Seeking Guidance for a Perforated Septum
I am a 29-year-old female, 5'9'' tall, weighing 145 pounds. My medication regimen includes 123 mg of methadone and 40 mg of Prozac, and I occasionally use a vape. I have no significant medical history apart from sinus surgery I underwent around the age of 18 to alleviate persistent sinus and ear infections. Thankfully, that procedure completely resolved my issues for many years, until now. I'm reaching out to multiple forums for suggestions, especially regarding any relevant communities to discuss this. Over the years, I've developed a perforated septum due to extended usage of fentanyl. It seems that many others who have used the drug in a similar manner have faced similar problems. I've been sober for some time and am eager to address this condition, as it leads to a continuous runny nose and recurring ear infections that refuse to heal. Although my nostrils have not collapsed yet, I can sense a slight change, likely due to my obsessive self-monitoring (which I know others wouldn’t notice). I’ve been informed that insurance might cover the necessary treatment, but I need direction on which specialist to consult. I recently had an appointment with an ENT specialist who examined my case and informed me that the perforation is extensive, making it beyond his ability to repair. He recommended a reconstructive surgeon, mentioning institutions like Johns Hopkins and another highly regarded medical center known for their expertise in such surgeries. Unfortunately, he couldn’t refer me to a specific surgeon, stating he’s not familiar with any. The possibility of needing a tissue graft was raised, yet the doctor expressed concerns about the high likelihood of failure due to the size of the perforation. This news was incredibly disheartening and has left me in tears while writing this. His uncertainty has left me wondering about other options and professionals out there, as it feels crushing to think there's no solution available. I fear that without treatment, my septum will inevitably collapse. I’m determined to find a way forward, but I’m lost and need support on how to begin this process. If anyone has insights or recommendations, I would be grateful.
Answers (1)
8/14/2025, 9:11:19 PM
OpenHealth AI
I understand that you're feeling overwhelmed and disheartened by your situation with the perforated septum, especially after receiving challenging news about its repair options. It's completely normal to seek support and clarity in your journey toward healing.
Main Points:
- Next Steps for Treatment: It’s essential to find a reconstructive surgeon with expertise in septal repair.
- Consider Additional Opinions: Seeking a second opinion can provide you with different perspectives and options.
- Support and Resources: Connect with support groups for individuals facing similar challenges.
Explanation:
A perforated septum can arise from various factors, including previous drug use, and can lead to discomfort like a continuous runny nose and recurrent ear infections. The complexity of your case means it’s crucial to seek out an expert specifically skilled in reconstructive surgery for septal repairs. The recommendation from your ENT about consulting a surgeon at specialized institutions like Johns Hopkins is a good starting point.
Actionable Steps:
-
Research Reconstructive Surgeons:
- Look for plastic or facial reconstructive surgeons who have experience with nasal surgeries, particularly those who specialize in corrective procedures for septal perforations. Check their credentials and reviews.
- Consider institutions with a strong reputation for ENT and reconstructive surgeries, such as Johns Hopkins or other regional specialists.
-
Get a Second Opinion:
- Don't hesitate to reach out to another ENT or plastic surgeon for a second opinion. This could provide you with more options or different surgical techniques that may be available.
- Use online resources or medical associations to find qualified surgeons in your area or at specialized centers.
-
Explore Support Networks:
- Look for online communities or local support groups for individuals with chronic nasal conditions or those recovering from substance use. Hearing others' experiences may give you additional insight and emotional support.
- Consider discussing your feelings and concerns with a mental health professional who can provide coping strategies as you navigate this process.
-
Document Your Symptoms:
- Keep track of your symptoms, including any changes or new issues that arise. This information will be useful during your consultations with specialists.
-
Stay Informed About Your Condition:
- Research trusted medical websites such as the Mayo Clinic, CDC, or specialized medical journals for information on septal perforation, its causes, and treatment options.
Remember, you're taking an important step by seeking help and exploring your options. It’s natural to feel disheartened by the complexity of your case, but there are avenues to pursue that may lead to improved outcomes. Keep advocating for your health, and know that support is available.
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