Concerns Regarding Unexplained Episodes
Hello, I'm a 25-year-old female and I’m quite anxious about some unusual events I've encountered around five to six times over the last two to three years. To provide some background, I have a medical condition called syringomyelia; however, it is relatively small and situated in a location that is unlikely to be linked to these episodes. Additionally, I am managing diabetes (possibly MODY) and am on both long-acting and meal-specific insulin. I also deal with mental health challenges, for which I take Vraylar, Viibryd, and Seroquel as needed, along with a newly introduced low dose of Adderall. Furthermore, I regularly take omeprazole and use an inhaler for my asthma. I have an MRI scheduled soon, and I recently underwent an EEG. I’m currently awaiting the results, so I would greatly appreciate any insight or perspectives from those who might have experienced similar symptoms. I’ve scoured the internet in search of answers but have yet to find someone who describes what I’m undergoing. For the past few years, I’ve been facing episodes that resemble seizures, during which I retain full awareness. I recall the events clearly, and each episode can extend up to an hour. My muscles contract throughout my body, resulting in shaking and an inability to stand; I must lie down during these spells. While I can manage to speak a bit, the discomfort is intense, and outwardly, I likely resemble someone having a grand mal seizure. The last incident, which occurred a couple of weeks ago, felt particularly prolonged, and towards the end, I found myself gasping for air. This prompted me to insist on a referral to a neurologist since my concerns had not been taken seriously previously. I’ve considered the possibility of focal aware seizures, but I recognize that many individuals with that diagnosis report experiencing an aura or some form of partial awareness or confusion beforehand. In my case, that’s not true; I’m entirely lucid. The sole precursor I perceive is a sudden wave of nausea before the episode begins. I’m genuinely unsettled by this situation. If anyone has dealt with similar experiences or knows someone who has, your input would mean a great deal to me. Any assistance or information would be incredibly helpful. Thank you so much!
Answers (1)

8/20/2025, 6:15:24 PM
OpenHealth AI
It sounds like you are experiencing concerning episodes that resemble seizures, which can understandably be very distressing, especially given your existing health conditions. It’s good that you’re scheduled for an MRI and have recently had an EEG, as these tests can provide valuable insights into what might be happening.
Explanation
Your symptoms, which include muscle contractions, shaking, and a sense of lucidity during episodes, could suggest a few possibilities, such as focal seizures, conversion disorder, or other neurological conditions. The wave of nausea you experience could also be a significant clue. It's important to note that seizures can have various presentations, and individual experiences can differ widely.
Syringomyelia itself is known to cause neurological symptoms, but you’ve mentioned that it’s small and unlikely linked to these episodes. It's good that you're keeping your medical team informed, as they can help rule out any direct connections and diagnose the underlying cause.
Next Steps
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Monitor Your Episodes:
- Keep a detailed diary of your episodes, noting the duration, symptoms, what you were doing before they started, and how you felt afterwards. This information can be incredibly helpful for your doctors to understand your condition better.
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Follow Up with Your Neurologist:
- Once you receive the results from your MRI and EEG, schedule a follow-up appointment with your neurologist to discuss them immediately. Bring your diary to this appointment to provide them with comprehensive information.
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Manage Anxiety:
- Since you have stated that these episodes cause considerable anxiety, consider exploring relaxation techniques (such as mindfulness, deep breathing, or gentle yoga) to manage your anxiety between episodes. Regular physical activity, while ensuring it's appropriate given your conditions, can also help reduce stress.
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Stay Hydrated and Nourished:
- Make sure you are managing your diabetes effectively by monitoring your diet and hydration. Keeping stable blood sugar levels can sometimes help mitigate the occurrence of seizure-like episodes.
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Educate Yourself:
- While it's important to avoid excessive internet searching that might exacerbate your anxiety, some reputable resources can help you understand seizures better (such as the Epilepsy Foundation). This might help you feel more informed and empowered when discussing your symptoms with your healthcare providers.
Remember, it’s crucial to be patient with the process of diagnosis, as neurological symptoms can sometimes take time to uncover. Your proactive approach in seeking help is commendable, and you are taking the right steps towards understanding and managing your situation. If new symptoms arise or if your episodes worsen, address those with your healthcare provider promptly.
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