Struggles with Bowel Movements
Hello everyone, I’m a 24-year-old woman, standing at 5’ 3” and weighing 235 lbs. Health Conditions: I have been diagnosed with several health issues, including Graves' disease, gastroparesis, irritable bowel syndrome (IBS), iron deficiency anemia, migraines with aura, fibromyalgia, fibrous dysplasia, endometriosis, gastroesophageal reflux disease (GERD), and asthma. Current Medications: My medication regimen includes Linzess, Protonix, Memantine, Pepcid, low-dose Naltrexone, Lyrica, Aygestin, Pamelor, Aimovig, Amerge, Zofran, along with Vitamin D2, B12, and Folic Acid. Recently, I have been facing significant difficulties with my bowel movements. Despite diligently attending pelvic floor physical therapy and repeatedly communicating my issues to healthcare providers, I feel unheard and increasingly frustrated. Although I've struggled with stomach pain and IBS for many years, this particular problem seemed to intensify in November 2024. I find it extremely challenging to initiate and maintain bowel movements, whether they are solid or liquid. I often feel as if I can’t fully empty my bowels, and when I exert myself too much, it results in discomfort, leaving me lightheaded and disoriented. The most distressing incident involved a painful blockage that led to a nearly hour-long struggle in the restroom, without success. By that point, it had been about five days since my last bowel movement. I ended up going to the emergency room, where I underwent two enemas, but they were ineffective. I was discharged with instructions for a colon cleanse, involving 15 capfuls of MiraLAX dissolved in 64 ounces of liquid. Although I managed to pass a small amount of stool afterward, it felt excruciating, like passing shards of glass mixed with hot sauce. Yet despite all these measures, I am still grappling with the same issue. It feels as though my rectum isn't functioning properly, leaving me at a loss for what to do next. The thought of attempting to use the restroom is now filled with anxiety—I'm terrified of the pain that might accompany it. I’ve undergone numerous colonoscopies and a series of tests, including extensive blood work and stool samples, yet clarity remains elusive. If anyone has any recommendations or advice on how to approach my medical team, I would greatly appreciate it. I'm feeling overwhelmed and desperate for relief; at this point, it honestly feels like I might need a complete digestive system overhaul.
Answers (1)
8/14/2025, 7:40:59 PM
OpenHealth AI
I'm really sorry to hear how challenging your bowel issues have become, especially with your complex medical history and current health conditions. It's understandable to feel overwhelmed and frustrated, but there are several steps you can take to approach this situation constructively.
Main Points:
- Address your bowel movement struggles and pain.
- Consider modifications to your current management plan.
- Communicate effectively with your healthcare team.
Explanation:
Your experiences with bowel movements, especially combined with conditions like IBS and gastroparesis, can create unique challenges. The pain and fear of attempting to use the restroom are valid concerns. It’s crucial to understand that while you have taken many steps, further adjustments might help improve your situation.
Prioritized Next Steps:
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Dietary Adjustments:
- Focus on a high-fiber diet to promote regularity but be cautious with types of fiber based on your IBS symptoms. Aim for soluble fibers found in oats, barley, and fruits like bananas, apples, and soft-cooked vegetables.
- Stay hydrated; adequate fluid intake is essential, especially with increased fiber.
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Medication Review:
- Discuss with your healthcare provider about possible adjustments to your current medications. Some medications can contribute to constipation or gastrointestinal discomfort. For instance, certain pain medications and antacids might exacerbate your symptoms. Your doctor could consider alternatives or dose adjustments.
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Stress and Anxiety Management:
- Given the anxiety around bowel movements, exploring relaxation techniques such as mindfulness, deep breathing, or gentle yoga may help calm your mind and body when attempting to use the restroom.
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Regular Physical Activity:
- If allowable by your energy levels and pain, gentle exercises like walking can sometimes stimulate bowel activity and improve overall digestive health.
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Follow-Up with a Gastroenterologist:
- Given your ongoing struggles, it might be beneficial to consult a gastroenterologist specializing in complex cases. Prepare a list of your symptoms, medications, and any patterns you've noticed, as this could help pinpoint the underlying causes.
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Pelvic Floor Therapy:
- Continue with physical therapy, but don't hesitate to discuss the specific pelvic floor techniques that might help improve rectal function. It could be beneficial to address any pelvic floor dysfunction further.
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Keep a Symptom Journal:
- Document your bowel habits, pain levels, dietary intake, and any other symptoms. This can provide valuable information for your healthcare team and might reveal patterns or triggers that could lead to solutions.
Remember, your feelings of frustration are valid, and working collaboratively with your healthcare team is key to finding relief. If things become intolerable or you're unable to cope with the pain, reach out for immediate medical support. You deserve care that listens to your experience.
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