Navigating Intestinal Challenges
Greetings! I am a 46-year-old female, weighing 155 pounds and standing at 5 feet 1 inch. Since the age of five, I have faced persistent issues with constipation, resulting in numerous trips to the hospital. Typically, each visit ends with the doctors examining my appendix, reassuring me it isn’t the cause of my discomfort, prescribing medication, and sending me back home. Unfortunately, the agony usually returns after some days, and this repetitive cycle has persisted for years. In May 2025, I experienced a particularly severe episode. Despite the intensity of the pain, I hesitated to visit the emergency room, knowing from past experiences that I would likely just receive pain relief and no concrete answers. However, after enduring a week of relentless pain, I opted to consult my primary physician. He conducted an emergency workup and ordered a CT scan, revealing inflammation in my cecum and elevated CEA levels. He promptly recommended a colonoscopy for further investigation. The procedure was completed swiftly, and the gastroenterologist confirmed that there were no signs of colon cancer, but referred me to a general surgeon for exploratory surgery to examine my abdominal region. For two and a half weeks, I awaited a call from the surgeon, all while suffering significant discomfort. In the interim, I had to return to the ER because I could not withstand the pain. Once again, they performed a CT scan, administered pain management, and released me. When I finally met the surgeon, he reviewed my scan with me, indicating that my large intestines were severely distended, roughly the size of a large grapefruit throughout. To my disbelief, he informed me there was little he could do and made a joke about possibly removing my intestines. I found this response incredibly frustrating considering my pain and need for real solutions. I have secured a second opinion on the 25th of this month, as I am determined to find a resolution to the suffering I have endured for so long.
Answers (1)
8/16/2025, 1:02:23 PM
OpenHealth AI
It sounds like you’ve been through a very challenging and frustrating journey with your intestinal issues. The ongoing pain and discomfort you've described, along with the repeated medical evaluations, indicate that you’re seeking not just relief but a better understanding of your condition. Let’s focus on your immediate needs for managing symptoms and improving your quality of life while you await your second opinion.
Main Points:
- Chronic constipation and abdominal pain can have several underlying causes, and it’s essential to prioritize symptom management while seeking further insights from specialists.
- Lifestyle changes and dietary adjustments can provide some relief from symptoms and potentially improve your overall bowel function.
Explanation:
Chronic constipation can result from various factors, including dietary habits, hydration levels, and possibly underlying conditions like irritable bowel syndrome (IBS) or structural issues in the intestines. Given the history of severe distention you mentioned, working closely with gastroenterologists and possibly dietitians will be crucial for identifying contributing factors and exploring treatment options.
Next Steps:
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Dietary Adjustments:
- Increase fiber intake gradually through fruits (such as apples, pears, or berries), vegetables (like leafy greens and carrots), and whole grains (such as oats and brown rice). Aim for 25-30 grams daily.
- Stay well-hydrated by drinking enough water throughout the day (aim for at least 8-10 cups of fluids daily), as this can help soften stools and promote regularity.
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Daily Routine:
- Establish a regular bowel routine by setting aside time after meals to attempt to use the bathroom, as this can help train your body.
- Consider gentle exercise, like walking or yoga, which can stimulate bowel movements.
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Symptom Monitoring:
- Keep a symptom diary noting any food intake, mood changes, and bowel habits. This information can be valuable for your healthcare providers as they assess your condition.
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Pain Management:
- Discuss with your healthcare providers over-the-counter options like pain relievers. Be cautious with opioids, as they can exacerbate constipation.
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Preparing for Your Second Opinion:
- Make a list of all your symptoms, medical history, and treatments tried. Bring this information to your second opinion appointment to facilitate a more productive discussion about potential next steps.
Reassurance:
You’re taking a proactive approach to your health, and seeking a second opinion is a wise step. It’s important to find a healthcare provider who listens to your concerns and collaborates with you on developing a manageable treatment plan. Remember that while this journey is difficult, there are solutions available that can improve your situation. If you have any additional questions or need more specific advice as you navigate this, feel free to reach out.
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