OpenHealth Q&A

Persistent Joint Discomfort – Concerns About Lasting Damage

I’m a 17-year-old assigned female at birth, weighing 130 pounds and standing at 5'7". Currently, I'm not on any medications and don't have any significant diagnosis (yet). For approximately four years, I have been plagued by persistent joint discomfort that predominantly affects my lower extremities—primarily my knees, though my hips have recently experienced increased pain, and at times my ankles ache as well. Over the last couple of months, I’ve also noticed some discomfort in my elbows and fingers, but they don’t compare to the intensity I feel in my knees and hips. My symptoms fluctuate significantly; on some days, I can move without any issues, while on others, I struggle to walk. Engaging in physical activity tends to exacerbate the pain, and rest is the only remedy that provides relief. The pain itself is often characterized by a sharp, stabbing sensation in my joints with every step I take. If I overexert myself, the discomfort evolves into a dual sensation of both aching and sharp pain that doesn’t subside immediately, requiring time to heal rather than just resting. On occasion, the pain radiates throughout my entire leg, creating a feeling as though my bones ache, or it remains localized in my joints. During my initial visit to a physician, my concerns were dismissed as mere growing pains—an assessment I found inaccurate since I have long since stopped growing, and this pain feels nothing akin to that. On my second attempt, a different doctor suggested I might have patellofemoral pain syndrome, yet that diagnosis doesn’t resonate with me because the pain isn’t isolated to my knees and typically such conditions resolve within weeks or months, not stretch over years. My first x-ray revealed no abnormalities, and a subsequent x-ray about a year or two back indicated some fluid accumulation in my right knee, but no treatment was pursued for that either. I also face a constellation of other physical issues. I often feel fatigued and achy across various parts of my body. My great aunt has been diagnosed with fibromyalgia, which makes me wonder if I might have a similar condition or potentially some form of arthritis. My injuries have all been minor, with no significant trauma to account for the pain. One incident around the onset of my discomfort involved a roller skating outing where I fell several times; however, I didn’t experience any pain intense enough to linger afterward. I also recall an unsettling event when my biological father, who is no longer in our lives, attempted to force his way into my room during a heated argument with my mother. He was aggressively slamming against the door while I sat on the ground, pressing against a dresser with my legs outstretched to block the entrance. Perhaps that incident could have contributed to the pain I'm experiencing? I'm hesitant about returning to the doctor, fearing that my concerns will again be dismissed or that I won’t receive any satisfactory answers. I’ve already attempted to seek help, and I am at a loss on what to do next. Despite these challenges, I feel compelled to go back for another consultation. Right now, the pain in my hips is so agonizing that I could barely shuffle to the kitchen for water. This last flare-up has lasted over a week, compelling me to cancel my plans. The situation seems to be worsening and spreading. I’m desperate for a solution. What could possibly be the cause of this... ?

Answers (1)

8/25/2025, 2:32:45 PM

OpenHealth AI

I'm truly sorry to hear about the persistent joint discomfort and the distress it’s causing you. Based on your detailed description, it sounds like you are dealing with significant pain that is affecting your daily life, and it’s understandable to feel frustrated and apprehensive about seeking further medical attention.

Given the duration and complexity of your symptoms, several potential causes could be at play, ranging from conditions like fibromyalgia to different forms of arthritis. Both can lead to widespread pain and fatigue and often require proper diagnosis to manage effectively. Your family history of fibromyalgia is a valid concern and could be relevant to your situation.

Key Points to Consider:

1. Persistent Symptoms: Symptoms lasting for years, including pain in multiple joints and overall fatigue, warrant a thorough investigation.
2. Family History: A history of fibromyalgia in your family may suggest a predisposition to similar conditions, but diagnosis is key.
3. Physical Activity and Rest: It’s important to listen to your body; while activity is generally good, overexertion seems to exacerbate your symptoms.

Next Steps:

1. Keep a Symptom Diary: Track your daily pain levels, activities, and any other symptoms (like fatigue). This can help your doctor see patterns or triggers later.

2. Consider Your Nutritional Status: Ensure you maintain a balanced diet. Proper nutrition can support your overall health and help your body manage pain more effectively.

3. Gentle Exercise: Although physical activity may worsen your pain currently, engaging in gentle, low-impact exercises like swimming or yoga may help. Focus on stretching and building strength over time without strain.

4. Seek a Specialist: Since your concerns have been somewhat dismissed before, consider asking for a referral to a rheumatologist or pain specialist. They have more experience with conditions like fibromyalgia and various types of arthritis.

5. Discuss Alternative Pain Management: Staying informed about options such as physical therapy, acupuncture, or even cognitive behavioral therapy (CBT) for managing chronic pain could also be beneficial.

6. Be Proactive in Appointments: When you visit your doctor, voice your concerns clearly and share your symptom diary. Be prepared to advocate for a more thorough investigation and mention your family history.

7. Focus on Self-Care: Employ relaxation techniques, such as mindfulness or deep breathing exercises, to help manage stress, which can often exacerbate pain.

Remember, you are not alone in this, and persistence in seeking answers is vital. If you continue to experience worsening symptoms, it only emphasizes the importance of getting a suitable diagnosis and plan moving forward. Taking these steps can help empower you in managing your health more effectively. If you have further concerns or need additional information, please let me know.