Concerns Regarding Enlarged Occipital Lymph Node and Thyroid Nodule
Greetings! I am a 26-year-old male weighing 199 lbs and standing at 5’8”. I served in the Gulf War. Over the last four years, I have experienced fluctuating blood counts, particularly with my white blood cells, while both my hemoglobin and red blood cells have remained stable within normal limits. Additionally, I have been diagnosed with splenomegaly, which measures up to 17.3 cm. I undergo regular scans to keep an eye on my spleen and lymph nodes. A couple of weeks ago, I underwent a CT scan of my neck because I discovered two bumps on either side. The findings from the scan included: - A notable enlarged left occipital chain lymph node measuring 1.1 x 1.0 cm (as seen in an axial image). - Additional non-specific bilateral cervical chain lymph nodes were observed, but there is no evidence of cervical adenopathy according to the CT size criteria. - A scalp examination is recommended, along with considering a focused ultrasound to assess internal characteristics and the potential for ultrasound-guided tissue sampling. Moreover, I have a nodular area on the right posterior thyroid lobe measuring 8 mm. This could possibly be an exophytic nodule or related to the parathyroid. Could someone simplify this for me? A scalp exam with dermatology sounds odd to me. Why is a thyroid nodule only being detected now when my full-body scan in May indicated no abnormalities? Also, there was no lymphadenopathy noted during that scan. At that time, it was only mentioned that I had splenomegaly and borderline mesenteric lymph nodes measuring up to 1.0 cm along the long axis, which were described as common incidental findings due to their location. I am extremely frustrated with the endless cycle of scans and consultations. My trust in the VA healthcare system is dwindling. Should I advocate for further testing?
Answers (1)

8/27/2025, 12:12:48 PM
OpenHealth AI
Thank you for sharing your concerns and experiences. It’s understandable to feel frustrated with ongoing scans and consultations, especially when dealing with health complexities. Let's break down your situation and focus on key points.
Main Points
- Enlarged Occipital Lymph Node: It's not uncommon to find lymph nodes that fluctuate in size and sensitivity, especially following infections or other immune responses.
- Thyroid Nodule: A nodule on the thyroid can develop over time and may not have been evident in earlier scans due to several factors, including changes in size.
- Your Frustration: It’s valid to feel overwhelmed, but having comprehensive evaluations helps ensure that nothing significant is missed.
Explanation
- Lymph Node Enlargement: Lymph nodes can swell for various reasons, including infections, inflammation, or even benign conditions. The fact that a specific lymph node is enlarged is something worth monitoring, but the size you've mentioned (1.1 x 1.0 cm) is generally not alarming by itself, especially if there are no other concerning symptoms.
- Thyroid Nodules: An 8 mm nodule is relatively small and often not a cause for immediate concern, but it requires monitoring. The nodules can develop over time, and changes in size or characteristics can prompt further testing.
- Sc scans and Protocols: The recommendation for a scalp examination and ultrasound of the thyroid is part of a thorough approach to understand the nature of both the lymph nodes and the nodule. It's not uncommon for a nodule to be detected at different times depending on factors such as image quality or size changes.
Next Steps
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Continue Monitoring: Schedule and attend the recommended ultrasound and scalp exam. These tests will provide detailed information that is crucial for understanding the next course of action.
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Document Symptoms: Keep a diary of any new symptoms (e.g., changes in lymph node size, swelling, changes in thyroid function, fatigue, etc.) to share with your healthcare provider at future appointments.
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Advocate for Clarity: If you're feeling frustrated, consider expressing your concerns directly during your next appointment. Discuss the possibility of consolidating tests or consultations to reduce the feeling of constant evaluations.
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Seek a Second Opinion: If you're feeling unresolved or uncertain about the care you're receiving, don’t hesitate to seek a second opinion from another specialist. This can provide reassurance and clarity moving forward.
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Stay Informed: Educate yourself on both thyroid nodules and lymphadenopathy. Understanding the basics can empower you to make informed decisions and ask relevant questions during consultations.
Your health is the priority, and effective communication with your providers can help enhance your experience. Remember, it’s okay to seek clarity and advocate for your needs. Let me know if you need additional information or support.
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