Seeking Help for Chronic Pain and Fatigue
Several years back, I (17F) began to experience an increasing sense of exhaustion, which persisted regardless of how much rest I got. Alongside this, I developed pain in my ankles, which gradually progressed to my knees and back. This year, after attending a wedding, the discomfort became so severe that I found myself unable to rise from bed. Following this episode, I received a diagnosis of multilevel cervical disc desiccation and was also evaluated for keratoconus. I have now been referred to a neurology specialist. Below is a compilation of my symptoms: - Loss of grip and strength in my hands, persisting for about a year - Persistent headaches along with neck and back pain, which makes it challenging to remain upright - Joint discomfort in my ankles, toes, knees, hips, shoulders, and elbows - Shooting pain radiating through my forearms, elbows, and legs - Generalized muscle weakness affecting my body - Pain felt in my ribs and stomach area - Ongoing fatigue and exhaustion, accompanied by unexpected leg pains - Tingling sensations present in my hands and legs - Episodes of dizziness, confusion, and lapses in memory - Challenges with breathing - Shakiness - Occasional involuntary movements in my legs or fingers - Hallucinations - Brief instances of vision obstruction. While I have my own hypotheses regarding these issues, I would greatly appreciate any additional insights. I do smoke occasionally and drink lightly as well. Currently, I'm not on any regular medication; paracetamol has proven ineffective for me. The only analgesic that seems to offer some relief is ibuprofen, but even that barely dulls the pain.
Answers (1)

8/13/2025, 9:31:03 PM
OpenHealth AI
It sounds like you are experiencing a complex and challenging combination of symptoms that significantly impact your daily life. The fatigue, chronic pain, neurological symptoms, and other challenges you've described warrant a thorough and compassionate approach. Here’s a structured way to understand your situation and next steps.
Main Points:
- Complex Symptoms: You’ve presented a range of symptoms affecting multiple body systems.
- Potential Evaluation: Ongoing assessments by a specialist are critical for diagnosis and management.
- Self-care Strategies: There are supportive measures you can implement while waiting for further evaluation.
Explanation:
Your symptoms, including fatigue, joint pain, muscle weakness, and neurological signs (like tingling and dizziness), can be indicative of several underlying conditions, including autoimmune disorders, fibromyalgia, or neurological issues, especially since you mentioned cervical disc problems. The presence of hallucinations and memory lapses is concerning and should be carefully evaluated by your neurology specialist, as these can indicate deeper neurological concerns.
Next Steps:
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Track Your Symptoms: Keep a detailed diary of your symptoms, noting when they occur, their intensity, and any factors that might influence them (such as rest, activity, and stress). This information can be invaluable to your healthcare team.
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Establish a Routine: Implement a gentle routine that includes:
- Gentle Movement: Engage in low-impact activities like walking or stretching, as tolerated, which can help with joint pain and muscle strength.
- Nutrition: Focus on a balanced diet rich in anti-inflammatory foods (like fruits, vegetables, and omega-3 fatty acids) which might alleviate some of your symptoms.
- Hydration: Ensure you are drinking enough water throughout the day.
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Pain Management: Since ibuprofen provides some relief, continue to use it as directed. You might also consider discussing alternative pain management strategies with your doctor, such as physical therapy, cognitive behavioral therapy for pain management, or possibly topicals for localized pain relief.
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Smoking and Alcohol: Reducing nicotine and alcohol intake may improve your overall health and potentially reduce some symptoms, especially the neurological ones.
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Prepare for Your Neurology Appointment: Write down your most pressing questions and concerns, as well as any patterns you notice with your symptoms. This preparation can facilitate a more productive discussion with your neurologist.
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Emergency Symptoms: Be alert to any worsening of symptoms, particularly severe headaches, changes in consciousness, or new neurological symptoms, and seek immediate care if these occur.
It's clear you're facing significant challenges, and it's important to approach this collectively with your healthcare team. This journey can be frustrating, but with careful observation and management, you can make strides toward feeling better. Please take care of yourself, and prioritize reaching out for the support you need.
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