially difficult news, particularly since I recently graduated from college, moved into my first home, and embarked on a new job. So far, the only other symptoms I've experienced are occasional night sweats, though I’ve noticed I have been excessively fatigued. My complete blood count (CBC) revealed a significantly elevated platelet count and a high ESR as well. I had attributed this to the stress of transitioning into a new home and workplace. I would greatly appreciate any advice or insights you might share. I’m just trying to prepare for whatever may come next. Thank you! :)
Could This Be PBC or Something Different?
Subject Profile: 49-year-old female, height 5'2", weight 140 pounds, residing in the USA. Medical Diagnoses: - Attention Deficit Hyperactivity Disorder (currently managing with Vyvanse 40mg) - Hypothyroidism (treated with Unithroid 5mcg) Supplemental Vitamins: - Magnesium glycinate (250mg) - Fish oil (1250mg) Past Surgical Interventions: - ACL reconstruction in 2011 - LASIK eye surgery in 2018 - Complete oophorectomy and hysterectomy performed in November 2020 - Partial thyroidectomy conducted in January 2022 Additional Information: I am not undergoing hormone replacement therapy due to a heightened risk for breast cancer, navigating menopause without any support. My mother has been diagnosed with Sjögren's syndrome. Symptomatology: I frequently contend with bouts of extreme fatigue that can strike unexpectedly, leaving me incapacitated at times. Post-LASIK, my eye occasionally experiences severe dryness, akin to being pricked with a needle. I also notice significant swelling in my hands during the night. Furthermore, I sometimes experience visual disturbances, where my vision can't seem to focus properly, prompting me to increase my display resolution to 150% for work purposes. Joint discomfort is sporadic, predominantly affecting my left hand and right hip. Additionally, I have noticeable skin reactions to viral infections, presenting as itchy rashes. My allergy test indicated a mild reaction to egg whites, with no significant responses to other allergens. Laboratory Findings: Since around 2021, my AST and ALT levels have been gradually increasing (current AST: 57, ALT: 84). Healthcare professionals have reassured me that my levels are within a normal range, while others express that they aren't high enough to raise alarm. A doctor who monitors my results closely—primarily due to previous use of Tamoxifen, which I discontinued because of adverse effects—has referred me to a hematologist. The hematologist performed a fibroscan, which displayed normal results. However, he proceeded to order an AMA test, returning a figure of 162.5. He mentioned that these results suggest a strong possibility of Primary Biliary Cholangitis (PBC), but since my alkaline phosphatase level is 171, which doesn't meet the threshold of being 1.5 times the normal value, a liver biopsy has been scheduled for September 9th. Inquiry: Is there a likelihood that I have PBC, or might this be attributed to another condition? If beneficial, I can provide images of my blood test results from the last few years for additional context.