Seizures and MRI Wait: Seeking Radiologist Insights
Hello everyone, I’m a 19-year-old male who has been receiving treatment for Behçet’s disease. My medical background includes a family history of both cancer and autoimmune conditions. Recently, I have been struggling with recurrent seizures, significant memory issues, leg weakness, and increased tingling sensations that occur more frequently during flares of my condition. I am currently waiting for my MRI results, which I’ve been told could take a considerable time. If anyone with radiology expertise could kindly review my DICOM files, I would greatly appreciate it. Thank you!
Answers (1)

8/18/2025, 1:41:01 AM
OpenHealth AI
It sounds like you're going through a challenging time with your health issues, especially with your recurrent seizures and neurological symptoms. While I can't review DICOM files or provide specific radiology insights, I can help you understand your situation better and suggest some steps to take while you wait for your MRI results.
Main Points:
- Your symptoms need careful evaluation, especially given your existing condition and family history.
- While waiting for MRI results, it's important to monitor your symptoms and manage them proactively.
Explanation: Seizures, memory issues, weakness in your legs, and increased tingling sensations can all be related to your Behçet's disease or indicate additional neurological concerns. Behçet's can affect the nervous system, which may explain some of your symptoms. It's good that you're reaching out for information, as understanding your health is a vital step.
Next Steps:
-
Keep a Symptom Diary: Document when you experience seizures, memory issues, weakness, and tingling sensations. Note any potential triggers or changes in your daily routine. This can help identify patterns and provide valuable information for your healthcare provider.
-
Stay Hydrated and Rested: Make sure to drink plenty of fluids and get adequate rest. Stress and dehydration can worsen many health conditions, including neurological symptoms.
-
Avoid Known Triggers: If you can identify any specific triggers for your symptoms, such as certain activities, foods, or stressors, try to minimize exposure to them.
-
Seek Support: Connect with friends, family, or support groups who understand Behçet’s disease and neurological issues. Emotional support is crucial when managing chronic health challenges.
-
Regular Follow-ups: Stay in touch with your healthcare team, especially regarding your symptoms and how they change over time. Make sure they are aware of any new or worsening symptoms as you await the MRI results.
If your seizures become more frequent or severe, or if you experience new symptoms like difficulty speaking or severe headaches, consider reaching out for immediate medical advice. Your health is important, and I encourage you to continue seeking the support you need. Let me know if there's anything else you would like to discuss!
Related Questions
Concerns Regarding My Father's Persistent Leg Swelling Due to Infection
My father, a 69-year-old man weighing 260 pounds, experienced alarming symptoms last Wednesday. I brought him to the emergency room under the impression that he might be suffering from a blood clot, as his left leg had swelled to about double its normal size. For several days prior, he had been feeling unwell with flu-like symptoms and had not been very active, mostly resting on the couch. After spending a few hours at the hospital, the medical team diagnosed him with cellulitis, an infection responsible for the swelling in his leg. It was also revealed that he has diabetes and high blood pressure—conditions that we were aware of, but he had been reluctant to address over the past few years. To manage his health, they have been adjusting his blood sugar levels through medication and dietary changes, as well as addressing his hypertension. He has been treated with IV Vancomycin to combat the infection. Throughout his four-day stay, the swelling in his leg fluctuated. When he was discharged today, the swelling had decreased; however, it unfortunately returned to its previous severity by this evening, similar to the state it was in when we first arrived at the hospital. I am left wondering how concerned I should be about this ongoing swelling. He received an additional dose of IV antibiotics just before discharge, but considering he's still experiencing significant swelling, I feel uncertain if his early release was wise. During our time at the hospital, it seemed that the staff prioritized managing his blood pressure and diabetes over the infection itself. While they may have reasons for their focus, this situation has caused me considerable anxiety, and I would greatly appreciate any insights or advice regarding his condition.
Concerns About My PICC Line
Subject: 34 years / Female / Height: 5'7" / Weight: 220 lbs Medical History: Diagnosed with Crohn’s disease, Ehlers-Danlos syndrome (EDS), dysautonomia, among others. **Before I dive into my main issue, I have a gastric emptying test scheduled for tomorrow morning. I intend to visit the ER afterward if I'm still feeling uneasy or if new symptoms emerge. My hope is to avoid heading to the hospital tonight and having to reschedule for tomorrow unless absolutely necessary.** As a 34-year-old female with a PICC line in my right arm for at-home hydration and medication for nausea (due to my Crohn’s disease, suspected gastroparesis, confirmed EDS, and dysautonomia), I recently had this line replaced a few weeks prior, which has created a second red spot about 1 cm from the current insertion site. Last Friday, I underwent a colonoscopy while under anesthesia at the hospital, during which my PICC line was used for the procedure. Upon returning home, I noticed that the site had become red and slightly oozy. Since then, the redness has increased, but I haven’t observed any further drainage. Tonight, the saline infusion was quite painful, leading me to halt the process halfway. My arm isn’t warm to the touch and shows no evident swelling. My oral temperature reads 99.6°F. Additionally, I have severe allergies to various adhesives, which I believe is contributing to the irritation at the site. At present, I have a Tegaderm and StatLock in place. I have had adverse reactions to IV3000's border and am allergic to both chlorhexidine and the silver disk, which is why the disk is absent. This summer, I’ve made 12 trips to the ER along with hospital admissions, so I'm eager to avoid another ER visit if this is not serious. I reached out to my home infusion nurse, who manages my weekly dressing changes, and she mentioned that if the ooze returns, we may face a significant issue. I’m seeking opinions on whether my current condition appears worrisome or not.
Understanding Perforated Eardrums
Hello everyone. I'm a 29-year-old female, and recently I've discovered that both of my eardrums have perforations. For the past month, I've been struggling with a severe inner ear infection affecting both ears. Initially, I was prescribed Amoxicillin and Prednisone at an urgent care facility. However, after noticing no improvement, I was switched to Cefdinir just last week. Today, I took a look at my ears using a small wax removal tool, and to my shock, I found holes in both eardrums. I understand that ear infections can lead to this condition, which likely explains the ongoing discomfort I’m experiencing. My concern now is whether I should seek emergency care or if a visit to my family doctor will suffice. It’s nearly midnight where I am, but I can reach out to my doctor in the morning. I just want to ensure that this isn't a situation that requires immediate attention. Additionally, I’ve realized that the idea of a bug entering through my perforated eardrums is quite frightening! Thank you all for your support ❤️
Understanding Long-Term CMV Issues: A Patient's Journey
Hello, I’m reaching out to share my health journey and seek insights regarding a perplexing aspect of my condition. At 26 years old, standing 5’6” and weighing 200 lbs, I do not smoke or engage in illicit drugs. My ongoing health struggles include fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Currently, my treatment regimen consists of medications like Allegra, Claritin, and Tylenol. When I was a child, I encountered a significant medical incident that has lingered into my adult years. Unfortunately, it appears that I have exhausted available treatment alternatives, leaving me primarily confined to my home. I spend most of my time in bed to prevent exacerbating my condition, which leads to immobility. I am not seeking specific treatment advice, but I do have some questions regarding a mysterious aspect of my medical history that has puzzled my doctors. For two years, I experienced elevated IgM titers for cytomegalovirus (CMV), yet my IgG results always came back negative. Last year, I was retested, and both IgM and IgG were negative. I had previously noted some alleviation of my symptoms after the two-year mark, indicating the infection had likely resolved. However, it struck me as strange that I have never developed IgG antibodies. What could this imply? Is there a possibility of reactivation? If I were to fall ill again, could I face the same prolonged symptoms? While I tend not to be overly anxious, I wonder whether I should take precautions, such as wearing a mask during medical visits. Here is a summary of my medical timeline: - August 2013: I suffered a concussion resulting in a loss of consciousness, memory loss, and episodes of disorientation lasting about two hours. After brain scans in the hospital, I returned home, but continued to experience headaches for the following weeks. - January 2014: I began to encounter significant fatigue and excessive sleepiness, which hindered my ability to engage in physical activity. - February 2014: I visited the emergency room due to an intense, full-body rash. Despite consultations with multiple doctors and a series of tests revealing no clear abnormalities in my blood work, my symptoms remained debilitating. The rash persisted alongside my excessive sleeping, resembling the fatigue associated with mononucleosis. I was forced to withdraw from school and focus solely on rest. - August 2014: A test for CMV was conducted, yielding results of IgG < 0.90 (negative) and IgM 2.8 (high). The medical team suggested that this indicated a recent infection; however, I had been suffering from these symptoms for months. Illness continued, prompting a cycle of doctor visits and tests that produced no conclusions. My inability to attend school—offline or online—alongside cognitive difficulties, left me in a constant state of lethargy. - January 2016: Another test for CMV revealed IgG at 0.2 (negative) and IgM at 3.6 (high). By 2017, I noticed I could stay awake longer and engage my mind despite the challenges. This was perceived as a sign that, if CMV was the cause of my illness, it was subsiding. I began attempting to move around, but the experience was often very painful. From 2017 onward, I gradually regained some functionality, although pain and post-activity fatigue remained significant challenges. Leaving the house briefly would often result in several days of recovery in bed. I was advised to maintain a fitness routine for better recovery, so I attempted hikes when possible. Despite this, I experienced a recurrence of my rash and intensified symptoms for extended periods. Nevertheless, I managed to incorporate some daily activity, including walks lasting 30 minutes or more, mindful of the risk of deconditioning linked to back issues and plantar fasciitis, which exacerbated with inactivity. - 2024: A recent CMV test yielded negative results for both IgG and IgM. - 2025: I find myself largely housebound again, as any increase in activity leads to muscle stiffness and feelings of paralysis. My current activity level is lower than in previous years, which helps mitigate some symptoms, though it comes with its own set of complications. Reduced mobility means less pain overall, provided I limit my activities to brief bursts. I recently received a diagnosis of ME/CFS, but the suggestions provided were already part of my current approach. This realization has led me to accept that I may be disabled for life, prompting me to pursue disability benefits—a long and arduous process. In conducting research for supporting documentation, I have reflected on that one test which appeared to hold a potential explanation for my condition. My concerns about the CMV antibody results linger, as they seemingly defy expectations; IgG should have surfaced following the initial illness. Shouldn't I have developed it by now? I’m left to wonder if I experienced any false positives or negatives in testing or if my immune response was impaired. Alternatively, could it be that CMV is not the root cause of my illness, despite exhibiting similar symptoms? While there may be no definitive answers, I would appreciate hearing from professionals who might shed light on these shared experiences. Although I have consulted numerous specialists over the years, none have been able to clarify this specific scenario. My general practitioner is supportive, yet she, along with my new ME/CFS specialist, hasn’t provided insight on these nuances. Thank you for taking the time to read my story. I would love to hear your thoughts.
Unusual Symptoms Following a Viral Infection
Hello, I'm a 22-year-old female and I've been dealing with some unusual symptoms since I fell ill a few weeks back. To give you some context, I tend to catch colds every few months. It typically begins with a scratchy throat, and by the next day, I’m usually feeling quite miserable. I experience high fevers, along with severe pain in my back and legs, which can be nearly intolerable, as well as headaches. This time, after about a week, I started to feel somewhat normal again. Since recovering, however, I've noticed my eyes have become red and are somewhat painful. Additionally, I have developed small red spots on my lips and around my mouth, along with what seems to resemble angular cheilitis. It's all a bit peculiar. I would greatly appreciate any guidance or insights regarding these symptoms!