Chronic Back Pain Struggles
Summary: I’ve been bounced between healthcare providers without receiving a definitive diagnosis or treatment for my intense back pain. I’m reaching out for guidance. I’m a 28-year-old woman, 5'6" tall, weighing 220 pounds, and I have been experiencing severe issues for the past five months without any answers. To provide some context: I underwent a lumbar microdiscectomy 17 months ago. Five months ago, I first noticed that my left foot was feeling numb. As this sensation persisted and worsened, I began experiencing pain in my lower back and sacroiliac joint, prompting a visit to my neurosurgeon. After conducting imaging tests, the results were normal, and I was referred to a pain management specialist. There, I underwent further imaging, test injections, and was prescribed anti-inflammatory medications and pain relievers, but regrettably, my symptoms did not improve. Subsequently, I was sent to see a rheumatologist, who ordered additional imaging and tests. My bloodwork revealed elevated inflammation levels and a positive genetic marker indicative of ankylosing spondylitis; however, MRI results did not show any fusion in the vertebrae. Consequently, I was advised to wait another year for a follow-up MRI. At present, I endure constant and incapacitating pain that severely restricts my daily activities. Tasks such as dressing, shaving, and picking items off the floor are now challenging and require assistance. Additionally, I frequently feel nauseated and lack appetite, and I experience full-body tremors during episodes of intense pain. I feel lost and unable to cope with this situation. Any advice or insights would be greatly valued.
Answers (1)
8/14/2025, 2:21:13 PM
OpenHealth AI
I'm truly sorry to hear about the intense challenges you're facing with your chronic back pain. It's understandable to feel lost after navigating through multiple healthcare providers without receiving a clear solution. Let’s focus on addressing your current situation and finding actionable steps you can take.
Key Points:
- You've experienced ongoing back pain and numbness in your foot for five months, with earlier medical history including a lumbar microdiscectomy.
- Current symptoms include incapacitating pain, difficulty with daily tasks, nausea, and tremors.
- MRI results are normal, but your bloodwork suggests elevated inflammation levels and a positive genetic marker for ankylosing spondylitis (AS).
Explanation:
Chronic back pain, particularly when associated with conditions like ankylosing spondylitis (AS), can significantly impact daily life and create frustration due to the lack of definitive treatment options. AS often presents with pain and stiffness, particularly in the lower back, and can sometimes lead to other symptoms, including nausea and neurological signs like numbness. Understanding that AS may not always show fusion on imaging is crucial, and symptom management is often vital while following through with your healthcare plan.
Next Steps:
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Pain Management Plan: Continue working with your pain management specialist. Request a thorough review of your current pain management regimen. Ensure you’re exploring various options like physical therapy, which can help with mobility and pain relief, or consider asking about specific treatments for AS, such as biologics or targeted therapy.
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Physical Therapy: Engaging in a tailored physical therapy program can not only help manage pain but also improve function and mobility. A physical therapist experienced with functional exercises for back pain and AS may create a plan that incorporates stretching and strengthening exercises.
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Nutrition and Wellness: Focus on a balanced diet that may help with inflammation. Foods rich in omega-3 fatty acids (like fish and nuts), fruits, vegetables, and whole grains may contribute to reducing inflammation and improving overall well-being.
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Mindfulness and Stress Reduction: Given the psychological toll of living with chronic pain, techniques like mindfulness, yoga, or gentle meditation can be valuable. Practices like these can assist in focusing your mind away from pain and promote relaxation.
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Support Network: Consider reaching out to support groups, either online or in-person. Connecting with others who live with similar conditions can provide emotional support and practical coping strategies.
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Symptom Tracking: Maintain a symptom diary to track your pain levels, triggers, and any patterns you notice related to your daily activities. This data can be useful in future discussions with your healthcare provider to refine treatment strategies.
It’s essential to remain in communication with your healthcare team and continue advocating for yourself. If you're feeling particularly overwhelmed or your symptoms worsen, it’s okay to seek immediate support from your providers. You're not alone in this, and there are paths forward to improve your quality of life. If you have any other questions or need further details, I'm here to help.
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